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New patient empowerment and educational initiatives unveiled at EULAR 2014
Date:6/11/2014

c disease patients live a better life

The Institute of Rheumatology in Warsaw, Poland has created a series of video-guides for people with rheumatic diseases and their relatives to provide simple tips and advice on how to make life with one of these conditions easier.4

Using the World Arthritis Day 2013 slogan "Living better, ageing well", these educational videos consist of five films: Kitchen of the rheumatic person, Bathroom for the rheumatic person, rheumatic person out shopping, rheumatic person on the stairs and rheumatic person in the car.

Speaking today at EULAR 2014, Ms. Jolanta Grygielska from the Department of Epidemiology And Health Promotion of Rheumatic Diseases at the Institute said, "minimising disability is the most important objective for people living with rheumatic diseases. Adaptation of the rheumatic patient's environment to suit their needs and abilities is very important to reduce the impact on their quality of life.

"Video-guides are an easy and useful tool for health promotion, a good way to communicate with people with rheumatic disease, and to help them cope with the problems of everyday life," Ms. Grygielska explained.

The videos are available on YouTube and through links on the website of the Institute, on the websites of rheumatic disease patient organisations, and on the website maintained by Institute for Polish patients http://www.dzienreumatyzmu.pl. A second series is now in production, with the first video in this new series, launched last month, focusing on the rheumatic person travelling and addressing the challenge of travelling by city bus with sticks, cane and in a wheelchair.

German Rheumatology Patient Group supports patients' involvement in guideline development and political committees

Patient representatives with rheumatic diseases are actively taking part in guideline development and sitting on differen
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Contact: EULAR Press Office
eularpressoffice@cohnwolfe.com
44-078-801-73209
European League Against Rheumatism
Source:Eurekalert

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