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In Letter to Congress, NORD Urges Action on Healthcare Reform
Date:7/31/2009

ents must be protected against catastrophic out-of-pocket costs and annual or lifetime insurance caps. Third, health reform must include tax credits and other direct financing support sufficient to assure that lower and middle income patients can afford coverage.

We recognize and accept that with these critically important health care benefits comes an individual responsibility to purchase health insurance. Moreover, NORD will be a constructive force in supporting measures that provide for necessary savings and revenues to ensure that these benefits are paid for and managed in a fiscally prudent fashion.

We are pleased that many Congressional leaders are pursuing policies that achieve NORD's principles. While comprehensive federal health reform cannot be all things to all people, it must not be an empty promise to Americans, including those who currently suffer from, and those who will develop, rare diseases.

Finally, we understand and accept that compromises will be made as health reform legislation makes its way through the legislative process. While the basic patient protections outlined above are fundamental to any reform, we recognize that there will be design approaches that would not be our first choice. However, we pledge that we will not allow the perfect to be the enemy of the good. To be clear, though, we also strongly believe that failure to act is an explicit policy choice to preserve the unacceptable status quo. Such a choice has dire access and cost consequences that are intolerable for individuals, families, and the country.

We thank you for your commitment to meaningful health reform. We are eager to work with you to assure passage of legislation that makes health insurance affordable and accessible for every American, regardless of health status.

Sincerely,

Peter L. Saltonstall

President and CEO

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SOURCE National Organization for Rare Disorders (NORD)
Copyright©2009 PR Newswire.
All rights reserved

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