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Internists address dual concerns of privacy and protection of health data
Date:10/18/2011

any limitations on withdrawing consent for use of data, including biological materials.

B. ACP recognizes that further study is needed to resolve informed consent issues related to future research use of Protected Health Information (PHI) and Individually Identifiable Health Information (IIHI) associated with existing data, including biologic materials.

C. Informed consent documents should clearly disclose whether law enforcement agencies would have access to biobank data without a warrant.

D. ACP recommends that regulations governing IRB review be expanded to include consideration of the preferences of research subjects whose tissue has been stored.

The paper also says that by including providers, governmental bodies, consumers, payers, quality organizations, researchers, and technologists, the resulting framework would clearly specify appropriate activities such as treatment, payment, and some health care operations where sharing of personal health information can proceed without the need for additional consent. Once the boundaries of appropriate data-sharing practices and situations are agreed on, it will be far easier to define consent requirements for appropriate activities.

"The patient-doctor relationship is dependent on trust and this extends to the personal information shared as part of that relationship," said Dr. Hood. "As U.S. health care moves from paper to an electronic world, a new national debate over privacy of individually identifiable health information (IIHI) has emerged. Patients need to feel confident that they can receive needed health care without the risk that their private information will be inappropriately disclosed, which might result in withholding of information and lead to potentially negative clinical consequences. Patients benefit when information pertinent to their care, concerns, and preferences is shared among those rendering health care services to them."

ACP strongly be
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Contact: David Kinsman
dkinsman@acponline.org
202-261-4554
American College of Physicians
Source:Eurekalert

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