To support collaboration across these projects and others, the PDBP is introducing a new online data sharing platform, the Data Management Resource (DMR), which was developed by the NIH Center for Information Technology. PDBP investigators are required to share data through the DMR. In the future, this requirement will also apply to investigators funded through the NINDS Udall Centers. Investigators not funded through these programs will be able to access the data and request biological samples, as well as encouraged to submit their own. Biological samples submitted through the PDBP will be banked by the NINDS Human Genetics Repository at the Coriell Institute for Medical Research.
"By giving researchers access to data and resources, we hope to stimulate biomarker discovery efforts across the Parkinson's research community," said Margaret Sutherland, Ph.D., a program director at NINDS.
The PDBP is committed to enhancing patient involvement and ensuring patient privacy. The DMR is password-protected and will contain only data and biological samples that have been stripped of any identifying information. The DMR will post updates about ongoing research, including notices about actively recruiting studies and results funded through the PDBP.
"This website is not just a database, but a way to communicate with the public and the research community about our progress," said Katrina Gwinn, M.D., Ph.D., also of NINDS. Drs. Sutherland and Gwinn are the lead scientific officers on several PDBP projects.
|Contact: Daniel Stimson|
NIH/National Institute of Neurological Disorders and Stroke