Joseph H. Kanter Family Foundation and eHealth Initiative Foundation Launch Partnership to Conduct Research on Health Outcomes, Comparative Eff...(andtheir patients to help them make bett...),Health

Over an 18-month period, the Partnership will support research to improve evidence on medical care, including the comparative effectiveness of alternative treatments and strategies for delivering care, by developing:

-- A summary and analysis of current methods for using electronic health information to support research on outcomes and effectiveness.

-- An assessment of the different data types available for such research, including but not limited to, clinical information which resides in electronic systems implemented primarily for care delivery, claims data, federal data systems, and information voluntarily provided by consumers for research--with their consent, through personal health records or other consumer-facing applications.

-- Consensus policies developed collaboratively with consumers and patients, providers, payers and researchers that will effectively address privacy and confidentiality concerns and build and maintain public trust for using electronic health information for research on outcomes and effectiveness.

-- A prototype distributed research network that tests and evaluates methods for using electronic health information for developing different kinds of evidence, while effectively protecting patient privacy.

-- A set of recommendations for the organization, governance, sustainability, privacy, and technical aspects of an operational distributed network to support outcomes and effectiveness research.

About the Joseph H. Kanter Family Foundation

The Joseph H. Kanter Family Foundation has played a critical leadership role in raising awareness of and advancing the creation of a National Health Outcomes Database, the research findings of which can be easily understood and accessed by patients and doctors. The Kanter Foundation's "Health Legacy Partnership" includes more than 300 partners including nationally recognized leaders,
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