Navigation Links
New Compassionate Allowances for Social Security Disability Represent 'Outstanding Achievement,' NORD Says
Date:10/27/2008

r his administration. Speaking at NORD's annual conference for patients and families in September 2007, he underscored his intention to reduce or eliminate needless delay in the application process for people with serious or life-threatening rare diseases.

In December 2007, SSA hosted hearings in Washington, DC, at which Diane Dorman, NORD's Vice President for Public Policy, spoke on behalf of the rare disease patient community. Medical experts, including clinicians and researchers, also spoke at the hearings.

Since then, many members of the rare disease community have provided information about specific rare diseases to SSA. In addition, SSA has partnered with the NIH Office of Rare Diseases to better understand the more than 6,000 diseases in the U.S. classified as rare. A rare disease is one affecting fewer than 200,000 Americans.

To read more about rare diseases, go to NORD's website (http://www.rarediseases.org). To view the list of 25 rare diseases, and 25 cancers, go to http://www.socialsecurity.gov/compassionateallowances.


'/>"/>
SOURCE National Organization for Rare Disorders (NORD)
Copyright©2008 PR Newswire.
All rights reserved

0

GOOD

Page: 1 2

Related medicine news :

1. IDM Pharma Announces Data Presentation From Mifamurtide (L-MTP-PE) Compassionate Use Program
2. AMA Foundation Honors Compassionate Physicians With Excellence in Medicine Awards
3. Families Mourning Children Travel to Nashville for July Compassionate Friends National Conference
4. Dow Jones Sustainability Index Again Recognizes Abbott for Continued Leadership in Business, Environmental and Social Performance
5. Cognitive Activities Protect Against Alzheimers -- Social and Physical Activities Not Enough
6. MJGC Welcomes New Director of Social Work Alla Lerner
7. Civil Rights and Medical Leaders Call for Social Justice in Health Care
8. Multicountry review shows that Bug Buster Kits reduce head lice and social stigma
9. Hartford Foundation awards grant to address geriatric social work shortage
10. Study to consider social risk in guiding prevention of heart disease
11. IOM advisory: improving cancer patients psychosocial care
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/4/2009)...c. 4 While Congress deb...th care costs, Leapfrog,s purchaser members point ...ering the best quality care in the nation while at...our urban, eight children,s and three rural hospit...ased on results from The Leapfrog Hospital Survey....
(Date:12/4/2009)...tists at Johns Hopkins publishing in the December ...e by a gene called "Twist" may be the proverbial r... that drive aggressive, metastatic breast cancer f...ent work suggesting that it is a relatively rare s... breast cancer, scientists have surmised that this...
(Date:12/4/2009)...ntal tourism is a phenomenon that was started by p...high price of dental work in the US, Canada, and o...ental care, people have found that Mexican Dental ...tination. , (PRWEB) Decem...an 6 years, Mexican Dental Vacation is seeing thei...
(Date:12/4/2009)...RNewswire/ -- Substantial progress has been made o...s ability to diagnose and treat epilepsy and its c...ement has not reached most of the 50 million peopl...hree million people in the United States who have ...er, M.D., president of the American Epilepsy Socie...
(Date:12/4/2009)...ering drugs known as statins are among the most pr...researchers at Fred Hutchinson Cancer Research Cen...ransplant patients from one of the most serious co...ft-versus-host disease, or GVHD. The findings are ...l Blood . , In a retrospective study of 567 pati...
Breaking Medicine News(10 mins):Health News:The Leapfrog Group Releases Its 2009 Top Hospitals List 2Health News:The Leapfrog Group Releases Its 2009 Top Hospitals List 3Health News:Potential new 'twist' in breast cancer detection 2Health News:Potential new 'twist' in breast cancer detection 3Health News:Mexican Dental Vacation Sees a Rush Of New Patients: Recession A Factor 2Health News:Mexican Dental Vacation Sees a Rush Of New Patients: Recession A Factor 3Health News:Epilepsy Patients Caught in Treatment Gap and Not Getting State-of-the-Art Care 2Health News:Epilepsy Patients Caught in Treatment Gap and Not Getting State-of-the-Art Care 3Health News:Epilepsy Patients Caught in Treatment Gap and Not Getting State-of-the-Art Care 4Health News:Cholesterol-lowering drugs also may protect stem cell transplant patients from GVHD 2
...r osteoarthritis of the knee back to the future.Th...helps relieve pain and other symptoms better than ...ation of leeches to treat pain is an ancient medic...s, such as in treating postoperative complications...
...by viral cold are common in preschoolers. These at... frequency disappears by school age. //The current...eroids at the first sign of an attack. But whether...atory symptoms or the need for hospital admission....
...diagnosed with type 2 diabetes and now research sh...eater risk for a heart attack and stroke. //Specif...d with type 2 diabetes are 14-times more likely to...oing to get heart disease, heart attacks and strok...
...soon be fighting a losing battle. Scientists from ...uccessfully stopped the tuberculosis pathogen's ab...cally hides out in the immune system in a cell cal...s TB. Thus far, all of the research has been done ...
...on condition that can be fatal. It is defined as a...lly due to a blood clot, //which blocks a coronary...for a pulmonary embolism, a new study shows a new ...t 600,000 Americans develop a pulmonary embolism a...
...eir mouths. But as children get older, they become...y if they have not tried it before. Green veget... scientists say thousands of years ago toxins in p...ous of certain food types as youngsters. Resear...
Other Medicine News:
(Date:12/4/2009)...Neb., Dec. 4 Amber Pharmacy announ...creditation Commission for Health Care, Inc. (ACHC... years, Amber Pharmacy has provided comprehensive ...ique needs of specialized conditions. Amber Pharma...transplant programs. They work with over 170 trans...
(Date:12/4/2009)...AKE CITY, Dec. 4 Dynatro... signed a sole-source vendor agreement to provide ...Physical Therapy with 65 clinics located in Tennes...d the sole-source supplier to Benchmark Physical T...esident of sales and marketing at Dynatronics. "Be...
(Date:12/4/2009)..., WASHINGTON, Dec. 4 /PRNewswire-USNewswire/ ...eport published by the Pharmaceutical Research a...fies 97 new drugs and vaccines in development for ...ort found that the 97 products in development inc...e either in human clinical trials or awaiting appr...
Breaking Medicine Technology:Amber Pharmacy Earns Accreditation From ACHC 2U.S. Pharmaceutical Companies Developing 97 New Drugs and Vaccines to Fight HIV/AIDS 2FDA Approves Tekturna HCT 28R 29 as Initial Treatment in Patients Unlikely to Achieve Their Blood Pressure Goals With a Single Agent 4755 1FDA Approves Tekturna HCT 28R 29 as Initial Treatment in Patients Unlikely to Achieve Their Blood Pressure Goals With a Single Agent 4755 2FDA Approves Tekturna HCT 28R 29 as Initial Treatment in Patients Unlikely to Achieve Their Blood Pressure Goals With a Single Agent 4755 3FDA Approves Tekturna HCT 28R 29 as Initial Treatment in Patients Unlikely to Achieve Their Blood Pressure Goals With a Single Agent 4755 4FDA Approves Tekturna HCT 28R 29 as Initial Treatment in Patients Unlikely to Achieve Their Blood Pressure Goals With a Single Agent 4755 5FDA Approves Tekturna HCT 28R 29 as Initial Treatment in Patients Unlikely to Achieve Their Blood Pressure Goals With a Single Agent 4755 6FDA Approves Tekturna HCT 28R 29 as Initial Treatment in Patients Unlikely to Achieve Their Blood Pressure Goals With a Single Agent 4755 7U S Census Bureau Daily Feature for July 21 52174 1UPDATE 3A US Oncology Research Network Participates in Phase III Follow up Study to BiPars Investigational Cancer Drug BSI 201 4753 1UPDATE 3A US Oncology Research Network Participates in Phase III Follow up Study to BiPars Investigational Cancer Drug BSI 201 4753 2UPDATE 3A US Oncology Research Network Participates in Phase III Follow up Study to BiPars Investigational Cancer Drug BSI 201 4753 3UPDATE 3A US Oncology Research Network Participates in Phase III Follow up Study to BiPars Investigational Cancer Drug BSI 201 4753 4
...07 /CNW/ - Protox,Therapeutics Inc. (TSX-V:PRX) to...Phase 1 clinical trial evaluating ,PRX302 in patie...owing radiation failure. The trial results indica...ws promising signs,of therapeutic activity followi...The completion of the PRX302 Phase 1 trial is enco...
...P-233) Ability to Clear Brain,Plaque and Empower R...o ,Proof of Concept, Study Proposes Direct Correla...ry Recovery , LAS VEGAS, July 10, 2007 (PRIME NEWS..., a developer of innovative drugs,is pleased to a...ficacy in its ability to dramatically decrease bet...
Other Medicine Technology:Protox Announces Positive Clinical Data from Prostate Cancer Study 2Protox Announces Positive Clinical Data from Prostate Cancer Study 3Protox Announces Positive Clinical Data from Prostate Cancer Study 4Protox Announces Positive Clinical Data from Prostate Cancer Study 5Samaritan's Alzheimer's Drug Caprospinol Suggests Brain May be Able,to Heal From Alzheimer's Disease 2Samaritan's Alzheimer's Drug Caprospinol Suggests Brain May be Able,to Heal From Alzheimer's Disease 3
Surgiflex® WAVE XP™ Handpiece and Pump, without probe shaft
Surgiflex® WAVE XP™ Handpiece and Pump
SUCTION IRRIGATION: StrykeFlow PS
SUCTION IRRIGATION: StrykeFlow 2
Medicine Products: