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Navigenics Proposes Standards for Personal Genomics Services, Coupled With Prospective Outcomes Studies, to Safeguard Consumers
Date:4/8/2008

ation will never be shared

without the full knowledge and consent of each individual member

10. Measurement - to assess the impact of the service on health outcomes

over time, and member response and experiences with the service in

the near and long term

"The science is advancing at a rapid pace, and that's very exciting not just for researchers, but for all of us who can ultimately benefit from the application of these findings," says Dietrich Stephan, Ph.D., a genetic researcher and co-founder and chief science officer of Navigenics. "But with that advancement comes a serious responsibility to ensure the integrity of this critical step toward personalized health care. We know that if we don't do it right, we could set things back quite a bit - which is why it's important for us and others to be clear about what we will be accountable for."

In addition to developing and adopting proposed standards, the company will be participating in research initiatives aimed at measuring the actual impact of genetic risk information on consumer behavior and related health outcomes over time.

The first such study, announced this week, is a Mayo Clinic study examining how patients understand and utilize information provided by a Navigenics personalized genetic risk assessment. The research also addresses 1) physicians' understanding of predictive genetic risk assessment and 2) the impact of such information on preventive health decision making. Titled "A Proof of Principle Trial of Communication to Patients Receiving Predictive Genetic Risk Assessment," the study begins in April 2008 and runs through September 2009. The study is funded jointly by Navigenics and Mayo Clinic.

About Navigenics

Navigenics, Inc. is a privately held company based in Redwood Shores, Calif. The company was founded by David Agus, M.D. and Dietrich Stephan, Ph.D., with the goal of improving health outcomes in individuals across the po
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SOURCE Navigenics, Inc.
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