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Interactive Autism Network opens its doors to adults with autism
Date:4/2/2009

The Kennedy Krieger Institute will commemorate the two-year anniversary of the Interactive Autism Network (IAN), www.IANProject.org, with the much-anticipated launch of its research initiative for adults and the unveiling of a more user-friendly, easily navigated online community. Launched in April 2007 as the first national autism registry, the IAN Project has become the largest pool of autism data in the world, with registration expected to reach 30,000 individuals during Autism Awareness Month.

Having already uncovered new insights and aided hundreds of research studies about children with autism, the IAN Project is now enrolling adults with autism in hopes of using the same proven research model to address the many unanswered questions about this underserved population. Adults with autism can now have their voices heard through the IAN Project in order to help researchers gain a clearer picture of how they are living today. Adult participation meets a significant unmet needwhile the number of adults living with autism grows every day, little is known about them. There hasn't been a comprehensive, national effort to find out what services adults with autism are in need of, or to document the ways they contribute to society. In fact, there is no official estimate of how many adults with autism are living in the U.S. today.

"By expanding the IAN Project beyond children, we will provide much-needed insight that will ultimately enable caregivers, the community, legislators, advocates and researchers to better serve adults with autism," said Dr. Paul Law, Director of the Interactive Autism Network at the Kennedy Krieger Institute in Baltimore, Maryland. "By surveying and registering adults with autism, the IAN Project will be able to gain a clearer picture of how adults with autism are living today, and connect them with researchers who are working to understand the disorder at all stages of life."


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Contact: Megan Lustig
mlustig@spectrumscience.com
202-955-6222
Kennedy Krieger Institute
Source:Eurekalert

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