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MDA's Board Chairman Testifies Before US Senate Subcommittee to Advocate for Newborn Screening
Date:9/27/2013

ommittee has recommended that it be added to the RUSP. Spinal muscular atrophy (SMA) was nominated several years ago but not deemed ready for full review by the Advisory Committee; a pilot for SMA newborn screening is under way. In February 2013, scientific information about the feasibility of newborn screening for Duchenne muscular dystrophy (DMD) was presented to the Committee.

A video of the Sept. 26, 2013, Senate subcommittee hearing is available.

To support the Newborn Screening Saves Lives Act, take five minutes to contact your U.S. senator here: mda.org/advocacy/get-involved/legislative-alerts.

About MDA

The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. It does so by funding worldwide research; by providing comprehensive health care services and support to MDA families nationwide; and by rallying communities to fight back through advocacy, fundraising and local engagement. Visit mda.org and follow us at facebook.com/MDAnational and @MDAnews.

-MDA-

Read the full story at http://www.prweb.com/releases/2013/9/prweb11173040.htm.


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