WASHINGTON, Dec. 6 /PRNewswire-USNewswire/ -- More than 10,000 children in the United States are living with the disease lupus. Lupus develops when a defective immune system causes its defense mechanisms to turn on the body's own tissue and organs. Lupus can be unpredictable and potentially fatal, yet no satisfactory treatment or cure presently exists.
Caring for a child with lupus is one of the greatest challenges a family can face. After the diagnosis is made, the first step for every parent is to learn as much as possible about the disease and the special needs of a child with lupus. Parents need to educate the child with lupus and their other children, plus their child's teachers, and family friends.
The Lupus Foundation of America (LFA) provides information and other resources to help children with lupus and their parents better understand and cope with the serious and often life-threatening consequences of the autoimmune disease.
The LFA Website will host a free live Web chat on the topic of Teens and Lupus on Wednesday, December 12, beginning at 3:00 p.m. Eastern Time. The guest speaker will be Dr. Peter Chira, from the Stanford University School of Medicine.
Dr. Chira's research interests focus on improving the transition and educational process for adolescents with rheumatic diseases, including those with lupus, and evaluating the role of information technology in this transition. He has previously looked at the role of an online chat room support group for teens with rheumatic conditions. Currently, Dr. Chira is working on a project looking at designing a personal health record for teens with chronic health problems.
The chat can be accessed by going to the LFA Website at http://www.lupus.org. Questions may be submitted in advance or during the chat. An archive of past chat transcripts is also available on the LFA Website.
Approximately 1.5 million
|SOURCE Lupus Foundation of America|
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