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New Survey Highlights the Challenges of People Living with Rare Cancer
Date:9/17/2009

ssue available at www.CUREToday.com. The magazine and Web site also includes the first-ever Patient's Guide to Rare Cancers, which is designed to address the issues raised in the survey and to help patients communicate more effectively with healthcare providers about their cancers.

"Surrounding patients with many levels of support can help them feel less alone in their disease management," said Debu Tripathy, MD, CURE Editor-in-Chief. "Giving patients with rare cancers a better understanding of their disease can ease their frustration."

The complete CURE Rare Cancer Survey report is available online at: CMLAlliance.com, GISTAlliance.com and CUREToday.com.

References
1. CURE Media Group. CURE Rare Cancer Survey Report, May 15, 2009.
   a. Section 1, page 13, table 3
   b. Methodology, page 2, lines 1-6
c. Section 7, page 20 , table 1, line3
d. Section 7, page 20, table 1, line 4
   e. Section 7, page 20, table 1, line 9
2. National Cancer Institute. Common Cancer Types. cancer.gov/cancertopics/commoncancers Accessed August 2009.
3. American Cancer Society: Cancer Facts and Figures 2009. Atlanta, Ga: American Cancer Society, 2009. Available at, cancer.org/docroot/STT/STT_0.asp Accessed August 2009.
4. National Institutes of Health, Rare Diseases Clinical Research Network Fact Sheet. nih.gov/about/researchresultsforthepublic/RareDiseasesCRN.pdf Accessed August 2009.
5. Panel Intelligence, Discussion Panel Transcript: Journey of Survivorship - Round 2. Prepared for Novartis, October 2007.

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