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New Report: The Online Experience of Sarcoma Patients and Supporters
Date:11/1/2013

cientific research will reduce the online community’s grief by making it possible for more people to live and thrive.”

ABOUT THE LIDDY SHRIVER SARCOMA INITIATIVE
The Liddy Shriver Sarcoma Initiative was formed in November 2003 as a part of Liddy Shriver’s vision of increasing sarcoma awareness and supporting sarcoma research. Even as Liddy underwent aggressive treatments, she and her family planned bicycle tours to raise money for research. Though Liddy died at the age of 37 in 2004, her parents have been tireless volunteers for the cause ever since.

LIDDY'S ONLINE EXPERIENCE
Before today’s popular social networking and blogging sites existed, Liddy Shriver benefited from keeping an online journal about her condition. She scoured the Internet for information about sarcoma, its treatment, and clinical trials that might help her. And she found solace in sharing sorrows and joys with other patients online. A decade later, people continue to do just what Liddy did. Many even come across her journal and express their thanks.

THE INITIATIVE'S TENTH ANNIVERSARY
This report was released as the Liddy Shriver Sarcoma Initiative celebrates its tenth anniversary. Supportive comments about the milestone have poured in from around the world.

Some of the comments discuss the Initiative’s efforts to educate and support. Dr. Ian Judson from the United Kingdom writes, “Over the 10 years of its existence, I have consistently referred my patients to the Liddy Shriver Sarcoma Initiative's website for authoritative, peer-reviewed information and advice. The feedback is always positive. Patients find the in
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