Navigation Links
New Web Community Brings Together Parents of Visually Impaired Children
Date:4/28/2008

NEW YORK, April 29 /PRNewswire-USNewswire/ -- When parents learn their child has a visual impairment, it can be overwhelming. Parents wonder, "Will my child fall behind at school?" or "Will my child make friends?" or "Will my child have a successful career?" With only 93,600 visually impaired school-aged children in the U.S., over half of whom have additional disabilities, it's easy for families facing vision loss to feel alone.

To help these families connect with each other and give busy parents, grandparents and other caretakers a place to find comprehensive resources and support 24 hours a day, the American Foundation for the Blind (AFB) and the National Association for Parents of Children with Visual Impairments (NAPVI) today launched FamilyConnect(TM), an online, multimedia community for parents and guardians of children with visual impairments.

Located at http://www.familyconnect.org, FamilyConnect gives parents access to message boards where they can talk to other parents, compelling videos featuring real-life families, parenting articles, a mom-authored blog, a glossary of more than 30 eye conditions, and links to local resources. The site also features sections dedicated to multiple disabilities, technology, education, and every age group from infants to teens.

"We created FamilyConnect to give parents the support and information they need to ensure their children can achieve their dreams --- whether that is playing sports or music, learning to read Braille, getting a first job, surfing the web, making the cheerleading squad, traveling the world, or going to graduate school," said Carl R. Augusto, President & CEO of AFB.

A recent NAPVI/AFB survey of parents of children with visual impairments showed that parents/guardians turn most commonly to physicians (82%), educators (76%), and web sites (65%) for information and support regarding their children's vision problems. This is consistent with national statistics from the 2006 Pew Internet & American Life Project that show 80 percent of American adult Internet users have searched for health information online. For parents living in rural areas with fewer resources, the web is particularly important to finding relevant, trustworthy information and the right services.

"When I talk to parents of visually impaired children they almost always ask about three things: they want to talk to other parents who have children with the same eye condition as their child, they want access to the latest health and education information, and they want to know what the future holds," said Susan LaVenture, Executive Director of NAPVI. "FamilyConnect offers parents all these things -- and more -- in one place."

In addition to joining a community of parents, visitors to http://www.familyconnect.org can create a personal profile and receive information on news and events based on their child's age, eye condition, and location. Families can also find articles written by parents and professionals on topics such as:

-- Finding the Right Eye Care Professionals for Your Child

-- Developmental Milestones: What Do They Mean?

-- Your Child's Individualized Educational Program

-- Friendship in the Teen Years

-- College Life Begins

In designing this web site, AFB and NAPVI partnered with leading national organizations and hundreds of local agencies that serve children who are visually impaired to keep FamilyConnect content complete and up to date. AFB and NAPVI also solicited input from families across the country. Here are representative samples of what they are saying about the final result.

Jen and Bill O'Neill, Nebraska

Daughter Camille, age 3, Retinopathy of Prematurity (ROP)

"Our family is truly amazed at what we've seen of the site. Wow! Thank you all for the insight to see that this is something that is so needed for families who are facing and overcoming the diagnosis of visual impairment. The site is more than I imagined it would be -- it is so comprehensive and truly allows families to connect with one another and to resources."

Patty Bushland, Arkansas

Daughter Mary Rose, age 2, Leber's Congenital Amaurosis (LCA)

"When I found out my baby was visually impaired, I immediately went to the Internet to find out everything I could about her condition and what I could do to help her. FamilyConnect is so important, and I wish it had been there for me when my daughter was first diagnosed."

The goal of http://www.familyconnect.org is to provide connections and support. By providing accurate information and creating a forum for meaningful discussion, families and their visually impaired children will feel empowered to reach their full potential.

FamilyConnect is generously supported by grants from the Lavelle Fund for the Blind, Inc. and Conrad N. Hilton Foundation, The Annie E. Casey Foundation, and Morgan Stanley.

About AFB

The American Foundation for the Blind (AFB) (http://www.afb.org) is a national nonprofit that expands possibilities for people with vision loss. AFB's priorities include broadening access to technology; elevating the quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing them and their families with relevant and timely resources. Headquartered in New York, AFB is proud to house the Helen Keller Archives (http://www.afb.org/Section.asp?SectionID=1) and honor the more than forty years that Helen Keller worked tirelessly with AFB.

About NAPVI

The National Association for Parents of Children with Visual Impairments (NAPVI) is an international membership organization serving families in the U.S. and in 55 countries. NAPVI helps parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities. NAPVI provides leadership, support, and education to assist parents in helping children reach their potential.


'/>"/>
SOURCE American Foundation for the Blind
Copyright©2008 PR Newswire.
All rights reserved

Related medicine news :

1. Los Angeles Jewish Home Unveils Auerbach Behavioral Health Center Filling Community Void for Adults Over 55
2. Kidney Care Community Applauds National Taxpayers Unions Endorsement of Medicare Reforms to Extend Patient Private Health Insurance Coverage; Calls Proposal Common Sense Coverage Reform
3. New National Survey: 84% of Americans Over 50 Expect a Family Member to Move into an Assisted Living Community Within the Next 10 Years
4. UPMC Health Plan and Rainbow Kitchen Community Services at W.A.R. to Wipe Out Hunger in Pittsburgh
5. ValueOptions(R) New Mexico Provides $10.3 Million for Community Behavioral Health Care Organizations
6. Community-Based Fight Against Malaria Working in Africa
7. EPA Recognizes Fort Wayne Community Schools for Reducing Diesel Emissions From Its School Buses
8. Rik Deitsch, CEO of Nutra Pharma Creates Personal Wall on WallSt.nets Financial Social Community, my.wallst.net
9. Chicagoland Super Star Community and Public Health Nurses - Now Is Your Chance to Win $25,000
10. Anthem Blue Cross and Blue Shield Celebrates Local Moms-to-Be at Community Baby Shower
11. Bayer/Schering-Plough/Shionogis Avelox Has Advantages Over Levofloxacin in the Treatment of Community-Acquired Pneumonia
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/25/2016)... ... ... temporary closing of Bruton Memorial Library on June 21 due to a possible lice infestation, ... aspect of head lice: the parasite’s ability to live away from a human host, and ... necessary one in the event that lice have simply gotten out of control. , As ...
(Date:6/25/2016)... Oklahoma (PRWEB) , ... June 25, 2016 , ... ... both athletes and non-athletes recover from injury. Recently, he has implemented orthobiologic procedures ... Oklahoma City area —Johnson is one of the first doctors to perform the ...
(Date:6/24/2016)... ... June 24, 2016 , ... Those who have experienced ... feelings, many turn to unhealthy avenues, such as drug or alcohol abuse, as a ... has released tools for healthy coping following a traumatic event. , Trauma sufferers tend ...
(Date:6/24/2016)... , ... June 24, 2016 , ... Global law firm ... 2016 Legal Elite. The attorneys chosen by their peers for this recognition are considered ... Seven Greenberg Traurig Shareholders received special honors as members of this year’s Legal Elite ...
(Date:6/24/2016)... ... , ... People across the U.S. are sharpening their pencils and honing their ... in which patients and their families pay tribute to a genetic counselor by nominating ... of Genetic Counselors (NSGC) Annual Education Conference (AEC) this September. , In April, ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... 23, 2016 Any dentist who has made an ... current process. Many of them do not even offer this ... and high laboratory costs involved. And those who ARE able ... such a high cost that the majority of today,s patients ... Parsa Zadeh , founder of Dental Evolutions Inc. and ...
(Date:6/23/2016)... , June 23, 2016 ... CAPR ), a biotechnology company focused on the ... announced that patient enrollment in its ongoing randomized ... has exceeded 50% of its 24-patient target. Capricor ... the third quarter of 2016, and to report ...
(Date:6/23/2016)... , June 23, 2016  Astellas today announced the establishment of Astellas Farma Colombia (AFC), a new affiliate with ... Latin America . ... ... ... ...
Breaking Medicine Technology: