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New Report: The Online Experience of Sarcoma Patients and Supporters
Date:11/1/2013

formation is presented in an accessible way, and it helps them to feel less alone knowing that other people have their disease and are facing the same problems.”

Some comments show the power of the personal connections fostered by the Initiative. Dr. Ricardo Cubedo in Spain writes, “Bruce encouraged and invited [patient and advocate] Francisco Javier, along with his wife and children, to join a Team Sarcoma Cycling Tour in New York. We scheduled our own Sarcoma Awareness Day at our hospital in Spain so that a Skype connection was possible. I will never forget Francisco Javier exultantly smiling from the huge screen to dozens of patients gathering at the hospital's assembly room. Under a blazing blue sky, surrounded by bikes, children and barking dogs, he and Bruce addressed us all, providing the living evidence of the power of patients' association. The Liddy Shriver Sarcoma Initiative really makes a difference, making a better world for those touched by sarcoma.”

Finally, many of the comments mention the Initiative’s role in advocacy and research. Dr. Elizabeth Lawlor in Michigan writes, “The Initiative has for 10 years served as cornerstone for sarcoma advocacy and scientific advances. Their direct support of my team and our research efforts is helping to ensure that sarcoma patients in the future will have better outcomes than patients in the past.”

In this month’s ESUN editorial, Initiative co-founder Bruce Shriver expressed gratitude to everyone who has helped to advance the Initiative for a decade. He writes, “We are indebted to all of these people for their involvement, commitment, help and generosity. Reaffirming our mantra, ‘Sarcoma Knows No Borders,’ assistance has come from people all over the world who believe in our cause and the quality of our work and who share our passion. We d
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