Navigation Links
New Bill Offers Medicare Reimbursement Fix for Intravenous Immune Globulin
Date:4/22/2009

18 patient advocacy and health care professional groups join with Congressional sponsors Reps. Israel, Brady and Schwartz to announce new legislation; call for patient access to IVIG

WASHINGTON, April 22 /PRNewswire-USNewswire/ -- Members of Congress and patient advocacy groups announced today the introduction of new legislation - H.R. 2002, Medicare Patient IVIG Access Act of 2009 - meant to remedy inadequate Medicare reimbursements that currently restrict patient access to Intravenous Immune Globulin (IVIG), a life-saving and life-enhancing therapy for many primary immunodeficiency diseases; chronic lymphocytic leukemia; Kawasaki disease; autoimmune and neurological conditions such as chronic inflammatory demyelinating polyneuropathy, Guillain-Barre syndrome, idiopathic thrombocytopenic purpura, myasthenia gravis, myositis, multiple sclerosis, just to name a few.

Sponsored by Reps. Israel, Brady and Schwartz, this bill is similar to legislation introduced by Sens. Kerry and Alexander in March of this year. Passage of this legislation would benefit Americans nationwide for whom IVIG is a necessary therapy to help them live with their primary immunodeficiency disease, neurological, autoimmune or other rare chronic conditions and illnesses.

"For those suffering with immune-deficiency disorders, IVIG is a life-saving and life-sustaining treatment. But because of inadequate Medicare coverage, patients are suffering," said Rep. Steve Israel. "We must fix the insufficient coverage Medicare provides for IVIG treatment, which is why I'm sponsoring legislation to help get these patients the care they need."

"Access for those who rely on IVIG therapy to sustain a normal life is an issue that must be addressed, and we are doing so by introducing this bill," said Rep. Kevin Brady. "Through my work with patients and families living with conditions that rely on IVIG, the access issue has become very close to me personally and a cookie-cutter approach like Medicare can be dangerous to this unique treatment."

Eighteen patient advocacy groups and health care professional organizations, including the Immune Deficiency Foundation and the Alliance for Plasma Therapies, already have endorsed the bill via a joint letter of support, and IVIG patients and caretakers echoed that support while sharing their personal struggles in trying to access IVIG therapy during a briefing for stakeholders today. Special guests and patient advocates included Terri Cerda, who, together with her two young daughters, battles combined immunodeficiency disease and whose family will be featured on the May 10 episode of ABC's "Extreme Makeover: Home Edition," and Nebraska State Senator Abbie Cornett, who has common variable immunodeficiency disease. Other speakers included Jenny Gardner, a patient with common variable immunodeficiency; Lt. Col. Eugene B. Richardson, ret., who has progressive chronic polyneuropathy; and Craig Orfield, staff of Senator Enzi who has idiopathic thrombocytopenic purpura.

"Since 2005, patient access to IVIG has diminished, and Medicare beneficiaries throughout the country have experienced major health problems because of reimbursement reductions," said Marcia Boyle, founder and president of the Immune Deficiency Foundation. "We are grateful for the support of Representatives Israel, Brady and Schwartz and their sponsorship of this critical legislation that is designed to restore access to this vital therapy, and we are heartened by the overwhelming support from the patient advocacy community."

"Today is an unprecedented day to see so many different disease groups come together as a unified voice to strongly urge Congress to fix the unintended consequence of the Medicare Modernization Act which has caused Medicare beneficiaries to lose access to their lifesaving plasma therapy, IVIG, and has caused detrimental consequences to their health," said Michelle Vogel, executive director of the Alliance for Plasma Therapies. "We applaud Representatives Israel, Brady and Schwartz for championing this issue to restore patient access to this vital therapy in all sites of care."

About the Immune Deficiency Foundation

The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. To learn more about IDF, visit www.primaryimmune.org

About the Alliance for Plasma Therapies

The Alliance for Plasma Therapies is a national non-profit organization established to provide a unified, powerful voice of patient organizations, healthcare providers and industry leaders to educate about the diseases that rely on plasma derived therapies and advocate for fair access to plasma therapies for patients who benefit from their lifesaving effects. To learn more about the Alliance, visit www.plasmaalliance.org.

Patient Advocacy Organizations and Professional Societies Supporting the Medicare Patient IVIG Access Act of 2009

Immune Deficiency Foundation, Alliance for Plasma Therapies, American Academy of Asthma, Allergy and Immunology, American Autoimmune Related Diseases Association, American Partnership for Eosinophilic Disorders, A-T Children's Project, Clinical Immunology Society, Foundation for Peripheral Neuropathy, GBS/CIDP Foundation International, Infusion Nurses Society, International Pemphigus and Pemphigoid Foundation, Jeffrey Modell Foundation, The Myositis Association, National Patient Advocate Foundation, The Neuropathy Association, Neuropathy Action Foundation, Patient Services Inc., and Platelet Disorder Support Association.


'/>"/>
SOURCE Immune Deficiency Foundation
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Hormone therapy offers potential protective effect against colon cancer in older women
2. Virginia Interventional and Vascular Associates Offers Alternative to Hysterectomy for Uterine Fibroids
3. Video: Adults Facing ADHD: ADHD Allies(TM) Offers Unique Online Community for Adults with ADHD on New Facebook(R) Page
4. Mexicos health insurance success offers lessons for US reforms, Lancet study suggests
5. University of Phoenix Announces March of Dimes Partnership in Florida, Offers Four Full-Tuition Nursing Scholarships
6. Pioneering medical nanotechnology offers new cancer breakthrough hope
7. Deerfield Spa, the Northeasts Most Affordable Destination Spa, Now Offers Day Spa Getaways
8. Summit VetPharm Offers New Flea Topical Vectra for Dogs & Puppies(TM) For Long-Lasting Protection
9. YMCA of Metro Chicago Offers Financial and Stress Relief in Down Economy
10. Adult Well-Being Services Offers Valuable Resources for Caregivers
11. Help for Owners Dealing With the Terrible Loss of a Beloved Pet; Morris Animal Foundation Offers Card Celebrating Pets Life
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/23/2017)... Boulder, CO (PRWEB) , ... February 23, 2017 , ... ... to announce the winner of the 2016 National Education Policy Center Bunkum Award. We ... report reviewed in 2016. , This year’s Bunkum winner is the Center for American ...
(Date:2/23/2017)... ... February 23, 2017 , ... Los Angeles-based weight loss surgeon Michael Feiz, M.D., ... From Not to Hot,” which will begin airing on February 24, 2017. The show ... from the 2012 reality television series, “Here Comes Honey Boo Boo.” The earlier series ...
(Date:2/23/2017)... ... February 23, 2017 , ... On ... a diverse symposium on “Doping in Sport: How the Culture Might Change,” ... & Hampton LLP. The symposium will be held at Pepperdine University in Malibu, ...
(Date:2/23/2017)... ... February 23, 2017 , ... Current Meditation ... soon begin franchising throughout the U.S. starting this spring. Current Meditation focuses on ... of meditation mainstream. Current Meditation will be the first meditation concept in the ...
(Date:2/23/2017)... ... February 23, 2017 , ... CALNOC, the nation’s first and only ... their upcoming conference – Empowerment, Value and Collaboration – in Seattle, WA on October ... the Virginia Mason Health System in Seattle since 2000. In addition to his role ...
Breaking Medicine News(10 mins):
(Date:2/23/2017)... 23, 2017 Obese people are ... for varicose veins in their body. The rising number ... the adoption of endovenous laser therapy for treatment of ... laser therapy market, published by Future Market Insights, ... and consequences of obesity have collectively factored the growth ...
(Date:2/23/2017)... ... Markets has announced the addition of the "Global Antifungal Drugs Market ... offering. The Global Antifungal Drugs Market is poised to ... reach approximately $12.8 billion by 2025. This industry ... on global as well as regional levels presented in the research scope. ...
(Date:2/23/2017)... 2017 Persistence Market Research ... market for intraoperative imaging, excerpts from which predict ... 513.9 million. According to the report, the demand ... grounds of increasing adoption of minimally-invasive surgeries and ... imaging for neurosurgeries. The world,s leading medical research ...
Breaking Medicine Technology: