Navigation Links
NORD Letter to Senate Urges Action on Health Care Reform
Date:11/19/2009

WASHINGTON, Nov. 19 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) sent the following letter today to all members of the Senate:

Dear Majority Leader Reid:

On behalf of the 150 member organizations of the National Organization for Rare Disorders (NORD) representing nearly 30 million patients and families afflicted with one of the 7,000 known rare diseases, we are writing to convey our strong support for passage of the Patient Protection and Affordable Care Act. While this legislation has shortcomings and we will work to improve it before the President signs it into law, it is critically imperative the Senate votes to allow debate, to close debate, and to pass the Patient Protection and Affordable Care Act before the end of the year.

NORD members can no longer tolerate further delay in the passage and enactment of comprehensive health reform legislation. Our members are disproportionately burdened by the countless shortcomings of our health care system. They face untenable insurance access barriers through:

  • Ongoing and unacceptable pre-existing condition exclusions and medical underwriting practices;
  • Costly annual and lifetime caps;
  • The absence of a federal guarantee issue requirement, and;
  • Little to no direct financial assistance for those Americans who cannot afford insurance.

The Patient Protection and Affordable Care Act directly and helpfully addresses each one of these harmful shortcomings plaguing our nation's health care system. With this in mind, we strongly believe that failure to act represents an explicit policy choice with severely negative consequences for our members and for all Americans. In short, health care reform delayed is health care access denied. As such, on behalf of all of our members, we urge you and all Members to promptly pass the Patient Protection and Affordable Care Act.

Thank you for the leadership that you, Chairmen Max Baucus, Christopher Dodd and Tom Harkin, as well as countless other Senators, have shown throughout this historical debate. We look forward to continuing our work with you and all Members on both sides of the aisle to finally achieve the long overdue business of ensuring affordable, quality coverage for all Americans.

Sincerely,

Peter L. Saltonstall

President and CEO

Senator Max Baucus, Chairman, Senate Finance Committee

Senator Tom Harkin, Chairman, Senate Health, Educator, Labor and Pensions Committee

Senator Christopher Dodd, Chairman, Senate Banking, Housing and Urban Affairs

SOURCE National Organization for Rare Disorders (NORD)


'/>"/>
SOURCE National Organization for Rare Disorders (NORD)
Copyright©2009 PR Newswire.
All rights reserved

Related medicine news :

1. Throw a Yellow Flag on Football-related Head Injuries, Warns the Harvard Mental Health Letter
2. November 2009 Mayo Clinic Health Letter Highlights Self-Care Tips for Hemorrhoids, Interactive Video Games Improve Health and Heart Failure Treatments
3. Americans United for Life Action Endorses a Vote for the Stupak-Ellsworth-Pitts-Kaptur-Dahlkemper-Lipinski-Smith Amendment and Sends Score Letter to House Members
4. Concord Coalition Leaders Send Letter to Senator Reid on Healthcare Reform Bill
5. The latest on H1N1 flu from the Harvard Health Letter
6. Letter Warns About Tricky Dosing With Liquid Tamiflu for Kids
7. Open Letter to Congress on Long Term Care Insurance and Health Care Reform
8. Cambridge Healthtech Institute and Bio-IT World Launch a New eNewsletter: Pharma Services News
9. Sanofi-Aventis Receives Complete Response Letter from the FDA for Eplivanserin (Ciltyri(R)) Submission
10. Nyer Medical Group, Inc., Nasdaq Notification Letter
11. InfoLogix Receives Nasdaq Deficiency Letter
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/25/2016)... Lewisville, TX (PRWEB) , ... June 25, 2016 , ... ... in the United States, named Dr. Sesan Ogunleye, as the Medical Director of its ... be the facility Medical Director of our new Mesquite location,” said Dr. James M. ...
(Date:6/25/2016)... Canada (PRWEB) , ... June 25, 2016 , ... Conventional ... pursuit of success. In terms of the latter, setting the bar too high can ... risk more than just slow progress toward their goal. , Research from ...
(Date:6/24/2016)... ... ... Marcy was in a crisis. Her son James, eight, was out of control. Prone to ... , “When something upset him, he couldn’t control his emotions,” remembers Marcy. “If there ... my other children and say he was going to kill them. If we were ...
(Date:6/24/2016)... ... June 24, 2016 , ... Comfort Keepers® of San ... Society and the Road To Recovery® program to drive cancer patients to and from ... adults to ensure the highest quality of life and ongoing independence. Getting to ...
(Date:6/24/2016)... , ... June 24, 2016 , ... ... is proud to recognize Dr. Barry M. Weintraub as a prominent plastic surgeon ... beautiful women in the world, and the most handsome men, look naturally attractive. ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... PARK RIDGE, Ill. and INDIANAPOLIS ... caliber of students receiving a Lilly Diabetes Tomorrow,s Leaders ... hands. The 2016 scholarship winners, announced today online at ... refused to let type 1 diabetes stand in the ... Lilly Diabetes has supported the Foundation,s scholarship program since ...
(Date:6/23/2016)... 23, 2016 Revolutionary technology includes ... Oticon , industry leaders in advanced audiology and hearing ... Oticon Opn ™, the world,s first internet connected hearing ... IoT devices.      (Photo: http://photos.prnewswire.com/prnh/20160622/382240 ... number of ,world firsts,: , TwinLink™ - ...
(Date:6/23/2016)... June 23, 2016 The vast majority of ... dialysis facility.  Treatments are usually 3 times a week, ... visit, including travel time, equipment preparation and wait time. ... especially grueling for patients who are elderly and frail.  ... nursing and rehabilitation centers for some duration of time. ...
Breaking Medicine Technology: