Navigation Links
National Organization for Rare Disorders To Partner With Discovery Health and 'MYSTERY DIAGNOSIS' for Rare Disease Day 2009
Date:2/9/2009

- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 -

- MYSTERY DIAGNOSIS Airs Mondays at 10PM ET/PT on Discovery Health -

DANBURY, Conn., Feb. 9 /PRNewswire/ -- The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions
'/>"/>

SOURCE Discovery Health
Copyright©2009 PR Newswire.
All rights reserved

Page: 1 2 3

Related medicine news :

1. International study strengthens case for daily calcium pill
2. Yakima Health Care Leader Tapped for Leadership Post at National Association
3. Virginia Tech Report Has National Importance
4. Donate Life America Dispels Myths About Organ & Tissue Donation Among Hispanics During National Hispanic Heritage Month
5. Us TOO Launches National SEA Blue Campaign for Prostate Cancer Awareness Month
6. Mettler-Toledo International Inc. Announces Webcast of Presentation at Thomas Weisel Partners 2007 Healthcare Conference
7. National Association of Subrogation Professionals (NASP), the Largest Insurance Subrogation Association in the World - Announced Today that Leslie Wiernik has Joined the Organization as Director of Education
8. 4-Star Gen. Barry McCaffrey, Former U.S. Drug Czar, to Address National Drug Crisis, Keynote Grand Opening of New Allenwood, PA National Model Detox Center
9. Australian-led international study shows blood pressure drugs cut death rate in type 2 diabetes
10. LCA Hails International Investigators Studying Lung Cancer
11. National Patient Safety Foundation Partners with Vocera Communications
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:7/3/2015)... ... July 03, 2015 , ... ... 2015 Annual Conference , the premiere continuing education and networking event ... at SeaWorld in Orlando, Florida. Speakers include the leading rheumatology experts in ...
(Date:7/3/2015)... ... ... rhinoplasty surgeon and Symposium Chairman, Dr. Rod J. Rohrich , has ... from March 4th - 6th, the 2016 (a previous announcement had stated the dates ... take participants from the basic training and fundamentals of nasal surgery through the most ...
(Date:7/3/2015)... ... July 03, 2015 , ... ... healthcare providers, has been retained to lead a national chief nursing officer ... top-ranked executive search firms in the healthcare industry, B. E. Smith has recently ...
(Date:7/3/2015)... ... , ... Smoothies are all the rage right now and all you need ... Aurora Natural is proud to introduce a new line of all natural products that ... and minerals! , Aurora is offering a variety of blends and stand-alone items to ...
(Date:7/3/2015)... Lewisville, TX (PRWEB) , ... July 03, 2015 , ... ... said First Choice Emergency Room , the largest network of independent freestanding emergency ... the new facility medical director of our Sienna Plantation facility,” said Executive Medical Director ...
Breaking Medicine News(10 mins):Health News:RNS Announces Sessions and Speaker Lineup for the 2015 Annual Conference of the Rheumatology Nurses Society 2Health News:RNS Announces Sessions and Speaker Lineup for the 2015 Annual Conference of the Rheumatology Nurses Society 3Health News:Dr. Rod J. Rohrich Announces the Dates for 2016 Dallas Rhinoplasty Symposium 2Health News:Dr. Rod J. Rohrich Announces the Dates for 2016 Dallas Rhinoplasty Symposium 3Health News:Jane Phillips Medical Center Retains B. E. Smith to Recruit New Chief Nursing Officer 2Health News:Jane Phillips Medical Center Retains B. E. Smith to Recruit New Chief Nursing Officer 3Health News:Aurora Product, Inc. Announces An Original New Line: Smoothie Fixins’ 2Health News:Dr. Jennifer Renee Hanes Named by First Choice Emergency Room as Medical Director of Missouri City, TX Facility 2Health News:Dr. Jennifer Renee Hanes Named by First Choice Emergency Room as Medical Director of Missouri City, TX Facility 3
... of LDL-cholesterol by almost ten per cent, says a ... this could offer the possibility of formulating an additional ... to be seen since the reductions were not as ... the ingredients. ,High cholesterol levels, hypercholesterolaemia, ...
... are calling on the Federal Government to fund a new ... ,Rotavirus puts 10,000 Australian children in hospital each year, ... at doctors' surgeries with symptoms of acute diarrhoea and vomiting. ... aged six to 32 weeks, is only available by private ...
... Champaign-Urbana have found that people employed in chimpanzee-focused research ... exchanging gastrointestinal bacteria – specifically Escherichia coli – with ... strains migrating to chimps are resistant to antibiotics used ... found bacterial exchanges between humans and non-human primates – ...
... the Journal of Clinical Oncology reveals there may be ... patients// with recurrent prostate cancer. ,This something ... scientists at Cedars-Sinai Medical Center in Los Angeles say ... cancer patients with no previous chemotherapy treatment. ...
... health units is well below the real number of infections, ... in Maputo, at the opening of a national meeting on ... detect about 50 per cent of people suffering from tuberculosis". ... were notified, which was an increase of five per cent ...
... chances of colorectal cancers getting missed out in patients ... than a gastroenterologist// or a surgeon. This was disclosed ... Canadian researchers. ,This study was conducted on ... Western Ontario along with her team. According to this ...
Cached Medicine News:Health News:Combined Ingredients may Cut Cholesterol Levels 2Health News:Combined Ingredients may Cut Cholesterol Levels 3Health News:Call for Rotavirus Vaccine Funding 2Health News:E. Coli Bacteria Migrating Between Humans, Chimps 2Health News:E. Coli Bacteria Migrating Between Humans, Chimps 3Health News:Mozambique: Half of Tuberculosis Cases Go Undiagnosed 2Health News:Mozambique: Half of Tuberculosis Cases Go Undiagnosed 3
(Date:7/3/2015)... -- A global continuing medical education provider ... disorders in Latin America through ... to these diseases.      (Logo: http://photos.prnewswire.com/prnh/20150630/227033) , ... Hypertension Online and Manage Thyroid Online ... - combine the world,s top expertise with dynamic learning ...
(Date:7/2/2015)... , Chine, 3 juillet 2015 BGI ... à haut débit de l,ADN situé à ... certification de  l,American College of Pathologists  (Collège des ... à Hong Kong constituent ... génération à recevoir la certification du CAP en ...
(Date:7/2/2015)... 2015  Fort Lauderdale-based investment banking firm, Farlie ... its Consumer Group completed the sale of Insight ... (ISE: KRZ) ("Kerry"), one of the leading global ... well as functional ingredients and actives for the ... served as the exclusive financial advisor to the ...
Breaking Medicine Technology:Combating Three Major Chronic Diseases in Latin America With Medical Education 2BGI obtient la certification du Collège des pathologistes américains (CAP) 2Farlie Turner's Consumer Group Completes Sale of Insight Beverages to Kerry 2
... The final results of the Spare the,Nephron ... novel,kidney-sparing treatment protocol using CellCept(R) (mycophenolate,mofetil), showed ... is associated with improved renal function when ... calcineurin inhibitors (CNI)., Furthermore, the study ...
... American Society of Clinical ... Oncology Annual Meeting, PRINCETON, N.J., ... long-term follow-up and overall,survival (OS) results from a Phase 2 clinical ... where 11.4%, or 4 of,35 patients, were still alive at or ...
Cached Medicine Technology:Final Results of the CellCept(R) Spare the Nephron (STN) Study Show Maintenance Therapy is Associated with Improved Renal Function 2Final Results of the CellCept(R) Spare the Nephron (STN) Study Show Maintenance Therapy is Associated with Improved Renal Function 3Final Results of the CellCept(R) Spare the Nephron (STN) Study Show Maintenance Therapy is Associated with Improved Renal Function 4Final Results of the CellCept(R) Spare the Nephron (STN) Study Show Maintenance Therapy is Associated with Improved Renal Function 5Ipilimumab Plus Chemotherapy is Associated with Prolonged Survival and Increased Disease Control Rates in Patients with Advanced Melanoma 2Ipilimumab Plus Chemotherapy is Associated with Prolonged Survival and Increased Disease Control Rates in Patients with Advanced Melanoma 3Ipilimumab Plus Chemotherapy is Associated with Prolonged Survival and Increased Disease Control Rates in Patients with Advanced Melanoma 4
... ARUP Laboratories is a national reference ... laboratory research and development. ARUP offers an ... unique medical tests in clinical and anatomic ... ARUP Laboratories' clients include more than half ...
... ARUP Laboratories is a national reference ... laboratory research and development. ARUP offers an ... unique medical tests in clinical and anatomic ... ARUP Laboratories' clients include more than half ...
... national reference laboratory and a worldwide leader ... offers an extensive test menu of highly ... and anatomic pathology. Owned by the University ... than half of the nation's university teaching ...
... a national reference laboratory and a worldwide ... ARUP offers an extensive test menu of ... clinical and anatomic pathology. Owned by the ... more than half of the nation's university ...
Medicine Products: