Navigation Links
Most 'Locked-In Syndrome' Patients Happy, Survey Finds

THURSDAY, Feb. 24 (HealthDay News) -- Most "locked-in syndrome" patients -- a condition caused by brain stem injury -- claim to be happy, according to a new study.

People with locked-in syndrome are fully conscious but can't move or communicate, except through eye movements or blinking. Patients with the condition can live for decades.

In the new study, researchers surveyed 91 locked-in syndrome patients in France about their medical history, emotional state, and their views on end-of-life issues. About two-thirds of the patients had a partner and lived at home and 70 percent had religious beliefs, the investigators found.

Even though more than half of the patients acknowledged severe limitations on their ability to lead a normal life as a member of their community and 20 percent said they couldn't take part in everyday activities that they considered important, 72 percent of the patients said they were happy.

The finding that nearly three-quarters of the patients report being happy challenges the widespread belief that locked-in syndrome patients should be candidates for euthanasia or assisted suicide due to poor quality of life, the researchers pointed out.

The 28 percent of patients who said they were unhappy cited issues such as difficulty getting around, restrictions on recreational/social activities, and the challenges of coping with life events.

Among patients who had been affected by locked-in syndrome for less than one year at the time of the survey, feeling anxious and not recovering speech were also associated with being unhappy.

Among the 59 patients who responded to a question regarding whether they wanted to opt for euthanasia, only four (7 percent) said yes, the researchers noted.

"Our data show that, whatever the physical devastation and mental distress of [these] patients during the acute stage of the condition, optimal life-sustaining care and revalidation can have major long-term benefit," Marie-Aurelie Bruno, of the University Hospital of Liege in Belgium, and colleagues wrote in their report published Feb. 23 in the first issue of the new online journal BMJ Open.

"We suggest that patients recently struck by locked-in syndrome should be informed that, given proper care, they have a considerable chance of regaining a happy life. In our view, shortening-of-life requests by locked-in syndrome patients are valid only when the patients have been given a chance to attain a steady state of subjective well-being," they concluded.

More information

The U.S. National Institute of Neurological Disorders and Stroke has more about locked-in syndrome.

-- Robert Preidt

SOURCE: BMJ Open, news release, Feb. 23, 2011

Copyright©2010 ScoutNews,LLC.
All rights reserved  

Related medicine news :

1. Study Says 2 Therapies Help Fight Chronic Fatigue Syndrome
2. Researchers identify the genotype of disorders causing cardiac sudden death syndrome
3. Figuring out fetal alcohol syndrome in fruit flies
4. Dry Eye Syndrome Common in Winter
5. Exercise improves symptoms in irritable bowel syndrome
6. Exercise improve symptoms in irritable bowel syndrome
7. Ovarian Cyst Syndrome May Raise Health Risks from Plastics Chemical
8. UBC-VCH researchers find critical link between Down syndrome and Alzheimers disease
9. Metabolic syndrome found in 52 percent of patients after liver transplantation
10. Vitamins C and E linked to metabolic syndrome in low-income Ecuadorians
11. Clinical trial for Rett syndrome launched
Post Your Comments:
Related Image:
Most 'Locked-In Syndrome' Patients Happy, Survey Finds
(Date:6/27/2016)... ... June 27, 2016 , ... ... strategic partnership with Connance, a healthcare industry leader providing predictive analytics to ... technology combine to provide health systems, hospitals and ambulatory surgical centers with ...
(Date:6/26/2016)... , ... June 26, 2016 , ... Pixel Film Studios ... X. , "Film editors can give their videos a whole new perspective by using ... - CEO of Pixel Film Studios. , ProSlice Levels contains over 30 Different ...
(Date:6/25/2016)... ... June 25, 2016 , ... Austin residents seeking Mohs surgery services, can ... Surgery and to Dr. Russell Peckham for medical and surgical dermatology. , Dr. Dorsey ... cancer. The selective fellowship in Mohs Micrographic Surgery completed by Dr. Dorsey was under ...
(Date:6/25/2016)... ... June 25, 2016 , ... Dr. ... from injury. Recently, he has implemented orthobiologic procedures as a method for treating ... one of the first doctors to perform the treatment. Orthobiologics are substances that ...
(Date:6/24/2016)... ... June 24, 2016 , ... June 19, 2016 is World Sickle Cell ... pain and the benefits of holistic treatments, Serenity Recovery Center of Marne, ... Cell Disease. , Sickle Cell Disease (SCD) is a disorder of the red blood ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)...   Pulmatrix, Inc ., (NASDAQ: PULM ... announced today that it was added to the Russell ... comprehensive set of U.S. and global equity indexes on ... milestone for Pulmatrix," said Chief Executive Officer Robert ... progress in developing drugs for crucial unmet medical needs, ...
(Date:6/23/2016)... Calif. , June 23, 2016 Any dentist ... many challenges of the current process. Many of them do ... of the technical difficulties and high laboratory costs involved. And ... to offer it at such a high cost that the ... it. Dr. Parsa Zadeh , founder of ...
(Date:6/23/2016)... Capricor Therapeutics, Inc. ... company focused on the discovery, development and commercialization ... in its ongoing randomized HOPE-Duchenne clinical trial (Halt ... its 24-patient target. Capricor expects the trial to ... 2016, and to report top line data from ...
Breaking Medicine Technology: