Navigation Links
New child health data show state-to-state differences in quality of care

A new government survey reveals children with special health care needs, such as autism, attention deficit hyperactivity disorder and asthma, don't consistently get the care that is federally recommended and that there are vast state-to-state differences. This is the first time standardized data at the national and state level has been available to the media and families in an easily accessible way.

"Parents of children with special health care needs often have obstacles in getting the information they need," said Christina Bethell, Ph.D., director of the Data Resource Center and associate professor of pediatrics in the Oregon Health & Science University School of Medicine. "The Maternal and Child Health Bureau, which designed and sponsored this survey, is committed to making this data available to the public, parents and media through the Data Resource Center, where you can find specific information about how your state fares in an easy-to-use Web site."

The survey is especially significant because it finds that more than 10 million American children have a special health care need -- that amounts to one in five households with children younger than 18. While states perform well in specific areas, no state is providing all of the recommended care to the majority of their children with special health care needs.

These differences found between states are cause for concern. For instance, in Kansas, just 28 percent of children younger than 12 with special health needs receive care that meets all five of the performance measures recommended by the federal government. By contrast, in Montana, only 13 percent of children with special health care needs meet all five of these measures. For adolescents, the best-performing state was New Hampshire and the worst was Mississippi.

In addition to state-by-state comparisons, the Data Resource Center Web site housed at OHSU allows media and families to search by other factors such as income or race/ethnicity. The public and others are encouraged to take advantage of the federally funded Data Resource Center for Child and Adolescent Health Web site at

Additional findings of the survey include:

  • While nearly all children with special health care needs have some type of health insurance, 3.3 million are underinsured. The health benefits packages for one-third of currently insured children with special health care needs do not adequately cover needed services or have reasonable co-pays.

  • Only one-third of children with special needs who are Hispanic or who are living below the federal poverty level get coordinated and family-centered care from their health care providers.

  • Out-of-pocket medical costs exceeded $1,000 for 1 in 5 children with special health care needs during 2005-06.

  • Family members of nearly 2.5 million children with special health care needs had to cut back or stopped working because of their childs health conditions.

In the National Survey of Children with Special Health Care Needs, 40,465 families were interviewed, covering an average of 800 or more children with special health care needs younger than 18 in each of the 50 states and the District of Columbia.

To start searching the data in your state, visit:
For more details about how the survey was conducted, visit:
For a fast glimpse of your state's profile, visit:


Contact: Tamara Hargens-Bradley
Oregon Health & Science University

Related medicine news :

1. CDC Vaccine Committee Recommends More Shots for Children
2. Business Leaders, Policy Makers and Advocates Gather to Discuss Strategies for Securing the Nations Economy by Investing in Early Childhood
3. AAPD Announces Partnership With Head Start to Address Childhood Epidemic
4. Treatment for disease that affects estimated 1 in 2000 children gets them to eat again
5. FDA Approves NEXIUM(R) for the Treatment of Short-Term GERD in Children 1 to 11 Years Old
6. Lead Safe D.C. and HSCSN Bring Lead Poisoning Prevention to The Districts Children With Special Needs
7. Families Rejoice in CDCs Advisory Committee on Immunization Practices Vote for Universal Childhood Influenza Vaccination
8. Overweight Hispanic children shown to have vascular inflammation
9. Non-Resident Fathers Project Selects Four National Sites for Funding to Increase Father Involvement and Improve Outcomes in Child Welfare
10. Social Security Lifts 1.3 Million Children Out of Poverty
11. Van Andel Institute and Childrens Memorial Research Center of Chicago Form a Partnership to Facilitate Pediatric Research
Post Your Comments:
(Date:11/27/2015)... ... November 27, 2015 , ... ... convenient way to dispense prescription medications at home, so he invented the patent-pending ... monitor and dispense prescription medications. In doing so, it could help to prevent ...
(Date:11/27/2015)... ... 2015 , ... MPWH, the No.1 Herpes-only dating community in the world, revealed that over 50% ... More than 3.7 billion people under the age of 50 – or 67% of the ... first global estimates of HSV-1 infection . , "The data shocks us highly!" said ...
(Date:11/27/2015)... ... November 27, 2015 , ... Keeping in mind challenges ... health and wellness consultation, has collaborated with a leading web-based marketplace for extra-curricular ... experienced by parents and bring advice from parenting experts within their reach. As ...
(Date:11/27/2015)... ... November 27, 2015 , ... Indosoft ... announces the incorporation of Asterisk 11 LTS (Long Term Support) into its Q-Suite ... LTS brings Q-Suite 5.10 up-to-date with a version of Asterisk that will receive ...
(Date:11/26/2015)... ... 2015 , ... The Catalent Applied Drug Delivery Institute today ... dose form selection in early phase drug development. The first of these is ... together the UK’s emerging life sciences companies, corporate partners, and investors, at Milton ...
Breaking Medicine News(10 mins):
(Date:11/26/2015)... , November 26, 2015 ... "Self Administration of High Viscosity Drugs" ... ) has announced the addition of the ... to their offering. --> Research and ... of the "Self Administration of High Viscosity ...
(Date:11/26/2015)... , November 26, 2015 /PRNewswire/ ... announced the addition of the  "2016 ... the European Cell Surface Marker Testing ... Opportunities"  report to their offering.  ... the addition of the  "2016 Future ...
(Date:11/25/2015)... 25, 2015  Amgen (NASDAQ: AMGN ) today ... with the United States (U.S.) ... biosimilar candidate to Humira ® (adalimumab). Amgen believes ... to the FDA and represents Amgen,s first BLA submission ... Harper , M.D., executive vice president of Research and ...
Breaking Medicine Technology: