Navigation Links
NYSE Closing Bell Rings to Honor Millions with Neuropathy and Neuropathic Pain
Date:8/13/2013

New York, N.Y. (PRWEB) August 13, 2013

Neuropathy patients and their loved ones joined The Neuropathy Association on August 12, 2013 to visit the New York Stock Exchange (NYSE) to raise awareness of the growing neuropathy epidemic.

18 year-old Michael Rothman, a patient with neuropathy, rang the Closing Bell on behalf of the over 20 million people living in the U.S. with neuropathy and neuropathic pain. Michael was joined by patient advocates and volunteers, Neuropathy Association leadership and staff, as well as family, friends, caregivers, and healthcare professionals representing others in the neuropathy community. Present were:

  •     Michael Walter – a patient advocate with diabetes and an autoimmune neuropathy as well as a support group leader;
  •     Michael Rothman – a patient advocate with CIDP (chronic inflammatory demyelinating polyneuropathy);
  •     Rachel Rothman – Michael Rothman’s sister;
  •     Howard Rothman – Michael Rothman’s father;
  •     Angela Macropoulos – a caregiver for a family member with neuropathy;
  •     Howard Sander, M.D. – a member of The Neuropathy Association’s Medical Advisory Committee;
  •     Maria Cooper Janis – an advocate and volunteer (and daughter of film legend Gary Cooper);
  •     Michelle Cassuto – a volunteer;
  •     Jonathan Bergman – a volunteer;
  •     Julie Vallely – a volunteer;
  •     Tina Tockarshewsky – President and CEO, The Neuropathy Association;
  •     Natacha Pires – Director of medical and public affairs, The Neuropathy Association; and,
  •     Paul Guidos – Director of operations, The Neuropathy Association.

“Raising neuropathy awareness is important to me,” shared Michael Rothman. “It is very frustrating to explain my disease to everyone I speak with, and I know other patients with chronic inflammatory demyelinating polyneuropathy (or CIDP, an autoimmune form of neuropathy) – and neuropathy in general – feel the same.”

Neuropathy, or “peripheral nerve damage,” impacts at least 1 in 15 adults and children in the U.S., making it one of the most common chronic diseases and a leading cause of adult disability. Neuropathy disrupts the body’s ability to communicate with its muscles, organs, and tissues. Symptoms can include numbness, tingling, weakness, and pain often beginning in the hands and feet. With early diagnosis, it can often be controlled and quality of life restored. If ignored, symptoms can intensify to loss of sensation, weakness, unremitting pain, and/or disability.

Of the over 100 known types of neuropathy, diabetic neuropathy represents over a third of all neuropathies, making diabetes the leading cause. A third of neuropathies are “idiopathic” (unknown cause). Other neuropathies include autoimmune-related, hereditary, cancer or chemotherapy-related, entrapment or trauma-related, and neuropathies related to causes such as toxin-induced, nutritional deficiencies, gastro-intestinal disorders, metabolic diseases, or infectious diseases (including Lyme and HIV/AIDS).

“Neuropathy crosses all borders, cultures, and ages… and its prevalence is growing at an alarming rate in the U.S. and abroad,” noted Tina Tockarshewsky, president and CEO of The Neuropathy Association. “This is truly a historic day for our community. Ringing the Closing Bell rings in a new level of awareness for a severely under-recognized epidemic. However, it should also sound an alarm that we can no longer disregard neuropathy’s devastation on people’s health and quality of life as well as the economic toll it is taking. We must do more to bring help, improved care, treatments, and cures to the millions suffering with this progressive and potentially debilitating illness for which there are no cures.”

About The Neuropathy Association

Founded in 1995, The Neuropathy Association is the leading national nonprofit organization providing neuropathy patient support, education, advocacy, and the promotion of research into the causes of and cures for peripheral neuropathies through its nationwide network of members, regional chapters, 15 medical Centers of Excellence, and 150 patient support groups. To learn more, visit http://www.neuropathy.org.

Read the full story at http://www.prweb.com/releases/2013/8/prweb11021075.htm.


'/>"/>
Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Related medicine news :

1. Cancer in African Americans: Gap closing for some sites; Widening for others
2. Da Vinci Surgery Robot Lawsuit News: Bernstein Liebhard LLP Comments on Closing Arguments in Nation’s First Da Vinci Lawsuit Trial
3. Da Vinci Robotic Surgery Lawsuit: Parker Waichman LLP Reacts to Plaintiff’s Attorney’s Closing Argument in Which He Describes Intuitive Surgical as a Car Dealership
4. This Able Veteran ‘Closing the Gap’ with its Standards-Setting PTSD Service Dog Trauma Recovery Program
5. Hypertrophy Max Program by Vince Del Monte and Ben Pakulski is Closing in 24 Hours
6. Toxic mercury, accumulating in the Arctic, springs from a hidden source
7. Data release from the Allen Institute for Brain Science expands online atlas offerings
8. Finding brings scientists 1 step closer to Parkinsons drug
9. McDivitt Law Firm Opens Office to Fellow Attorneys Affected by Colorado Springs Wildfires
10. Breakthrough Brings Transparency to Male/Female Relationships
11. Test-Med Joins Forces with Mollen to Expand its Service Offerings to its Customers
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/5/2016)... ... December 05, 2016 , ... "FCPX Overlay Glare is ... natural lighting effect without heavy rendering or complicated compositing," said Christina Austin - CEO ... to create an organic spectrum of lights that simulates the look of a glare. ...
(Date:12/5/2016)... ... December 05, 2016 , ... The ... care facility – Avamere Transitional Care of Puget Sound ; located at ... health care center will provide patients recovering from illness or injury with intensive ...
(Date:12/5/2016)... VA (PRWEB) , ... December 05, 2016 , ... ... today announced it has been featured in SuperbCrew magazine, a leading online tech ... tech world. This interview, now featured on SuperbCrew.com, explores the state of enterprise ...
(Date:12/5/2016)... ... ... Researchers at Johns Hopkins All Children’s Hospital want to learn more about ... of three years, researchers will study concussions and changes in brain function by monitoring ... sensors, will track the location and force of the hit. The sensors store data ...
(Date:12/5/2016)... ... December 05, 2016 , ... “Epilepsy ... through tomorrow, December 6th, sparks a conversation about epilepsy, bearing down on the ... 26 people will be diagnosed with epilepsy within their lifetime. With such a ...
Breaking Medicine News(10 mins):
(Date:12/5/2016)... -- Sanovas, Inc., a life science asset holding ... its wholly owned subsidiary, Intubation Science, Inc., and its LightSpeed ... - http://photos.prnewswire.com/prnh/20161202/445251LOGO   ... Sanovas, Inc. ... There are over 40 million Endotracheal Intubations performed ...
(Date:12/5/2016)... 2016  CVS Health, the nation,s largest pharmacy innovation ... score of 100 percent on the Corporate Equality Index ... an annual national benchmarking survey and report on corporate ... the Human Rights Campaign Foundation. "Our ... colleagues, customers and suppliers bring to CVS Health," said ...
(Date:12/5/2016)... PARSIPPANY, N.J. , Dec. 5, 2016 /PRNewswire/ ... announced preliminary safety and efficacy data from a ... selective MDM2 inhibitor, suggesting that DS-3032 may be ... acute myeloid leukemia (AML) and high-risk myelodysplastic syndrome ... of the phase 1 study of DS-3032 were presented ...
Breaking Medicine Technology: