Navigation Links
NORD Letter to Senate Urges Action on Health Care Reform

WASHINGTON, Nov. 19 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) sent the following letter today to all members of the Senate:

Dear Majority Leader Reid:

On behalf of the 150 member organizations of the National Organization for Rare Disorders (NORD) representing nearly 30 million patients and families afflicted with one of the 7,000 known rare diseases, we are writing to convey our strong support for passage of the Patient Protection and Affordable Care Act. While this legislation has shortcomings and we will work to improve it before the President signs it into law, it is critically imperative the Senate votes to allow debate, to close debate, and to pass the Patient Protection and Affordable Care Act before the end of the year.

NORD members can no longer tolerate further delay in the passage and enactment of comprehensive health reform legislation. Our members are disproportionately burdened by the countless shortcomings of our health care system. They face untenable insurance access barriers through:

  • Ongoing and unacceptable pre-existing condition exclusions and medical underwriting practices;
  • Costly annual and lifetime caps;
  • The absence of a federal guarantee issue requirement, and;
  • Little to no direct financial assistance for those Americans who cannot afford insurance.

The Patient Protection and Affordable Care Act directly and helpfully addresses each one of these harmful shortcomings plaguing our nation's health care system. With this in mind, we strongly believe that failure to act represents an explicit policy choice with severely negative consequences for our members and for all Americans. In short, health care reform delayed is health care access denied. As such, on behalf of all of our members, we urge you and all Members to promptly pass the Patient Protection and Affordable Care Act.

Thank you for the leadership that you, Chairmen Max Baucus, Christopher Dodd and Tom Harkin, as well as countless other Senators, have shown throughout this historical debate. We look forward to continuing our work with you and all Members on both sides of the aisle to finally achieve the long overdue business of ensuring affordable, quality coverage for all Americans.


Peter L. Saltonstall

President and CEO

Senator Max Baucus, Chairman, Senate Finance Committee

Senator Tom Harkin, Chairman, Senate Health, Educator, Labor and Pensions Committee

Senator Christopher Dodd, Chairman, Senate Banking, Housing and Urban Affairs

SOURCE National Organization for Rare Disorders (NORD)

SOURCE National Organization for Rare Disorders (NORD)
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Throw a Yellow Flag on Football-related Head Injuries, Warns the Harvard Mental Health Letter
2. November 2009 Mayo Clinic Health Letter Highlights Self-Care Tips for Hemorrhoids, Interactive Video Games Improve Health and Heart Failure Treatments
3. Americans United for Life Action Endorses a Vote for the Stupak-Ellsworth-Pitts-Kaptur-Dahlkemper-Lipinski-Smith Amendment and Sends Score Letter to House Members
4. Concord Coalition Leaders Send Letter to Senator Reid on Healthcare Reform Bill
5. The latest on H1N1 flu from the Harvard Health Letter
6. Letter Warns About Tricky Dosing With Liquid Tamiflu for Kids
7. Open Letter to Congress on Long Term Care Insurance and Health Care Reform
8. Cambridge Healthtech Institute and Bio-IT World Launch a New eNewsletter: Pharma Services News
9. Sanofi-Aventis Receives Complete Response Letter from the FDA for Eplivanserin (Ciltyri(R)) Submission
10. Nyer Medical Group, Inc., Nasdaq Notification Letter
11. InfoLogix Receives Nasdaq Deficiency Letter
Post Your Comments:
(Date:6/26/2016)... ... June 26, 2016 , ... Pixel Film Studios Released ProSlice ... "Film editors can give their videos a whole new perspective by using the ... of Pixel Film Studios. , ProSlice Levels contains over 30 Different presets to ...
(Date:6/26/2016)... Birmingham, Lake Orion, Clarkston, Michigan (PRWEB) , ... ... ... their direction with respect to fertility once they have been diagnosed with endometriosis. ... for tolerable intercourse but they also require a comprehensive approach that can help ...
(Date:6/25/2016)... Miami, FL (PRWEB) , ... June 25, 2016 , ... The temporary closing of Bruton ... Plant City Observer , brings up a new, often overlooked aspect of head lice: ... The closing for fumigation is not a common occurrence, but a necessary one in the ...
(Date:6/25/2016)... Beach, CA (PRWEB) , ... June 25, 2016 , ... ... UCLA with Magna Cum Laude and his M.D from the David Geffen School of ... Diego and returned to Los Angeles to complete his fellowship in hematology/oncology at the ...
(Date:6/25/2016)... ... 25, 2016 , ... Conventional wisdom preaches the benefits of moderation, whether it’s ... setting the bar too high can result in disappointment, perhaps even self-loathing. However, those ... goal. , Research from reveals that behind the tendency to ...
Breaking Medicine News(10 mins):
(Date:6/26/2016)... Story Highlights: ... the health care industry is causing providers to review ... Deloitte offers a suite of solutions for health care ... cost optimization: labor resource analysis, revenue cycle optimization and ... outcomes and better economics ...
(Date:6/24/2016)... June 24, 2016  Collagen Matrix, Inc., ("Collagen ... and manufacturing of collagen and mineral based medical ... that Bill Messer has joined the ... further leverage the growing portfolio of oral surgery, ... Bill joins the Collagen Matrix executive team ...
(Date:6/24/2016)...   Bay Area Lyme Foundation , collaborating ... for Tick Borne Illness , Harvard Medical School ... Medicine, University of California, Berkeley, and the Veterans ... finalists of Lyme Innovation , the first ... scientists, clinicians, researchers, entrepreneurs, and investors from several ...
Breaking Medicine Technology: