Navigation Links
New Compassionate Allowances for Social Security Disability Represent 'Outstanding Achievement,' NORD Says
Date:10/27/2008

WASHINGTON, Oct. 27 /PRNewswire-USNewswire/ -- Peter Saltonstall, president of the National Organization for Rare Disorders (NORD), today called the Social Security Administration's new Compassionate Allowances initiative "an outstanding achievement" that will greatly benefit people with certain rare diseases.

The initiative announced today will fast-track applications for Social Security disability for applicants with any of 25 rare diseases and 25 cancers whose medical conditions are very severe. Currently, many people with rare diseases experience devastating delays when they apply for Social Security assistance because those making the decisions are not familiar with their diseases.

"It has taken Social Security less than a year to develop this much-needed program that will benefit those whose claims merit expedited consideration based on the nature of their disease," Saltonstall said. "Disability backlogs cause a hardship for patients and their families. Social Security Commissioner Michael Astrue and his staff deserve our thanks for a job well done."

At the same time, he added, "This program is just a start. There are 6,000 to 7,000 known rare diseases, many of which could qualify for compassionate allowance. NORD is committed to working with SSA to bring many more rare diseases under this program."

Many people with rare diseases encounter delays of months or even years when they apply for assistance through SSA. Often, people with rare diseases initially are denied assistance but later reapply, often with the help of an attorney, and ultimately are approved. The delay and expense of attorney fees can be overwhelming to people who are already coping with serious illness, major medical expenses, and loss of ability to perform normal activities, including work.

In February 2007, Astrue was named Commissioner of Social Security and, several months afterward, he announced that addressing this problem would be a priority for his administration. Speaking at NORD's annual conference for patients and families in September 2007, he underscored his intention to reduce or eliminate needless delay in the application process for people with serious or life-threatening rare diseases.

In December 2007, SSA hosted hearings in Washington, DC, at which Diane Dorman, NORD's Vice President for Public Policy, spoke on behalf of the rare disease patient community. Medical experts, including clinicians and researchers, also spoke at the hearings.

Since then, many members of the rare disease community have provided information about specific rare diseases to SSA. In addition, SSA has partnered with the NIH Office of Rare Diseases to better understand the more than 6,000 diseases in the U.S. classified as rare. A rare disease is one affecting fewer than 200,000 Americans.

To read more about rare diseases, go to NORD's website (http://www.rarediseases.org). To view the list of 25 rare diseases, and 25 cancers, go to http://www.socialsecurity.gov/compassionateallowances.


'/>"/>
SOURCE National Organization for Rare Disorders (NORD)
Copyright©2008 PR Newswire.
All rights reserved

Related medicine news :

1. IDM Pharma Announces Data Presentation From Mifamurtide (L-MTP-PE) Compassionate Use Program
2. AMA Foundation Honors Compassionate Physicians With Excellence in Medicine Awards
3. Families Mourning Children Travel to Nashville for July Compassionate Friends National Conference
4. Dow Jones Sustainability Index Again Recognizes Abbott for Continued Leadership in Business, Environmental and Social Performance
5. Cognitive Activities Protect Against Alzheimers -- Social and Physical Activities Not Enough
6. MJGC Welcomes New Director of Social Work Alla Lerner
7. Civil Rights and Medical Leaders Call for Social Justice in Health Care
8. Multicountry review shows that Bug Buster Kits reduce head lice and social stigma
9. Hartford Foundation awards grant to address geriatric social work shortage
10. Study to consider social risk in guiding prevention of heart disease
11. IOM advisory: improving cancer patients psychosocial care
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/25/2016)... ... June 25, 2016 , ... Conventional wisdom preaches the benefits ... terms of the latter, setting the bar too high can result in disappointment, perhaps ... slow progress toward their goal. , Research from PsychTests.com reveals that ...
(Date:6/24/2016)... Michigan (PRWEB) , ... June 24, 2016 , ... June ... about the dangers associated with chronic pain and the benefits of holistic treatments, ... individuals who are suffering with Sickle Cell Disease. , Sickle Cell Disease (SCD) is ...
(Date:6/24/2016)... ... ... Global law firm Greenberg Traurig, P.A. announced that 20 Florida attorneys are recognized ... this recognition are considered among the top 2 percent of lawyers practicing within the ... this year’s Legal Elite Hall of Fame: Miami Shareholders Mark D. Bloom, Burt ...
(Date:6/24/2016)... ... June 24, 2016 , ... Topical BioMedics, Inc, makers of Topricin and MyPainAway Pain Relief Products, ... minimum wage raise to $12 an hour by 2020 and then adjusting it yearly to ... value of the minimum wage, assure the wage floor does not erode again, and make ...
(Date:6/24/2016)... ... June 24, 2016 , ... The Haute ... Dr. Barry M. Weintraub as a prominent plastic surgeon and the network’s newest ... world, and the most handsome men, look naturally attractive. Plastic surgery should be ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... Research and Markets has announced the addition of the ... report to their offering. ... failure, it replaces the function of kidneys by removing the ... the treatment helps to keep the patient body,s electrolytes such ... Increasing number of ESRD patients & substantial healthcare expenditure on ...
(Date:6/23/2016)... June 23, 2016  In a startling report released today, ... residents by lacking a comprehensive, proven plan to eliminate prescription opioid ... ranking of how states are tackling the worst drug crisis in ... states – Kentucky , New Mexico ... . Of the 28 failing states, three – ...
(Date:6/23/2016)... LOS ANGELES , June 23, 2016 /PRNewswire/ ... (NASDAQ: CAPR ), a biotechnology company ... first-in-class therapeutics, today announced that patient enrollment in ... progrEssion in Duchenne) has exceeded 50% of its ... its enrollment in the third quarter of 2016, ...
Breaking Medicine Technology: