Participants also discussed the need for new treatments. "We need to continue funding research and development as there is a need for drugs that help us better straddle this balance until a cure for epilepsy can be found," said Hargis.
Other recommendations for improving communication and treatment plans
-- Patients and caregivers should advocate for themselves and discuss
their treatment plans, side effects and what other steps can be taken
with their healthcare professionals. "As long as there is seizure
activity, there are still things that can be done or treatments that
can be tried," said Grunberg.
-- Patients should strive for a more individualized treatment plan by
sharing a daily diary or record of how they are feeling, any medication
side-effects or breakthrough seizures they experience with their
-- Patients and caregivers, as well as healthcare professionals, should
raise their standards and not settle if the patient is still
experiencing seizures or side effects. "It's not a trade-off. We may
not be able to get every patient to the point of experiencing no
seizures and no side effects, but we should never stop trying," said
-- Finally, panelists encouraged patients to not hesitate to seek a second
opinion when patients are not achieving their treatment goals.
Raising Public Awareness of Epilepsy
According to the survey, three-quarters of people with epilepsy and 90 percent of physicians feel that the general public is not well-informed about epilepsy. Roundtable participants agreed that this is a major cause for the stigma surrounding epilepsy and some shared their stories of how this has impacted their lives.
"The other kids (in
|SOURCE ORTHO-McNEIL NEUROLOGICS|
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