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New Compassionate Allowances for Social Security Disability Represent 'Outstanding Achievement,' NORD Says
Date:10/27/2008

r his administration. Speaking at NORD's annual conference for patients and families in September 2007, he underscored his intention to reduce or eliminate needless delay in the application process for people with serious or life-threatening rare diseases.

In December 2007, SSA hosted hearings in Washington, DC, at which Diane Dorman, NORD's Vice President for Public Policy, spoke on behalf of the rare disease patient community. Medical experts, including clinicians and researchers, also spoke at the hearings.

Since then, many members of the rare disease community have provided information about specific rare diseases to SSA. In addition, SSA has partnered with the NIH Office of Rare Diseases to better understand the more than 6,000 diseases in the U.S. classified as rare. A rare disease is one affecting fewer than 200,000 Americans.

To read more about rare diseases, go to NORD's website (http://www.rarediseases.org). To view the list of 25 rare diseases, and 25 cancers, go to http://www.socialsecurity.gov/compassionateallowances.


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SOURCE National Organization for Rare Disorders (NORD)
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