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In Germany, children with cancer have a high probability of survival
Date:11/24/2009

mours.

There is also a lack of studies that systematically investigate "long-term consequences" of disease and therapy, although this does not apply to second tumours. The German Childhood Cancer Registry records not only all primary tumours but second tumours as well. Children and adolescents who have survived cancer are 10 to 20 times more likely to develop a tumour again than the general population. A similarly high risk is also reported in international studies.

Infrastructure: lack of quality indicators

Part of IQWiG's commission was also concerned with examining the existing quality of procedures and infrastructure. Up till now, however, there have been no defined quality indicators in paediatrics or paediatric haemato-oncology in Germany.

IQWiG did find indications of some aspects of infrastructure, such as a parent staying with their child in hospital or the value of music therapy in the management of the disease (often based on narrative overviews). However, the Institute cannot draw a general conclusion concerning specific aspects of infrastructure, as there are only a few studies. The results often refer exclusively to the large centres or are partially out of date.

More studies are necessary as well as a discussion on quality

Further studies are urgently needed. This particularly refers to the following patient-relevant outcomes that up till now have been neglected in studies: "quality of life", "pain", and "long-term consequences". Only then can it be determined whether the evidence gaps are actually concealing deficits in care.

It is also vital to continue the discussion on indicators that can measure quality of infrastructure and procedures. Uniform indicators must be applied across Germany if the success of quality assurance measures used to date are to be evaluated.


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Contact: Dr. Anna-Sabine Ernst
info@iqwig.de
49-022-135-6850
Institute for Quality and Efficiency in Health Care
Source:Eurekalert

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