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NIH grant will create behavioral health registry for pediatric inflammatory bowel disease
Date:2/22/2010

ogical health," said LeLeiko. "The information that we gather could help us identify psychosocial and physical markers of IBD progression and treatment outcomes that could lead to the development of improved interventions for both adults and children."

IBD often presents itself in adolescence a period associated with poor medical adherence and high rates of risky health behaviors, like smoking or substance use making it a challenge for clinicians treating these patients.

"Studies have shown that adolescents with IBD report taking only half of their prescribed maintenance medications for IBD, which can exacerbate their disease," said Lobato. "This registry will help us understand why some kids take their medications and others do not. By identifying and eliminating the barriers that impact adherence, we can improve the overall health of these children and help them live happy, productive lives."

Working in collaboration with the 26 members of the Pediatric IBD Collaborative Research Group which includes Hasbro Children's Hospital researchers will assess the "bio-behavioral" factors involved in IBD medication adherence by:

  • Providing pill bottles equipped with a microchip in the cap that records when the child opens the bottle.
  • Interviewing both children and parents about issues ranging from youth risk behaviors to stress to functional ability, such as sleep and success in school.
  • Conducting routine blood work to monitor the child's disease and the presence of the medication in the child's system.

As a second piece to the study, researchers plan to export their initial findings from the IBD Behavioral Health Registry to two members of the Pediatric IBD Collaborative Research Group North Shore/Long Island Jewish Medical Center and Connecticut Children's Hospital for piloting. Once the "biobehavioral" protocols have been finalized, LeLeiko and Lobato hope to work with other young patients
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Contact: Jessica Collins Grimes
jgrimes2@lifespan.org
401-432-1328
Lifespan
Source:Eurekalert

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