Navigation Links
Moms often talk to children about the results of cancer genetic testing
Date:7/2/2013

WASHINGTON Mothers commonly talk to their children about genetic test results even if they test positive for a BRCA1 or BRCA2 gene mutation, which sharply increases a woman's risk of developing breast and ovarian cancer. That is among the findings of a new study from Georgetown Lombardi Comprehensive Cancer Center, which also suggests mothers who don't discuss their test results are unsatisfied with that decision.

"We know from women we've counseled at Georgetown that one of their main considerations of genetic testing for cancer risk is what the results will mean for their children," says the study's lead author, Kenneth Tercyak, PhD, director of behavioral prevention research at Georgetown Lombardi.

Tercyak says talking to children about a mom's risk of developing cancer "may already be on the radar" for women who seek genetic testing, especially if there's a strong family history of cancer. And he says women tend to reach decisions about whether, when and how to share the news of genetic test results with their children relatively soon after receiving the information, often to educate and help prepare their children for the future.

The study was published online today in the journal Cancer Epidemiology, Biomarkers & Prevention. Before receiving genetic counseling and testing, 221 mothers of children ages eight to 21 enrolled in the parent communication study at Georgetown Lombardi, Mount Sinai cancer center (New York) and Dana-Farber Cancer Institute (Boston). Women completed standardized assessments prior to testing and one month after receiving their results.

"We found that more than half of mothers [62.4 percent] disclosed their genetic test results to their children, especially if the children were teenagers," Tercyak says. "Parents say sharing the information is often a relief and that it's part of their duty as parents to convey it."

Mothers also were more likely to disclose their test results if they felt the benefits of sharing the information outweighed its risks. "Younger children are more concrete thinkers. The concept of a gene that causes cancer might be too abstract for some to understand and appreciate, but not others," Tercyak explains. "We encourage parents to ask themselves 'Is my child ready to learn this?'"

Tercyak and his team also studied if women were satisfied with their choice about informing their children. Those who didn't disclose their results were less satisfied with their decision, as were those who felt more conflicted over how to act.

"When parents feel conflicted, overwhelmed or uncertain, it can compromise their judgment, making them second guess and regret their choices," Tercyak says.

"These can be hard choices about sensitive issues, especially for healthy mothers with younger children who opt to have surgery," he says, referring to BRCA-positive women who opt for prophylactic mastectomies or oophorectomies. "We associate surgery and doctors appointments with being sick. It can be difficult to explain why a surgery is needed to prevent an illness."

Tercyak and his team at Georgetown Lombardi have developed a communication tool to help parents talk with their children about hereditary cancer risk and prevention. "We're evaluating what works best for parents to help them make and act on decisions that are right for them and their families."


'/>"/>

Contact: Karen Mallet
km463@georgetown.edu
Georgetown University Medical Center
Source:Eurekalert

Related medicine news :

1. Sailors most often injure their knees -- on land
2. America’s Sole Proprietors are Independent, Confident and Often Uninsured
3. Cancer Patients Often Shy Away From Talking About Costs
4. Anxiety Often Plagues Cancer Survivors and Their Loved Ones
5. National review: Non-adherence among teenage heart transplant recipients is widespread, often fatal
6. Clinicians often wait for red flags before discussing elderly driving
7. Poorer Patients Often Less Happy With Knee Replacement
8. Young breast cancer patients often opt for mastectomy
9. Lawn Mower Injuries Often Caused by Distraction
10. Physical & emotional impairments common, often untreated in people with cancer
11. Exercise for patients with major depression -- What kind, how intense, how often?
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/30/2016)... ... ... Another ER facility operated by First Choice Emergency Room opened yesterday ... is open 24 hours daily. , First Choice Emergency Room hosted a ribbon cutting ... High School band entertained attendees and accepted First Choice Emergency Room’s donation on behalf ...
(Date:5/28/2016)... ... May 28, 2016 , ... "Color Grading media can be time ... preset onto their media," said Christina Austin - CEO of Pixel Film Studios. ... and easily add stylish color grades to their footage. A LUT is a Lookup ...
(Date:5/27/2016)... ... May 27, 2016 , ... Southland Log Homes , designer and ... frame barn kits, which can be found on its website at SouthlandLogHomes.com. , The ... plans, and they highlight the craftsmanship of timber post and beam construction. The ...
(Date:5/27/2016)... (PRWEB) , ... May 27, 2016 , ... This campaign ... a stroke, which we as a society can control and change. , As nearly ... nearly every 40 seconds within the United States. Plus, with an estimated 129,000 of ...
(Date:5/27/2016)... New York, NY (PRWEB) , ... May 27, 2016 , ... ... bolstered by inspiring human interest stories, which come courtesy of leaders in the nursing ... within the industry, from leading advocates and associations—namely Abilene Christian University. , As ...
Breaking Medicine News(10 mins):
(Date:5/25/2016)... May 25, 2016 Digital Health Dialog, ... it by the US Patent and Trademark Office ... includes proprietary processes for electronic opt-­in and processing ... wellness programs, HIPAA compliance and otherwise. ... "Our technology allows for individuals ...
(Date:5/24/2016)... Cirujanos holandeses han puesto en ... médicos a compartir sus mejores prácticas por el mundo ... médicos de Europa, África, Asia ... aplicación, que combina la transmisión en vivo con mensajería ... Educación   "Imagine un médico de Medicines ...
(Date:5/24/2016)... 24, 2016  NxStage Medical, Inc. (Nasdaq: ... advancing renal care, today announced that Jeffrey H. ... the following schedule of investor conferences. Where applicable, a ... http://ir.nxstage.com/ .   ... NY, NY           Friday, June 10, 2016 1:30 p.m. ...
Breaking Medicine Technology: