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Navigenics Proposes Standards for Personal Genomics Services, Coupled With Prospective Outcomes Studies, to Safeguard Consumers
Date:4/8/2008

y - associated with conditions included in the service, to

ensure that the promise of improved outcomes over time can be met, or

that at a minimum there is valid clinical or scientific information

available to demonstrate an ability to prevent, delay or enhance

treatment options for an included health condition

5. Access to genetic counseling - to ensure that each individual can

speak directly to a counselor, at their convenience, to understand the

implications of their particular profile, and that they can have

access to continued counsel over time as new findings or information

may change or expand their particular genetic predispositions

6. Security and privacy - to ensure that only the individual member has

access to their particular profile, and has complete control over

granting access to others; operating in a manner consistent with HIPAA

regulations; and using the latest measures to protect and safeguard

all member data, at a level at least consistent with what leading

financial institutions use

7. Ownership of genetic information - to acknowledge each member's right

to access their own genetic information and record

8. Physician education and engagement - to sponsor and ensure physician

access to relevant genomics-focused continuing medical education; to

incorporate specific tools into the service that enable physicians

direct access to general information on latest advancements in

genomics; and to enable members to share specific, personal genetic

information with health professionals in a productive way, should they

choose to do so

9. Transparency - regarding relative applicability, limitations and

specificity of genetic risk information, as well as assuring that

personal or aggregated genetic inform
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SOURCE Navigenics, Inc.
Copyright©2008 PR Newswire.
All rights reserved

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