Navigation Links
Local man turns Parkinson's diagnosis into mission to find a cure
Date:12/14/2011

Nearly 1.5 million Americans are living with Parkinson's disease, a slowly progressing neurodegenerative brain disorder. The disease, which has been linked to a lack of dopamine in the brain, causes symptoms including tremor, slowness of movement, muscle stiffness and balance problems. Since there is currently no cure for Parkinson's disease, most patients focus on working with their physician to find a treatment plan that preserves their quality of life while minimizing the symptoms of the disease. For Paul Ruby, this was not enough.

Ruby set out on a personal journey to help find a cure after being diagnosed with young-onset Parkinson's in 2006. He founded the Paul Ruby Foundation for Parkinson's Research which raises funds to support Northwestern Medicine researchers who are working to find better treatments, and ultimately a cure at Northwestern's Parkinson's Disease and Movement Disorders Center. The center is the only National Parkinson's Foundation (NPF) Center of Excellence in Illinois and provides innovative, multidisciplinary care, while also conducting research studies to expand knowledge and treatment of movement disorders.

"Being diagnosed with Parkinson's was scary and shocking; it still is to some extent," said Ruby, who lives in Geneva, Ill. "With this foundation, I'm trying to make a positive out of it. It's been very therapeutic for me to be involved with the process of helping to fund research and spreading awareness."

To date, the Paul Ruby Foundation has contributed more than $325,000 to Parkinson's research at Northwestern Memorial Hospital and Northwestern University Feinberg School of Medicine, including a recent gift of $100,000 to fund two research projects in 2012.

"The value of the Paul Ruby Foundation's support is immeasurable," said Tanya Simuni, MD, director of the Parkinson's Disease and Movement Disorders Center, neurologist at Northwestern Memorial and associate professor of neurology at the Feinberg School. "Beyond just the monetary contributions, their work brings a great deal of awareness to Parkinson's. Paul sets a wonderful example of how a person can have this disease, but still thrive and live a very full life."

The Paul Ruby Foundation is an entirely grassroots organization with volunteers serving as staff and on its board. Funds are raised through a variety of events and campaigns, culminating with the annual Concert for a Cure, a large festival in Geneva with live music and family fun. Each year, the foundation's board comes together to listen to research proposals from Parkinson's researchers at Northwestern and then votes on which projects to support.

"In recent years, research has lead to advancements in both diagnosis of Parkinson's and management of its symptoms. However, there's still much to be learned about the disease," said Simuni. "Support from organizations like the Paul Ruby Foundation is important for furthering this research. Studies like those taking place here at Northwestern have the potential to help us better understand Parkinson's which can unlock developments in its treatment and may eventually help find its cure."

It was the actions of Ruby's son which inspired the start of the foundation. "My son, who was 10 at the time of my diagnosis, saw in the newspaper that President Bush had vetoed funding for stem cell research and took it upon himself to write the president a letter," explained Ruby. "He finished the letter by saying 'I just want to be able to play catch with my dad.' I realized that if a 10 year old kid can try to make a difference, I better do the same. It started out as a onetime fundraiser that garnered a great deal of community support. Five years later, we're stronger than ever."

Ruby is optimistic that all his hard work will pay off in the future. "I look forward to the day when we disband this foundation because it's no longer needed; I think finding a cure is definitely on the horizon," said Ruby.


'/>"/>

Contact: Megan McCann
memcann@nmh.org
312-926-5900
Northwestern Memorial Hospital
Source:Eurekalert

Related medicine news :

1. Strong attachment to local communities made oil spill more stressful for many coastal residents
2. MRI predicts survival in locally advanced rectal cancer
3. Local efforts can stem the increasing unnecessary cesarean sections
4. Localized reactive badger culling raises bovine tuberculosis risk, new analysis confirms
5. Sound localization at cocktail parties is easier for men
6. Hypnosis Plus Local Anesthesia Might Work Well for Some Surgeries
7. Hypnosis/local anesthesia combination during surgery helps patients, reduces hospital stays
8. Researchers examine procedure utilization trends in patients with clinically localized renal masses
9. Supply of hospice services strongly associated with local areas median household income
10. Availability of local food key to improving food security
11. New lung cancer staging system (TNM 7) better predicts local/regional recurrence, study shows
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/19/2017)... ... January 19, 2017 , ... Sales Focus Inc. (SFI), ... into the US market. , Over the past 20 years SFI has been recognized ... SFI has launched six new clients into the US market. The new clients ...
(Date:1/19/2017)... ... 2017 , ... Each year, the Southeastern Society of Plastic ... of surgeons from over fifteen different countries come together to share and learn ... to breast reconstruction for breast cancer patients, teaching these surgical techniques which ...
(Date:1/18/2017)... ... ... A recent video posting of a new fidget product gathered online momentum as ... stress and anxiety. No one was more surprised than Think Ink Pen founders ... successful Kickstarter campaign raising $67,000 on the popular crowdfunding platform. “We’ve been in ...
(Date:1/18/2017)... ... 18, 2017 , ... Visually learn facts and tips on ... Certain Dri. , Excessive sweating and hyperhidrosis are common conditions that occur in ... explain the seven types of hyperhidrosis. This visual creates awareness about the condition ...
(Date:1/18/2017)... (PRWEB) , ... January 18, ... ... specialty pharmacy industry’s leading journal and most-read publication among specialty pharmacists and ... Medical Center through its Strategic Alliance Partnership (SAP) program, announced Brian Haug, ...
Breaking Medicine News(10 mins):
(Date:1/19/2017)... , Jan. 18, 2017 The ... Food and Drug Administration (FDA) for its release ... and population health decision makers can proactively share ... products as well as emerging therapies awaiting FDA ... mirrors consensus recommendations that AMCP developed during two ...
(Date:1/18/2017)... 2017  EnteroMedics Inc. (NASDAQ: ETRM ... technology to treat obesity, metabolic diseases and other ... underwritten public offering of units for gross proceeds ... and commissions and offering expenses payable by EnteroMedics. ... A Units, priced at a public offering price ...
(Date:1/18/2017)... PORTLAND, Oregon and PUNE, India ... report published by Allied Market Research, titled, "Breast Imaging Technologies ... projects that the global breast imaging technologies market size was ... reach $4,502 million by 2022, growing at a CAGR of ... and Europe together accounted for ...
Breaking Medicine Technology: