Navigation Links
New insight into RA patient priorities and motivators for clinical trial involvement
Date:6/13/2008

Paris, France, Friday 13 June 2008: Two new initiatives designed to improve the management of rheumatoid arthritis through patient participation were presented today at EULAR 2008, the Annual Congress of the European League Against Rheumatism in Paris, France.

The RAID disease impact score

The first, a EULAR initiative entitled 'Elaboration and validation of the EULAR patient-derived Rheumatoid Arthritis Impact of Disease' (RAID) score, was based on patients' perceptions of the impact of disease on dimensions of health. 100 patients from 10 European countries worked alongside healthcare professionals to identify the true everyday impact of rheumatoid arthritis (RA) on their lives, and enable the development of a new disease impact score.

Tools for assessing impact of RA on a person's life have traditionally focused on areas that healthcare professionals assume to be important. However, the project Steering Group, comprising individuals with RA as well as rheumatologists from ten countries (France, Greece, Estonia, Italy, Netherlands, Norway, Romania, Turkey, Spain, UK), addressed the issue from the patient's perspective and considered the many aspects of health and life that are most disrupted by people living with RA, and then asked a group of 100 patients to rank these in order of importance.. A further group of 50 patients from each country then distributed 100 points across the top 7 scoring aspects, to illustrate how much each one impacts their life.

The patients rated pain (21%), function (19%) and fatigue (17%) as the most important in terms of affect on their lives. The other important domains affected by RA according to the patients were emotional well-being (12%), sleep (11%), coping (11%) and physical well-being (9%).

Miss Pamela Richards, a Patient Research Partner with the University of Bristol and University of the West of England, UK, said, "Thanks to the direct involvement of patients in its dev
'/>"/>

Contact: Rory Berrie
eularpressoffice@uk.cohnwolfe.com
44-077-892-70392
European League Against Rheumatism
Source:Eurekalert

Page: 1 2 3

Related medicine news :

