Navigation Links
National Organization for Rare Disorders To Partner With Discovery Health and 'MYSTERY DIAGNOSIS' for Rare Disease Day 2009
Date:2/9/2009

known to medicine --- and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

ABOUT NORD:

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

ABOUT MYSTERY DIAGNOSIS:

MYSTERY DIAGNOSIS is produced for Discovery Health by Tru
'/>"/>

SOURCE Discovery Health
Copyright©2009 PR Newswire.
All rights reserved

Page: 1 2 3

Related medicine news :

1. International study strengthens case for daily calcium pill
2. Yakima Health Care Leader Tapped for Leadership Post at National Association
3. Virginia Tech Report Has National Importance
4. Donate Life America Dispels Myths About Organ & Tissue Donation Among Hispanics During National Hispanic Heritage Month
5. Us TOO Launches National SEA Blue Campaign for Prostate Cancer Awareness Month
6. Mettler-Toledo International Inc. Announces Webcast of Presentation at Thomas Weisel Partners 2007 Healthcare Conference
7. National Association of Subrogation Professionals (NASP), the Largest Insurance Subrogation Association in the World - Announced Today that Leslie Wiernik has Joined the Organization as Director of Education
8. 4-Star Gen. Barry McCaffrey, Former U.S. Drug Czar, to Address National Drug Crisis, Keynote Grand Opening of New Allenwood, PA National Model Detox Center
9. Australian-led international study shows blood pressure drugs cut death rate in type 2 diabetes
10. LCA Hails International Investigators Studying Lung Cancer
11. National Patient Safety Foundation Partners with Vocera Communications
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/22/2015)... LunaDress, with its top dressmaking technologies, has been a ... is showing its latest designs of wedding dresses and launching ... company’s CEO, all the fresh new products are designed for ... to 80% off. All the clothes from LunaDress follow up ...
(Date:1/22/2015)... Padre Murphy's and Owner Tom Boyle in Glendale, AZ ... Alliance (PPHA). The PPHA's passion for others' well-being and ... greats, treated for obstructive sleep apnea (OSA) has propelled them ... in the valley. The most recent plans for an event ...
(Date:1/22/2015)... Blue Cross and Blue Shield of Minnesota (Blue ... means to “Live Fearless.” , The “Faces of ... stories about how they or someone they know has faced ... in the moment. By telling these types of stories through ...
(Date:1/22/2015)... A new white paper by The ... in the long-term care environment as well as provides ... The paper, “The Power of Person-Centeredness in Long-Term Care: ... of the patient, resident and family experience in long-term ...
(Date:1/22/2015)... Carinsurancesavings.biz has released a new blog post presenting the ... , Purchasing an accidental death and dismemberment rider for ... of rider provides benefits if the insured dies in an ... form of life insurance. , AD&D is not expensive ...
Breaking Medicine News(10 mins):Health News:LunaDress Shows The Latest Styles Of Wedding Dresses In 2015 2Health News:Padre Murphy's Holds NFL Retired Players Association Party Star Studded Event With Bud Light and Pro Player Health Alliance Sponsoring 2Health News:Padre Murphy's Holds NFL Retired Players Association Party Star Studded Event With Bud Light and Pro Player Health Alliance Sponsoring 3Health News:Blue Cross and Blue Shield of Minnesota to Showcase “Faces of Fearless” 2Health News:The Power of Person-Centeredness in Long-Term Care Explored by The Beryl Institute 2Health News:The Power of Person-Centeredness in Long-Term Care Explored by The Beryl Institute 3Health News:Accidental Death and Dismemberment Insurance Can Be Purchased at Low Prices Online 2
... that nearly 55 percent of Americans, mostly women, are ... and brittle bones// that causes higher susceptibility to bone ... found to contribute to lower bone mineral density in ... PhD, director of the Epidemiology and Dietary Assessment Program ...
... ENBRELR (etanercept) safe to be used to treat psoriasis up ... result of the current studies were presented at the 15th ... a 'Biologic Medicine which means it is synthesized using recombinant ... of biotechnology. , , ,This biologic medicine acts ...
... for their future good health, says a new study//.John Reilly ... nurseries in Glasgow. ,The researchers monitored the children ... minutes, three times a week, reported the online edition of ... to affect the children's body mass index (BMI), the researchers ...
... The mosquito-borne dengue disease continued to take its toll across ... 3,000 suffering// from it even as the government maintained the ... Anbumani Ramadoss said: "The situation is not that of an ... will see a decreasing trend in the next two-three days. ...
... their cholesterol levels down for decades, ever since studies showed ... in recent years, experts have suggested that some people should ... type of cholesterol called low-density lipoprotein for some high-risk people ... medications to get there. ,Not so fast, says a ...
... stumbled upon some very interesting results following her study ... genetic characteristics of alcoholics, which ultimately determine which drugs ... drink. ,The urge to consume alcoholic drinks can ... investigations done by the researcher highlights which characteristics of ...
Cached Medicine News:Health News:Consumption of Colas Increase Risk of Osteoporosis in Older Women 2Health News:Consumption of Colas Increase Risk of Osteoporosis in Older Women 3Health News:Enbrelr Enters Safer Zone After Recent Research 2Health News:India registers 3,000 dengue patients, toll crosses 40 2Health News:India registers 3,000 dengue patients, toll crosses 40 3Health News:India registers 3,000 dengue patients, toll crosses 40 4Health News:No Clear Evidence for Ultra-Low Cholesterol Targets? 2Health News:No Clear Evidence for Ultra-Low Cholesterol Targets? 3Health News:No Clear Evidence for Ultra-Low Cholesterol Targets? 4
(Date:1/23/2015)... Jan. 23, 2015 Tianyin Pharmaceutical Inc. (NYSE Amex: ... in the development and sale of patented biopharmaceutical medicine, ... pharmaceutical ingredients (API) today announced the business and development ... 1. Following the September 2014 JCM application ...
(Date:1/22/2015)... BOULDER, Colo. , Jan. 22, 2015  BiOptix is ... Klakamp as Vice President of Chemistry and Biochemistry. Scott ... Takeda Pharmaceuticals, AstraZeneca Pharmaceuticals, and Amgen throughout the course ... and development. "Scott is a nationally recognized ...
(Date:1/22/2015)... RMD ) today announced results for its quarter ... million, a 10 percent increase compared to the quarter ended ... currency basis). Net income was $91.2 million, an increase of ... Diluted earnings per share for the quarter were $0.64, an ...
Breaking Medicine Technology:TPI's JCM Updates on Import Registration for International Clients 2TPI's JCM Updates on Import Registration for International Clients 3TPI's JCM Updates on Import Registration for International Clients 4BiOptix Expands Leadership Team with the Appointment of Dr. Scott Klakamp as Vice President of Chemistry and Biochemistry 2ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 2ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 3ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 4ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 5ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 6ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 7ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 8ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 9ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 10ResMed Inc. Announces Results for the Second Quarter of Fiscal Year 2015 11
... NEW YORK, Nov. 18, 2010 Reportlinker.com announces ... in its catalogue: TOP 10 ... FORECASTS http://www.reportlinker.com/p0330501/TOP-10-DRUG-DISCOVERY-TECHNOLOGIES-–-STRATEGIC-ANALYSIS-AND-GLOBAL-FORECASTS.html ... analysis and global forecasts (2010 to 2015) ...
... Reportlinker.com announces that a new market research ... Global HPLC Systems & Accessories Industry ... report analyzes the worldwide markets for HPLC Systems ... Product Segments: HPLC Pumps, HPLC Sample Injectors, HPLC ...
Cached Medicine Technology:Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 2Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 3Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 4Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 5Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 6Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 7Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 8Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 9Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 10Reportlinker Adds TOP 10 DRUG DISCOVERY TECHNOLOGIES - STRATEGIC ANALYSIS AND GLOBAL FORECASTS 11Reportlinker Adds Global HPLC Systems & Accessories Industry 2Reportlinker Adds Global HPLC Systems & Accessories Industry 3Reportlinker Adds Global HPLC Systems & Accessories Industry 4Reportlinker Adds Global HPLC Systems & Accessories Industry 5Reportlinker Adds Global HPLC Systems & Accessories Industry 6Reportlinker Adds Global HPLC Systems & Accessories Industry 7Reportlinker Adds Global HPLC Systems & Accessories Industry 8Reportlinker Adds Global HPLC Systems & Accessories Industry 9Reportlinker Adds Global HPLC Systems & Accessories Industry 10Reportlinker Adds Global HPLC Systems & Accessories Industry 11Reportlinker Adds Global HPLC Systems & Accessories Industry 12Reportlinker Adds Global HPLC Systems & Accessories Industry 13Reportlinker Adds Global HPLC Systems & Accessories Industry 14Reportlinker Adds Global HPLC Systems & Accessories Industry 15Reportlinker Adds Global HPLC Systems & Accessories Industry 16Reportlinker Adds Global HPLC Systems & Accessories Industry 17Reportlinker Adds Global HPLC Systems & Accessories Industry 18Reportlinker Adds Global HPLC Systems & Accessories Industry 19
Prolactin EIA Reproductive Markers 025-BC-1037...
FSH EIA Reproductive Markers 025-BC-1029 Follicle Stimulating Hormone...
... is a C21 steroid hormone containing a ... C-4 and C-5 (?4).,This steroid hormone is ... with estrogens, regulates,the accessory organs during the ... in preparing the,endometrium for the implantation of ...
... Converting Enzyme (ACE), also known as Kininase ... with a molecular weight of at least ... a single polypeptide chain, a polysaccharide residue ... in many different cell types such as ...
Medicine Products: