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New insight into RA patient priorities and motivators for clinical trial involvement
Date:6/13/2008

elopment, this new RAID scoring system ensures that clinical measures by healthcare professionals also reflect what really matters from a patient perspective. Reassuringly, many of the aspects found to be important to patients are reflected in standard clinical quality of life measures, but RAID goes one step further in ensuring the experience of living with RA is fully taken into consideration when assessing the effectiveness of interventions."

Patient motivation in clinical trial enrolment

The second initiative is a study that sought to understand patient perspectives and motivators for participating in clinical trials, in order to help encourage active participation in future research. 60 RA patients attending various rheumatology departments in Romania were interviewed with a questionnaire exploring possible reasons for participating in clinical research, as well as aspects of clinical trials that were perceived drawbacks to enrollment. Data were analysed using SPSS 13.0 (a statistical and data management package for analysts and researchers) and one way Anova (an analysis of variance).

The study showed that the two reasons that patients considered the most important when agreeing to participate in clinical trials were potential benefits to themselves (90%) or other patients (77%) and to enhance knowledge and understanding of RA (83%). Many patients (72%) also cited trust in their physician as an important deciding factor and a notable number considered free complete blood tests (63%) and payment (27%) and as incentives, especially those patients with lower levels of education (p=0.03, p=0004 respectively Anova). Interestingly, almost a third (27%) of patients indicated they would be especially motivated to be involved in clinical trials in order to report on adverse events, further demonstrating the altruistic nature of many patients' motivation and backing up their self-reported commitment to the advancement of RA understanding
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Contact: Rory Berrie
eularpressoffice@uk.cohnwolfe.com
44-077-892-70392
European League Against Rheumatism
Source:Eurekalert

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