1. Molecular insight begins Trofex Ph. 1 trial for detection of metastatic prostate cancer
2. Ingenious Meds IM Quality Measures(TM) Delivers Insight About Hospitalist Performance
3. Chemstar Corporation Publishes New Insights on Fresh Produce Safety From CFP Workshop
4. Insights into cancer earn Premiers Award Commendation
5. Health Care Leaders Gather to Gain New Safety, Risk Management Insights From Aviation Industry Experts
6. Cell-Mediated Immunity and Anti-HLA Antibody Tests Provide Insight to Immune Response in Renal Transplant Patients
7. New research offers insight into oral cancer, chronic pediatric ear infections, and hearing health
8. Healthcare Industry Spending on Telecommunications Services Hits $55 Billion Over Next Five Years, Says Insight Research
9. Penn researchers gain new insights on spinal muscular atrophy
10. New insights in diagnosing diabetes may help the millions who are undiagnosed
11. Continua Health Alliance Provides Insight Into Next Generation of Digital Health at CONNECTIONS(TM)
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/19/2014)... 19, 2014 Silver Dollar City ... record -- for the first time ever, Silver Dollar City ... Guinness World Records 2015, listing the park’s wood coaster Outlaw ... In additional awards announced this week, Silver Dollar City is ... in the US,” USA Today’s 10Best awards for “Best Public ...
(Date:12/19/2014)... 20, 2014 These vanadium reserves are ... nations. Around 151,000 tons of vanadium were produced globally ... vanadium usage increased at 6.7% AAGR during the period ... iron industry, being the largest consumer, accounted for more ... by titanium-vanadium alloy and the chemical industry. , View ...
(Date:12/19/2014)... The print component of Vision and ... of the Toronto Star, with a circulation of approximately ... digital component is distributed nationally through a vast social ... sites and partner outlets. To explore the digital version ... publication features an exclusive interview with Mark DeMontis ...
(Date:12/19/2014)... (HealthDay News) -- All children should have their eyesight ... every year, eye experts say. The new vision-screening ... of the U.S. National Center for Children,s Vision Health. ... group require screening for eye problems, particularly vision ... ("lazy eye") and strabismus (a disorder of eye alignment). ...
(Date:12/19/2014)... -- Dense bunches of bacteria called biofilms can be found ... The researchers said these biofilms were especially prevalent ... of these biofilms may represent an increased likelihood of colon ... person,s risk for the disease, the researchers said. Like ... coat the mucus layer of cells lining the colon, according ...
Breaking Medicine News(10 mins):Health News:Silver Dollar City Nets New Titles: Guinness Book of World Records, Plus CNN Travel, USA Today & Fodor’s Top Places for Christmas Lights 2Health News:Marketresearchreports.biz: Global Vanadium Usage Increased at AAGR of 6.7% between 2001 and 2013 2Health News:Marketresearchreports.biz: Global Vanadium Usage Increased at AAGR of 6.7% between 2001 and 2013 3Health News:Mark DeMontis, Founder of Courage Canada, shares his passion for bringing hockey to those affected by blindness in Mediaplanet’s “Vision and Hearing” campaign 2Health News:Preschoolers Need Eye Screening, Experts Say 2Health News:Could Bacteria Play a Role in Colon Cancer? 2
... bald mice to get fur on the body, says a ... C. Thompson and colleagues at Johns Hopkins University School// of ... encodes a protein that is essential for hair follicle regeneration. ... Hairless gene, hair growth is initially normal. But once hair ...
... but that is the place no one looks. Same is ... control protein with a key role in the brain's ability ... treating obesity and type 2 diabetes. ,The findings in ... might underlie obesity in humans, the researchers said. SH2-B, which ...
... temporarily ban the Environmental Protection Agency (EPA) from using ... marketed//. Lawmakers on Capitol Hill will soon decide whether ... and use of studies that expose participants to pesticides. ... to have their pesticides approved by the agency for ...
... living with HIV/AIDS in Manipur have hope at hand ... specialised clinics for their care and treatment//.,The Nobel prize-winning ... signed a memorandum of understanding with the Manipur government ... HIV/AIDS. ,The Dutch chapter of the MSF ...
... make some people vulnerable to suffer from the dreaded ... can diagnose the risk//. ,According to the most ... by the researchers from Vanderbilt University in Nashville, Tennessee ... Association in San Diego, a cluster of genes on ...
... help of carotid endarterectomy, said a report in the ... is the most frequently performed operation to prevent stroke//. ... prevent future stroke, according to a clinical practice guideline ... Neurology (AAN). The guideline updates the 1990 AAN statement ...
Cached Medicine News:Health News:An Answer To Obesity: Weight Control Protein 2Health News:US Senate Votes against Testing of Pesticide on Humans 2Health News:Specialized Clinics For Manipur's AIDS Patients 2Health News:Carotid Endarterectomy Beneficial for Stroke Prevention 2
(Date:12/19/2014)... LAKE FOREST, Ill. , Dec. 19, 2014 /PRNewswire/ ... the world,s leading provider of injectable drugs and infusion ... the J.P. Morgan 33rd Annual Healthcare Conference on Wednesday, ... The presentation is scheduled to begin at 10:30 ... will be available to all interested parties through a ...
(Date:12/19/2014)... Dec. 19, 2014 In today,s rapidly ... marketing communication tools are essential for survival. The ... consequently consumers, desires, preferences, and unmet needs are ... research groups across all industries are continually searching ... However, the adoption of new market research techniques ...
(Date:12/19/2014)... and CARDIFF-BY-THE-SEA, Calif. , Dec. ... SRNE ;  Sorrento), an oncology company developing ... Conkwest, Inc., a privately-held immuno-oncology company developing proprietary ... cell-line based therapy, announced today that the companies ... develop next generation CAR-TNK™ (pronounced as "Car-Tank") immunotherapies ...
Breaking Medicine Technology:Study Uncovers New Tools and Techniques for Understanding Consumer Decision Making 2Sorrento and Conkwest Announce Exclusive Global Collaboration 2Sorrento and Conkwest Announce Exclusive Global Collaboration 3Sorrento and Conkwest Announce Exclusive Global Collaboration 4Sorrento and Conkwest Announce Exclusive Global Collaboration 5
... for Treating Motor System Disorders, LA JOLLA, ... currently in clinical development by TorreyPines Therapeutics,Inc. (Nasdaq: ... migraine headache, was shown,in an independent study to ... rigidity in a rat model of spinal ischemia. ...
... Pharmion Corporation,(Nasdaq: PHRM ) today announced ... trial evaluating amrubicin, the Company,s third-generation,synthetic anthracycline, in ... The randomized, controlled, multi-center study will compare,amrubicin to ... SCLC in the US and EU. Enrollment in ...
Cached Medicine Technology:Tezampanel, TorreyPines Therapeutics' Lead Compound, Reduced Muscle Spasticity and Rigidity in Preclinical Study Conducted at University of California, San Diego 2Tezampanel, TorreyPines Therapeutics' Lead Compound, Reduced Muscle Spasticity and Rigidity in Preclinical Study Conducted at University of California, San Diego 3Tezampanel, TorreyPines Therapeutics' Lead Compound, Reduced Muscle Spasticity and Rigidity in Preclinical Study Conducted at University of California, San Diego 4Pharmion Initiates Pivotal Phase 3 Study of Amrubicin in Small Cell Lung Cancer 2Pharmion Initiates Pivotal Phase 3 Study of Amrubicin in Small Cell Lung Cancer 3Pharmion Initiates Pivotal Phase 3 Study of Amrubicin in Small Cell Lung Cancer 4Pharmion Initiates Pivotal Phase 3 Study of Amrubicin in Small Cell Lung Cancer 5
... segment surgeries Vitrectomy-Lensectomy + Irrigation/Aspiration system ... Linear Aspiration. Interchangeable disposable blades can ... Easy to read LED display for ... 1- 600 cuts per minute. Independent ...
Mendez Multi-Purpose LASIK Forceps. To enter, dissect, elevate and smooth the flap. Combined features of Spatula, Dissector and Forceps, Titanium...
Hockey Knife For PRK - Also available in Titanium...
The CGAL gonioscopic contact glass was designed by Roussel and Fankhauser for,laser treatments of the chamber angle. It reduces the laser spot by a factor of 1.5 as compared to a Goldmann Glass....
Medicine Products: