Navigation Links
Most 'locked-in syndrome' patients say they are happy
Date:2/24/2011

Most "locked-in syndrome" patients say they are happy, and many of the factors reported by those who say they are unhappy can be improved, suggest the results of the largest survey of its kind, published in the launch issue of the new online journal BMJ Open.

The findings are likely to challenge the perception that these patients can no longer enjoy quality of life and are candidates for euthanasia or assisted suicide, say the authors.

The research team quizzed 168 members of the French Association for Locked in Syndrome on their medical history and emotional state, and their views on end of life issues, using validated questionnaires.

Locked-in syndrome describes a condition in which a person is fully conscious, but cannot move or communicate, save through eye movements or blinking. The syndrome is caused by brain stem injury, and those affected can survive for decades.

In all, 91 people replied, giving a response rate of 54%. Around two thirds had a partner and lived at home, and most (70%) had religious beliefs.

There were no obvious differences between those who expressed happiness or unhappiness, but not unexpectedly, depression, suicidal thoughts, and a desire not to be resuscitated, should the need arise, or for euthanasia were more common among those who said they were unhappy.

Over half the respondents acknowledged severe restrictions on their ability to reintegrate back into the community and lead a normal life. Only one in five were able to partake in everyday activities they considered important.

Nevertheless, most (72%) said they were happy.

Only four of the 59 people (7%) who responded to the question asking whether they wanted to opt for euthanasia, said they wished to do so.

Among the 28% who said they were unhappy, difficulties getting around, restrictions on recreational/social activities, and coping with life events were the sources of their unhappiness.<
'/>"/>

Contact: Emma Dickinson
edickinson@bmjgroup.com
44-020-738-36529
BMJ-British Medical Journal
Source:Eurekalert

Page: 1 2

Related medicine news :

1. Most Locked-In Syndrome Patients Happy, Survey Finds
2. Spinal Fluid May Hold Clues to Lyme Disease, Chronic Fatigue Syndrome
3. Study Says 2 Therapies Help Fight Chronic Fatigue Syndrome
4. Researchers identify the genotype of disorders causing cardiac sudden death syndrome
5. Figuring out fetal alcohol syndrome in fruit flies
6. Dry Eye Syndrome Common in Winter
7. Exercise improves symptoms in irritable bowel syndrome
8. Exercise improve symptoms in irritable bowel syndrome
9. Ovarian Cyst Syndrome May Raise Health Risks from Plastics Chemical
10. UBC-VCH researchers find critical link between Down syndrome and Alzheimers disease
11. Metabolic syndrome found in 52 percent of patients after liver transplantation
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:8/20/2014)... 20, 2014 Doctors at the University of ... out mesothelioma in laboratory mice by injecting them with a ... details of the study on its website. Click here ... Hong Kong University’s AIDS Institute of Microbiology created a vaccine ... PD-1. By altering DNA, the vaccine is designed to prevent ...
(Date:8/20/2014)... Today, Zane Benefits, the #1 Online ... for 2015. , According to Zane Benefits, with open ... employees are encouraged to start thinking about their healthcare ... open enrollment period will run from November 15, 2014 ... can purchase a new individual health insurance policy, or ...
(Date:8/20/2014)... The report “Automotive Airbag and ... Global Analysis: by Geography - Trends and Forecasts ... defines automotive airbag and seatbelt market in terms ... growth opportunities in the coming years as well ... restrains, growth indicators, challenges, legislation trends, market dynamics, ...
(Date:8/20/2014)... August 20, 2014 In a recent ... a University College London (UCL) study showed that dental ... method of brushing teeth was the most effective. Analysis ... different tooth-brushing techniques were frequently recommended, but none were ... for Cosmetic Dentistry, experienced cosmetic dentist Dr. ...
(Date:8/20/2014)... Hope For The Warriors® is excited to ... hosted in Washington, DC on Thursday, October 2, 2014 ... honors the courage of our wounded service members, their ... the Got Heart, Give Hope® Celebration will benefit Hope ... a sense of self, restoring the family unit, and ...
Breaking Medicine News(10 mins):Health News:New Research Study Finds Vaccine Stops Mesothelioma in Lab Mice, According to Surviving Mesothelioma Website 2Health News:Automotive Airbag Market Worth $23.6 Billion and Automotive Seat Belt Market Worth $9.0 Billion by 2019 – New Report by MarketsandMarkets 2Health News:Automotive Airbag Market Worth $23.6 Billion and Automotive Seat Belt Market Worth $9.0 Billion by 2019 – New Report by MarketsandMarkets 3Health News:Automotive Airbag Market Worth $23.6 Billion and Automotive Seat Belt Market Worth $9.0 Billion by 2019 – New Report by MarketsandMarkets 4Health News:Ending Confusion About the Best Way to Brush Teeth 2Health News:Ending Confusion About the Best Way to Brush Teeth 3Health News:Hope For The Warriors Announces Got Heart, Give Hope Celebration in Washington, DC 2
... making LASIK safer, as well as widening the scope ... MD, who taught an instructional course at the recent ... the course titled “LASIK in Eyes Following Previous Surgery: ... and their Management,” Dr. Kanellopoulous, who was joined by ...
... come up with a solution to deal with the growing ... ,Pfizer, the drug manufacturer has made a new weight-reducing drug ... as the owners work late hours, the dogs lounge around ... fatty food they get to eat makes them obese. ...
... about one percent of the total general population, occurring more ... types of cancers, according to researchers at Yale School of ... the National Cancer Institute (JNCI), the study looked for the ... in a population of women with newly diagnosed ovarian cancer. ...
... solution for people suffering from winter depression, which is ... in the American Journal of Psychiatry. ... that mimics the atmosphere of dawn, helping in reducing ... “Negative Air Ionization" delivered at the bedside, to be ...
... have finally zeroed in on the new tumor suppressor gene, ... the most frequently occurring kidney cancer// in children. ... almost 30 percent of Wilms tumor is due to mutations ... into the tumor samples taken from 82 patients to evaluate ...
... is a Website, which allows both viewing and posting of ... of the year 2006. Experts from diverse fields// have put ... medical practice in rural Wales have started using the website ... video clipping on how to use an asthma inhaler properly ...
Cached Medicine News:Health News:Technology Making LASIK Safer for Those Who Have Had Previous Eye Surgery 2Health News:Cancer Gene Mutations Not Uncommon in General Population 2Health News:Dawn Machine Beats Wintertime Blues 2
(Date:8/19/2014)... , Aug. 19, 2014  AVIA – a ... task on the biggest problems in healthcare ­– announces ... Northern California , as the most recent addition ... Health will participate in AVIA,s inaugural cohort focused helping ... care and transparency among a patient,s providers so they ...
(Date:8/19/2014)... Calif. , Aug. 19, 2014  Cardiva Medical, ... two tranches of a $16.5 million Series 3 private ... with GE Capital. The Company will use the proceeds ... facility to expand commercial efforts for its VASCADE® Vascular ... . Investing in Series 3 private ...
(Date:8/19/2014)... , Aug. 19, 2014 ... Ampio Pharmaceuticals, Inc. (NYSE MKT: AMPE), today ... Annual Meeting of the American Academy of ... Care Surgery in Philadelphia, Pennsylvania ... The presentation will report results from a recently ...
Breaking Medicine Technology:AVIA and Sutter Health Join Forces to Address Healthcare's Most Pressing Challenges 2Cardiva Medical, Inc. Announces Completion of the first two tranches of Series 3 Private Equity Financing and the Closing of a Senior Secured Debt Facility with GE Capital 2Luoxis Announces Presentation of Positive Clinical Findings from Five-Year Clinical Study of Traumatic Brain Injury and Oxidation-Reduction Potential at 2014 American Academy of Surgical Trauma Meeting 2Luoxis Announces Presentation of Positive Clinical Findings from Five-Year Clinical Study of Traumatic Brain Injury and Oxidation-Reduction Potential at 2014 American Academy of Surgical Trauma Meeting 3
... NEW YORK, Oct. 31 A recent outbreak ... to,as "the superbug," should cause organizations and facilities ... The superbug is resistant to common antibiotics. ... abscesses, boils and other pus-filled,lesions. Superbug infections prior ...
... Oct. 31 United,Therapeutics Corporation (Nasdaq: UTHR ... today that they will release the results of ... formulation of treprostinil,in pulmonary arterial hypertension (PAH) before ... Therapeutics will expand its previously scheduled conference,call on ...
Cached Medicine Technology:'Superbug' Outbreak Calls for Immediate Increased Attention on Infection Control 2Results of TRIUMPH-1 Trial of Viveta in Pulmonary Arterial Hypertension to Be Announced Before Market Open on Thursday, November 1, 2007 2
Inquire...
Superior Skin Care...Convex FlexWear skin barrier is secure and provides extended weartime. Security and confidence assured with internal non-reflux valves and a drain valve that allows regulation of...
Protects skin from corrosive drainage with the standard wear, FlexWear skin barrier. Security and confidence assured with porous tape, internal non-reflux valves, convenient drain valve....
Firstchoice drainable pouch with softflex skin barrier, cushionfit backing, transparent odor-barrier quiet film and microporous adhesive....
Medicine Products: