Navigation Links
Interactive Autism Network opens its doors to adults with autism

The Kennedy Krieger Institute will commemorate the two-year anniversary of the Interactive Autism Network (IAN),, with the much-anticipated launch of its research initiative for adults and the unveiling of a more user-friendly, easily navigated online community. Launched in April 2007 as the first national autism registry, the IAN Project has become the largest pool of autism data in the world, with registration expected to reach 30,000 individuals during Autism Awareness Month.

Having already uncovered new insights and aided hundreds of research studies about children with autism, the IAN Project is now enrolling adults with autism in hopes of using the same proven research model to address the many unanswered questions about this underserved population. Adults with autism can now have their voices heard through the IAN Project in order to help researchers gain a clearer picture of how they are living today. Adult participation meets a significant unmet needwhile the number of adults living with autism grows every day, little is known about them. There hasn't been a comprehensive, national effort to find out what services adults with autism are in need of, or to document the ways they contribute to society. In fact, there is no official estimate of how many adults with autism are living in the U.S. today.

"By expanding the IAN Project beyond children, we will provide much-needed insight that will ultimately enable caregivers, the community, legislators, advocates and researchers to better serve adults with autism," said Dr. Paul Law, Director of the Interactive Autism Network at the Kennedy Krieger Institute in Baltimore, Maryland. "By surveying and registering adults with autism, the IAN Project will be able to gain a clearer picture of how adults with autism are living today, and connect them with researchers who are working to understand the disorder at all stages of life."

The IAN Project is also unveiling a new look for its online community, which with its unique model of information exchange and community interaction has facilitated the most comprehensive collection of evidence-based information on autism available to parents on the Web to date. The new design allows users to more easily navigate through the site, and highlights the depth of resources available to the autism community. From the community homepage, users can quickly see the most recent research articles written by prominent autism experts, the latest autism news and what discussions are currently taking place in the community forums.

"We're proud of the trusted, comprehensive resource we have created for the autism community. Because of the volume of participation in the site it became important to redesign the interface to make the wealth of information available through the IAN Project more accessible. The enhanced site will make it easier for stakeholders in the autism community to locate resources and connect with others affected by autism," said Dr. Law.

Additionally, the IAN Project continues to generate new insights into autism and shed light on issues of critical importance to the autism community. Research highlights from 2008 include:

  • Defining the Spectrum: Having meaningful autism spectrum diagnostic categories is essential to treatments and research. On March 18, 2009, the IAN Project published a paper in the Journal of Autism and Developmental Disorders that described the varied pattern of autism diagnosis across the country and over time (1994-2007). This information is being used by scientists to better define the best way to diagnose autism. Better autism diagnoses will lead to better treatments and more finely tuned research.

  • Parental Depression: More than 44 percent of mothers and 28 percent of fathers of children with autism report they have been professionally diagnosed with either depression or bipolar disorder at some point in their lives, with more than 50 percent reporting diagnosis before the birth of their child(ren) with autism. This statistic is striking when compared to the estimated lifetime prevalence in the U.S. population for major depressive disorder of 16.2 percent and for bipolar disorder of 1 to 2.1 percent.


Contact: Megan Lustig
Kennedy Krieger Institute

Related medicine news :

1. LodgeNet Healthcare Provides Industrys First Integrated High-Definition Interactive System for Hospitals
2. Physicians Interactive Acquires MedManage Systems
3. New, Interactive Health Web Site Provides Information About a Painful and Often Debilitating Condition Affecting Older Americans
4. GUMC researcher creates first Web-interactive CME course for physicians on pharmaceutical marketing
5. New Mobile Patient Communicator(TM) Gives Patients an Interactive Education Tool and Boosts Nurse Productivity
6. GetWellNetwork and KidsHealth(R) Launch New Interactive Patient Education Content for Pediatric Patients and Their Families
7. LodgeNet Healthcare Selected by M.D. Anderson Cancer Center to Provide Digital and Interactive Television Solution
8. Wake Forest Baptist and Rivulet Connect New Operating Rooms with Interactive Video
9. Cadient Interactives Will Reese to Discuss Strategies for Engaging Physicians Online at Eighth Annual ePharma Summit
10. U.S. News Media Group Expands Online Health Channel with Interactive Medical Expert Forum
11. Interactive virtual training at European Urology Forum in Davos
Post Your Comments:
(Date:6/26/2016)... ... , ... Brent Kasmer, a legally blind and certified personal trainer is helping to develop a ... fitness app plans to fix the two major problems leading the fitness industry today:, ... type program , They don’t eliminate all the reasons people quit their exercise ...
(Date:6/25/2016)... ... June 25, 2016 , ... The temporary closing of Bruton Memorial Library on June 21 ... brings up a new, often overlooked aspect of head lice: the parasite’s ability to live ... not a common occurrence, but a necessary one in the event that lice have simply ...
(Date:6/25/2016)... Oklahoma City, Oklahoma (PRWEB) , ... June 25, ... ... to helping both athletes and non-athletes recover from injury. Recently, he has implemented ... for the Oklahoma City area —Johnson is one of the first doctors to ...
(Date:6/24/2016)... ... June 24, 2016 , ... Those who have experienced ... feelings, many turn to unhealthy avenues, such as drug or alcohol abuse, as a ... has released tools for healthy coping following a traumatic event. , Trauma sufferers tend ...
(Date:6/24/2016)... ... June 24, 2016 , ... Global law firm Greenberg Traurig, P.A. announced that ... chosen by their peers for this recognition are considered among the top 2 percent ... special honors as members of this year’s Legal Elite Hall of Fame: Miami ...
Breaking Medicine News(10 mins):
(Date:6/26/2016)... , June 27, 2016  VMS Rehab Systems, Inc. ... will take whatever measures required to build a strong ... which is currently listed on the OTC Markets-pink current ... Chairman and CEO, "We are seeing an anomaly in ... understand, not only by the Company, but shareholders and ...
(Date:6/24/2016)... , June 24, 2016   Bay ... Rehabilitation Network,s Dean Center for Tick Borne ... Medicine and Rehabilitation, MIT Hacking Medicine, University of ... Innovation, today announced the five finalists of ... Lyme disease.  More than 100 scientists, clinicians, researchers, ...
(Date:6/24/2016)... and SAN CLEMENTE, Calif. , June ... -based mobile pulmonary function testing company, is now able to ... devices developed by ndd Medical Technologies , Inc. ... done in hospital-based labs.  Thanks to ndd,s EasyOne PRO ® , ... , can get any needed testing done in the comfort of ...
Breaking Medicine Technology: