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Multiple Sclerosis - What Are People With MS and Their Health Care Providers Really Thinking?
Date:5/27/2009

- New national survey reveals insights on treatment of disease, psychosocial burden, and delays in starting treatment

ROCKLAND, Mass. and NEW YORK, May 27 /PRNewswire/ -- The National Multiple Sclerosis (MS) Society, in collaboration with EMD Serono, today released findings from a nationwide GfK Roper survey, "MS Viewpoints: Understanding the Outlook on Emerging Therapies" in conjunction with the first-ever World MS Day. The MS Viewpoints survey compared the perspectives of neurologists, MS nurses and other healthcare professionals (HCPs)* and people living with MS on treatments, psychosocial burdens of the disease, and delays in starting treatment. Results from the survey uncovered that people newly diagnosed with MS often delay starting treatment, citing fear or anxiety about current treatment options as a key reason.

"At the National MS Society, we stress the importance of early treatment. It's critical for physicians and people living with MS to sit down early and have a candid conversation about an individual's concerns, fears and options for treatment," said Dr. Nicholas LaRocca, vice president, health care delivery and policy research, National MS Society. "World MS Day provides an opportunity to unite internationally and raise global awareness of MS and its impact on people living with the disease starting at diagnosis."

Results from the survey revealed that nearly 20% of people living with MS reported delaying the start of treatment for a variety of reasons, including fear or anxiety over treatment. Differences emerged between physicians and people living with MS about how much this fear affects their lives. In the survey, the majority of physicians, and MS nurses and other HCPs reported that anxiety around treatment impacts people living with MS "a great deal" or "somewhat" compared to less than half of those living with the disease who expressed such views.

*Nursing and other
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SOURCE EMD Serono; National Multiple Sclerosis Society
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