Navigation Links
NORD Letter to Senate Urges Action on Health Care Reform
Date:11/19/2009

WASHINGTON, Nov. 19 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) sent the following letter today to all members of the Senate:

Dear Majority Leader Reid:

On behalf of the 150 member organizations of the National Organization for Rare Disorders (NORD) representing nearly 30 million patients and families afflicted with one of the 7,000 known rare diseases, we are writing to convey our strong support for passage of the Patient Protection and Affordable Care Act. While this legislation has shortcomings and we will work to improve it before the President signs it into law, it is critically imperative the Senate votes to allow debate, to close debate, and to pass the Patient Protection and Affordable Care Act before the end of the year.

NORD members can no longer tolerate further delay in the passage and enactment of comprehensive health reform legislation. Our members are disproportionately burdened by the countless shortcomings of our health care system. They face untenable insurance access barriers through:

  • Ongoing and unacceptable pre-existing condition exclusions and medical underwriting practices;
  • Costly annual and lifetime caps;
  • The absence of a federal guarantee issue requirement, and;
  • Little to no direct financial assistance for those Americans who cannot afford insurance.

The Patient Protection and Affordable Care Act directly and helpfully addresses each one of these harmful shortcomings plaguing our nation's health care system. With this in mind, we strongly believe that failure to act represents an explicit policy choice with severely negative consequences for our members and for all Americans. In short, health care reform delayed is health care access denied. As such, on behalf of all of our members, we urge you and all Members to promptly pass the Patient Protection and Affordable Care Act.

Thank you for the leadership that you, Chairmen Max Baucus, Christopher Dodd and Tom Harkin, as well as countless other Senators, have shown throughout this historical debate. We look forward to continuing our work with you and all Members on both sides of the aisle to finally achieve the long overdue business of ensuring affordable, quality coverage for all Americans.

Sincerely,

Peter L. Saltonstall

President and CEO

Senator Max Baucus, Chairman, Senate Finance Committee

Senator Tom Harkin, Chairman, Senate Health, Educator, Labor and Pensions Committee

Senator Christopher Dodd, Chairman, Senate Banking, Housing and Urban Affairs

SOURCE National Organization for Rare Disorders (NORD)


'/>"/>
SOURCE National Organization for Rare Disorders (NORD)
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Throw a Yellow Flag on Football-related Head Injuries, Warns the Harvard Mental Health Letter
2. November 2009 Mayo Clinic Health Letter Highlights Self-Care Tips for Hemorrhoids, Interactive Video Games Improve Health and Heart Failure Treatments
3. Americans United for Life Action Endorses a Vote for the Stupak-Ellsworth-Pitts-Kaptur-Dahlkemper-Lipinski-Smith Amendment and Sends Score Letter to House Members
4. Concord Coalition Leaders Send Letter to Senator Reid on Healthcare Reform Bill
5. The latest on H1N1 flu from the Harvard Health Letter
6. Letter Warns About Tricky Dosing With Liquid Tamiflu for Kids
7. Open Letter to Congress on Long Term Care Insurance and Health Care Reform
8. Cambridge Healthtech Institute and Bio-IT World Launch a New eNewsletter: Pharma Services News
9. Sanofi-Aventis Receives Complete Response Letter from the FDA for Eplivanserin (Ciltyri(R)) Submission
10. Nyer Medical Group, Inc., Nasdaq Notification Letter
11. InfoLogix Receives Nasdaq Deficiency Letter
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... Vegas, Nevada (PRWEB) , ... October 13, 2017 , ... ... 7® Hemp CBD Oil utilizing Purzorb™ technology. Applying the Purzorb™process to full spectrum CBD ... dose required and providing a CBD form that can be easily incorporated into liquid ...
(Date:10/13/2017)... Shelton, CT (PRWEB) , ... October 13, 2017 , ... ... and long-term care services, staged a mock evacuation of the facility as part of ... Department, Shelton Fire Department, Echo Hose EMS and Shelton City Emergency Manager, as well ...
(Date:10/13/2017)... ... October 13, 2017 , ... Ellevate Network, the leading network for ... for action towards gender equality at their inaugural Summit in New York City in ... reached a social audience of over 3 million. To watch the Mobilize Women video, ...
(Date:10/13/2017)... ... October 13, 2017 , ... Talented ... the lowdown on sciatica in a new episode of "Success Files," which is ... events and innovation and investigates each subject in-depth with passion and integrity. , ...
(Date:10/13/2017)... ... ... On The Brink”: the Christian history of the United States and the loss of ... William Nowers. Captain Nowers and his wife, Millie, have six children, ten grandchildren, ... Navy. Following his career as a naval aviator and carrier pilot, he spent ...
Breaking Medicine News(10 mins):
(Date:10/11/2017)... Oct. 11, 2017  Caris Life Sciences ® , ... the promise of precision medicine, today announced that St. ... Precision Oncology Alliance™ (POA) as its 17 th ... St. Jude Crosson Cancer Institute will help develop standards ... of tumor profiling, making cancer treatment more precise and ...
(Date:10/10/2017)... Calif. , Oct. 10, 2017  NDS received FDA 510(k) ... — a medical-grade battery-powered display stand specifically designed for endoscopy environments. ... transform technology into a clinical solution to support the improvement of ... Innovative Design ... Mobile Wireless Solution ...
(Date:10/5/2017)...  In response to the nationwide opioid epidemic, ... (AAOMS) released prescribing recommendations that urge ibuprofen – ... a first-line therapy to manage a patient,s acute ... Recognizing the value and importance of the ... Acute and Postoperative Pain Management" stresses that practitioners ...
Breaking Medicine Technology: