Navigation Links
Inaugural Angioma Alliance Walk & 5K Run Honors Olympian & Hometown Hero, Florence Joyner
Date:9/22/2017

On Sunday, September 24, hundreds will gather at Flo Jo Park for the inaugural Angioma Alliance Walk and 5K honoring Olympian, Florence Joyner, still considered the fastest woman of all time. Flo Jo passed away from complications related to cerebral cavernous malformation (CCM). Flo Jo’s daughter, Mary Joyner, will sing the National Anthem. Mary was a contestant on the 2012 season of America’s Got Talent. The event will raise awareness of CCM and raise funds for Angioma Alliance, a national nonprofit organization dedicated to supporting people affected by the illness.

Angioma Alliance is seeking participants, sponsors, donations and volunteers. Event highlights include raffle, refreshments, kid’s activities and music. Registration is free. Raise/donate $35 and you will receive an event t-shirt. Raise/donate $100 and you will receive a free technical running shirt. Full details are available at http://www.tinyurl.com/flojowalk

About Cavernous Angioma
Cavernous angiomas are abnormal mulberry-shaped leaky blood vessels in the brain and spinal cord. They are also known as cavernous malformations or cavernomas and the condition is referred to as CCM. Cavernous angiomas can hemorrhage and grow, potentially causing severe neurological deficits, epilepsy, and death. Cavernous angiomas can become active at any age. 1 in 500 people is affected.

Cavernous angiomas can occur either sporadically, or they may be inherited due to a genetic mutation. An affected parent who has the hereditary form of the mutation has a 50/50 chance of passing the illness on to their children. The only known treatment is brain or spinal cord surgery, but this isn’t an option for everyone.

About Angioma Alliance
Angioma Alliance, founded in 2002, is a national 501c3 nonprofit patient advocacy and research organization whose mission is to inform, support and empower individuals affected by cavernous angioma and drive research for better treatments and a cure. For more information about Angioma Alliance and cavernous angiomas, visit http://www.Angioma.org.

Interviews Available
Mary Joyner, Angioma Alliance executive staff, volunteers who are personally affected by CCM, and renowned medical experts are available for interviews.

Read the full story at http://www.prweb.com/releases/2017/09/prweb14724560.htm.


'/>"/>
Source: PRWeb
Copyright©2017 Vocus, Inc.
All rights reserved


Related medicine news :

1. Inaugural State of the Science Symposium Provides Forum to Outline Consensus on Seafood Nutrition, Sept. 20
2. Sellers Dorsey Managing Director Gary Jessee to Provide Perspective on Long-Term Services and Supports at Inaugural LG Access Summit
3. LabRoots Selects Winner for Inaugural STEM Scholarship Program
4. The Foundation for Art & Healing Launches Inaugural Online Film Festival to Tackle the National Epidemic of Loneliness
5. Curology Releases Inaugural Survey on State of Acne in America
6. American Veterinarian™ to Release Inaugural 2017 Issue in February
7. Inaugural Global CME Impact Award Winner Announced; AXDEV Group recognized for Continuing Medical Education Excellence and Innovation
8. Ultimate Medical Academy Announces Inaugural K-20 Education Summit Speaker; Reminds Educators and Education Leaders to Submit Proposals to Present on “all means ALL”
9. Cloudbreak Health Presenting its Unified Telehealth Platform at 2017 Inaugural UCSF Digital Orthopaedics Conference
10. Ultimate Medical Academy to Host Inaugural K-20 Education Summit and Issues Call for Proposals from Educators and Education Leaders to Present on “all means ALL”
11. Nearly $200,000 Raised at Inaugural Swirl: New York City Wine Tasting Event to Benefit the Lymphoma Research Foundation
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... ... October 13, 2017 , ... Global Healthcare Management’s 4th Annual Kids Fun ... NJ. This free event, sponsored by Global Healthcare Management’s CEO, Jon Letko, is ... is geared towards children of all ages; it is a non-competitive, non-timed event, which ...
(Date:10/13/2017)... ... 13, 2017 , ... “The Journey: From the Mountains to the Mission Field”: ... souls in the Philippines. “The Journey: From the Mountains to the Mission Field” is ... Bible. She has taught all ages and currently teaches a class of ladies at ...
(Date:10/12/2017)... ... October 12, 2017 , ... Planet Fitness, one of the ... today its plans to open a flagship location in Covington, LA at 401 N. ... To Go store next to Office Depot in the Holiday Square shopping center. Its ...
(Date:10/12/2017)... ... 2017 , ... Asante, a nationally recognized health system in ... existing home health joint venture through an agreement, effective October 1, 2017, to ... home health company with Asante, delivering clinically integrated care, for the past eight ...
(Date:10/12/2017)... ... October 12, 2017 , ... Leading pediatric oncology experts at ... for the 49th Congress of the International Society of Paediatric Oncology (SIOP) ... Center for Cancer and Blood Disorders at Children’s National, and Stephen P. ...
Breaking Medicine News(10 mins):
(Date:10/11/2017)... -- Caris Life Sciences ® , a leading innovator in ... medicine, today announced that St. Jude Medical Center,s Crosson ... as its 17 th member. Through participation with ... Institute will help develop standards of care and best ... cancer treatment more precise and effective. ...
(Date:10/10/2017)... , Oct. 10, 2017  NDS received FDA 510(k) clearance in ... medical-grade battery-powered display stand specifically designed for endoscopy environments. An innovative ... into a clinical solution to support the improvement of patient outcomes, ... Design ... Solution ...
(Date:10/5/2017)... Oct. 5, 2017  In response to the ... and Maxillofacial Surgeons (AAOMS) released prescribing recommendations that ... be used as a first-line therapy to manage ... Recognizing the value and ... Paper "Opioid Prescribing: Acute and Postoperative Pain Management" ...
Breaking Medicine Technology: