Online programme proven to successfully empower European patients with chronic medical conditions
Evaluation of a new free online course has shown that it is meeting its aim to enable and empower patients to advocate for themselves and others to shape future healthcare policy. The European Patient Ambassador Programme (EPAP) aims to provide patients with self-advocacy skills over six modules* to help them shape future healthcare policy. Out of 251 patients with chronic diseases, including arthritis/rheumatism, who had completed the EPAP, 80% felt they understood how decisions about healthcare were made, and 87% felt confident to interact with professionals, policy makers and the media.2
Ms Monica Fletcher, Chair of the European Lung Foundation (ELF) who developed the programme, explains why this new programme is needed, "as more people live longer with chronic conditions, such as arthritis and rheumatism, it is essential that they become involved in healthcare to help improve the patient's experience, identify patient priorities, reduce burden on services, and advance research."
ELF, who developed EPAP (http://www.EPAPonline.eu) with the help of patients, patient organisations, and professionals with expertise in each area, plan to work with partners across Europe to ensure this free online course is accessible to everyone. Introductory videos will be developed in all European languages, and full translations will be carried out wherever there is in-country interest.
New patient decision aid meets need to better inform and involve patients in treatment choices
Patients using a new Patient Decision Aid (PtDA) designed to educate them about DMARDs perceived that the PtDA was helpful in the decision-making process, allowing them to take a more active role
|Contact: EULAR Press Office|
European League Against Rheumatism