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Immune Deficiency Foundation Praises ACHDNC Recommendation for SCID Screening in Newborns
Date:1/25/2010

ees, "I have to say I am immensely pleased with the recommendation of the committee."

In addition to the IDF, the Jeffrey Modell Foundation and members of the public whose children were affected with SCID argued in favor of SCID screening. One child born in Wisconsin, where pilot SCID screening is ongoing, was diagnosed at 9 days of age and successfully cured by timely bone marrow transplantation, while another child born in Oregon, where screening does not take place, developed failure to thrive and multiple infections and did not survive.

"Our goal is to have Newborn Screening for SCID passed in all 50 states," said Heather Smith, co-founder of SCID Angels for Life, who lost her six-month-old son, Brandon, to this devastating disease.

"We have already lost way too many children to this disease," Ms. Smith concluded, "and newborn screening is the only way we can put an end to the pain and suffering these children are forced to endure."

The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. For information on this media release, please contact Marcia Boyle, president, at 410-321-6647 or idf@primaryimmune.org. For further information please visit the IDF website at www.prim
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SOURCE Immune Deficiency Foundation
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