Navigation Links
Moms often talk to children about the results of cancer genetic testing
Date:7/2/2013

WASHINGTON Mothers commonly talk to their children about genetic test results even if they test positive for a BRCA1 or BRCA2 gene mutation, which sharply increases a woman's risk of developing breast and ovarian cancer. That is among the findings of a new study from Georgetown Lombardi Comprehensive Cancer Center, which also suggests mothers who don't discuss their test results are unsatisfied with that decision.

"We know from women we've counseled at Georgetown that one of their main considerations of genetic testing for cancer risk is what the results will mean for their children," says the study's lead author, Kenneth Tercyak, PhD, director of behavioral prevention research at Georgetown Lombardi.

Tercyak says talking to children about a mom's risk of developing cancer "may already be on the radar" for women who seek genetic testing, especially if there's a strong family history of cancer. And he says women tend to reach decisions about whether, when and how to share the news of genetic test results with their children relatively soon after receiving the information, often to educate and help prepare their children for the future.

The study was published online today in the journal Cancer Epidemiology, Biomarkers & Prevention. Before receiving genetic counseling and testing, 221 mothers of children ages eight to 21 enrolled in the parent communication study at Georgetown Lombardi, Mount Sinai cancer center (New York) and Dana-Farber Cancer Institute (Boston). Women completed standardized assessments prior to testing and one month after receiving their results.

"We found that more than half of mothers [62.4 percent] disclosed their genetic test results to their children, especially if the children were teenagers," Tercyak says. "Parents say sharing the information is often a relief and that it's part of their duty as parents to convey it."

Mothers also were more likely to disclose their test results if they felt the benefits of sharing the information outweighed its risks. "Younger children are more concrete thinkers. The concept of a gene that causes cancer might be too abstract for some to understand and appreciate, but not others," Tercyak explains. "We encourage parents to ask themselves 'Is my child ready to learn this?'"

Tercyak and his team also studied if women were satisfied with their choice about informing their children. Those who didn't disclose their results were less satisfied with their decision, as were those who felt more conflicted over how to act.

"When parents feel conflicted, overwhelmed or uncertain, it can compromise their judgment, making them second guess and regret their choices," Tercyak says.

"These can be hard choices about sensitive issues, especially for healthy mothers with younger children who opt to have surgery," he says, referring to BRCA-positive women who opt for prophylactic mastectomies or oophorectomies. "We associate surgery and doctors appointments with being sick. It can be difficult to explain why a surgery is needed to prevent an illness."

Tercyak and his team at Georgetown Lombardi have developed a communication tool to help parents talk with their children about hereditary cancer risk and prevention. "We're evaluating what works best for parents to help them make and act on decisions that are right for them and their families."


'/>"/>

Contact: Karen Mallet
km463@georgetown.edu
Georgetown University Medical Center
Source:Eurekalert

Related medicine news :

1. Sailors most often injure their knees -- on land
2. America’s Sole Proprietors are Independent, Confident and Often Uninsured
3. Cancer Patients Often Shy Away From Talking About Costs
4. Anxiety Often Plagues Cancer Survivors and Their Loved Ones
5. National review: Non-adherence among teenage heart transplant recipients is widespread, often fatal
6. Clinicians often wait for red flags before discussing elderly driving
7. Poorer Patients Often Less Happy With Knee Replacement
8. Young breast cancer patients often opt for mastectomy
9. Lawn Mower Injuries Often Caused by Distraction
10. Physical & emotional impairments common, often untreated in people with cancer
11. Exercise for patients with major depression -- What kind, how intense, how often?
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:12/8/2016)... , ... December 08, 2016 , ... ... Chester County, a Property owned by an affiliate of Seavest, has won a ... Penn Medicine Southern Chester County ambulatory care center (ACC) was named “Best New ...
(Date:12/8/2016)... ... December 08, 2016 , ... CURE Media Group, the ... advocacy groups, has aligned with Upstage Lung Cancer in efforts to combat lung cancer, ... Michael J. Hennessy, Jr said, “CURE Media Group is honored to team up with ...
(Date:12/8/2016)... ... December 08, 2016 , ... David J. Dykeman , Ginger Pigott ... LLP, will speak at DeviceTalks West, Dec. 12, 2016, at the Fairmont Newport Beach ... from the firm’s global Life Sciences & Medical Technology Group have been featured speakers ...
(Date:12/8/2016)... ... December 08, 2016 , ... SunView Software aims to redefine ... are both engaging and easy to use. Coming off the heels of a ... today its plans to roll out new AI-powered self-service enhancements to help organizations ...
(Date:12/8/2016)... Somerset, N.J. (PRWEB) , ... December 08, 2016 ... ... advanced delivery technologies and development solutions for drugs, biologics and consumer health products, ... The PSCI was set up in 2006 as a non-profit organization to unite ...
Breaking Medicine News(10 mins):
(Date:12/9/2016)... Dec 9, 2016 Research and Markets has announced ... Business Report" report to their offering. ... The report also analyses the market by the following ... comprehensive analytics for the US, Canada , ... , Latin America , and Rest of World. ...
(Date:12/9/2016)... Dec. 9, 2016 aTyr Pharma, Inc. (Nasdaq: ... of Physiocrine-based therapeutics to address severe, rare diseases, today announced that ... BMO Prescriptions for Success Healthcare Conference at the InterContinental Barclay Hotel ... 14, 2016, at 4:20 p.m. ET. About aTyr ... aTyr ...
(Date:12/9/2016)... DIEGO , Dec. 9, 2016  Forge ... Evotec AG (Frankfurt Stock Exchange: EVT, TecDAX, ISIN: ... targeting ,LpxC, for the treatment of bacterial infections ... has been recognized as an attractive antibacterial target ... a lack of suitable chemical starting points has ...
Breaking Medicine Technology: