Navigation Links
Lombardi Comprehensive Cancer Center publishes manual for childhood cancer survivors
Date:4/3/2008

With more than 270,000 childhood cancer survivors living in the United States, researchers have turned their attention to the effects of cancer treatment that can occur years after therapy, called late effects. At the Lombardi Comprehensive Cancer Center and Georgetown University Hospital, a team of oncologists, nurses, social workers and an art therapist have created the first survivorship manual, tailored for each child treated for cancer. The Next Step Crossing the Bridge to Survivorship is an educational guide designed to provide specific information related to long-term follow-up and survivorship.

The end of cancer treatment is a time of strong emotions for patients and families, says Aziza T. Shad, M.D., chief of the division of pediatric hematology oncology at Lombardi and the Hospital, and author of the manual. Celebration is often mixed with anxiety and loss of security. Most families feel overwhelmed and have many questions about the future. Shad, an internationally known pediatric oncologist, is the Amey Distinguished Professor of Neuro-oncology and Childhood Cancer at Georgetown University Medical Center.

Many of those questions center on the future health of the child. Chemotherapy, radiation therapy, and surgery may all have late effects involving any organs or body systems. Some complications can be identified early during treatment and follow-up. The majority of late effects, however, become apparent many years after treatment is finished. Some late effects are easily treated, while others may become chronic.

Late effects are caused by injury to healthy cells as a result of cancer treatment. Just like every person reacts differently to treatment, late effects also vary from person to person and cancer to cancer, Shads manual explains. A lot depends on the types of therapy and the doses used. Chemotherapy and radiation therapy cause most of the late effects.

Some examples of late effects from treatment include heart disease after treatment with anthracycline chemotherapy or high-dose chest radiation, learning disabilities in survivors treated with radiation and/or chemotherapy to the brain, breast cancer at an early age in female survivors of Hodgkin's disease who received chest and neck radiation in their teens, second cancers from chemotherapy drugs or radiation used to treat the original cancer, symptoms of post-traumatic stress syndrome in survivors and their parents, and chronic pain and fatigue.

Thirty years ago, few children with cancer survived, but now almost 80 percent of all children and adolescents diagnosed with cancer are surviving more than 5 years and the majority of them are cured, explains Shad. There is much to celebrate in the field of childhood cancer. We hope this manual will help ease the transition for patients and families from active treatment to follow-up care.

The manual is customized for each patient to include information about their cancer diagnosis and specific treatment. It combines the personal health record with an educational guide about long-term effects. Also, the manual promotes a shared care model, incorporating primary care providers as an integral part of a survivors care.

Primary care physicians and nurses can play a pivotal role in the monitoring of potential late effects and survivorship issues, says Shad.

According to the American Cancer Society, approximately 10,730 children will be diagnosed with cancer this year and 1,490 are expected to die from the disease. At Lombardi, patients who are two years out from treatment are automatically enrolled in the Childhood Cancer Survivorship Program directed by Shad. The program, established in 2003, is also open to all childhood cancer survivors, regardless of where they received treatment. It focuses on the unique health-care needs of survivors by:

  • Monitoring and managing late effects of therapy
  • Addressing psychosocial needs
  • Educating survivors about their disease and the treatment received
  • Promoting wellness through education on healthy living
  • Encouraging participation in survivorship research
  • Empowering survivors to advocate for their own healthcare needs


'/>"/>

Contact: Karen Mallet
km463@georgetown.edu
414-312-7085
Georgetown University Medical Center
Source:Eurekalert

Related medicine news :

1. Lombardi Cancer Centers Toretsky awarded prestigious Burroughs Wellcome Fund Award
2. Dominion Diagnostics Announces Launch of Comprehensive New Company Website
3. New Study -- Same Result! Comprehensive Sex Education Works
4. Medical Simulation Corporation to Present Comprehensive Cardiac Patient Scenario at the Society for Cardiovascular Angiography and Interventions (SCAI) and American College of Cardiology (ACC) Conference
5. DST Health Solutions Provides Comprehensive Client Service, Establishes New Service Delivery Organization
6. ACS Awarded Contract to Provide Comprehensive Outsourcing Services for CAQH
7. Ad Campaign Urges Pennsylvania Lawmakers to Stop Waffling and Pass Comprehensive Smoke-Free Law
8. Comprehensive diagnosis of heart disease with a single CT scan
9. Comprehensive Pharmacy Services Awarded $80 Million Dollar Pharmacy Services Contract for the State of Massachusetts
10. Loma Linda University Medical Center Celebrates Groundbreaking on Inland Empires Most Comprehensive Rehabilitation Center
11. Billians HealthDATA(R) Continues to Delight Their Customers with Comprehensive Cutting Edge Healthcare Market Intelligence
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/27/2016)... New York, NY (PRWEB) , ... May 27, 2016 , ... ... the factors of a stroke, which we as a society can control and change. ... a stroke occurs nearly every 40 seconds within the United States. Plus, with an ...
(Date:5/27/2016)... ... May 27, 2016 , ... Aimed at nurses and employees in the ... courtesy of leaders in the nursing and health care industry. It also provides insight ... Abilene Christian University. , As the nursing industry is coming out of one ...
(Date:5/26/2016)... ... , ... W.S. Badger Co. Inc ., the maker of certified organic ... Works Award for its use of effective workplace strategies to increase business and employee ... by the Families and Work Institute (FWI) and the Society for Human Resource Management ...
(Date:5/26/2016)... ... ... On Memorial Day, Hope For Heroes and USA Medical Card will ... country. The nonprofit Hope For Heroes partnered with the leading provider of free ... military veterans, as well as police, firemen, and EMS professionals across the country, and ...
(Date:5/26/2016)... ... 2016 , ... Catalent Pharma Solutions, the leading global provider ... global clinical supply services, today announced two key appointments and the opening of ... strategic growth plans in the Asia Pacific region. , Howard Kim has joined ...
Breaking Medicine News(10 mins):
(Date:5/24/2016)... 24, 2016 ARANZ Medical  Ltd ... healthcare sector, has been named the Coretex Hi-Tech Emerging Company ... Dr Bruce Davey , CEO of ARANZ ...  It,s really good to be recognised for the work we ... are used in 35 countries around the world from Sub-Saharan ...
(Date:5/24/2016)... BioMarketing as senior vice president of sales, announced Andrea Heslin Smiley , VMS ... company,s business development and sales team, exploring new opportunities for VMS to empower patients ... ... ... ...
(Date:5/24/2016)... May 24, 2016 ... , la première endoprothèse à double ... à l,intervention portant sur les membres inférieurs ... OrbusNeich, entreprise mondiale spécialisée dans la ... la vie, a élargi son portefeuille pour ...
Breaking Medicine Technology: