Navigation Links
Immune Deficiency Foundation Honors Cerda Family and Volunteers From ABC's 'Extreme Makeover: Home Edition'
Date:5/11/2009

In the U.S., there are approximately 250,000 people diagnosed with primary immunodeficiency disease and thousands more go undetected.

Primary immunodeficiency diseases occur in patients born with an immune system that is either absent or poorly functioning. There are over 150 different types of PIDD, all caused by genetic or intrinsic defects. People with PIDD live their entire lives more susceptible to infections -- enduring recurrent health problems and often developing serious and debilitating illnesses. With early diagnosis and appropriate therapies, many patients can live healthy and productive lives. Although some PIDD manifest in infancy or early childhood, some forms can occur in any decade of life.

Primary immunodeficiency diseases were a recent topic on Capitol Hill in Washington, D.C., where Representatives Israel (D-NY), Brady (R-TX) and Schwartz (D-PA), and Senators Kerry (D-MA) and Alexander (R-TN), introduced the Medicare Patient IVIG Access Act of 2009 (H.R. 2002 and S. 701 respectively) - meant to remedy inadequate Medicare reimbursements for intravenous immune globulin (IVIG), and allow home infusion of IVIG for Medicare beneficiaries with PIDD. IVIG is a life-saving and life-enhancing therapy for tens of thousands of patients with primary immunodeficiency diseases, including Terri Cerda and her daughters. As a result of very high co-pay costs and inadequate reimbursement by Medicare, Cerda has not been able to receive her bimonthly infusions of IVIG for over five months, leaving her to constantly live in fear of an infection that could hinder her ability to care for her daughters.

"Much like the Cerda family's home makeover, we need an extreme makeover of policies in Washington that are blocking patient access to IVIG," added Boyle.

About the Immune Deficiency Foundation

The Immune Deficiency Foundation is the national patient organization dedicated to imp
'/>"/>

SOURCE Immune Deficiency Foundation
Copyright©2009 PR Newswire.
All rights reserved

Page: 1 2 3

Related medicine news :

1. Researcher IDs Narcolepsy as Autoimmune Disease
2. Narcolepsy is an autoimmune disorder, Stanford researcher says
3. 7 Top Rated Immune Support Products from Swanson Vitamins
4. Ingredient in Probiotic Sweetener Boosts Immune System
5. Scientists discover how to improve immune response to cancer at Princess Margaret Hospital
6. New Bill Offers Medicare Reimbursement Fix for Intravenous Immune Globulin
7. Instead of fighting breast cancer, immune cell promotes its spread
8. Frost & Sullivan and International Safety Equipment Association (ISEA) Present a Webinar on the Economy: Personal Protective Equipment Industry - Immune to Global Slowdown?
9. HIV handicaps itself to escape immune system pressure
10. Not just a long-distance relationship: Immune cells in skin fight off infection better than the rest
11. Cigarette smoke may alter immune response in COPD exacerbations
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:4/14/2014)... treat children with uncomplicated acute appendicitis is a reasonable ... fewer missed school days, according to a pilot study. ... Hospital and published online April 12 in the ... the first prospective study on nonoperative management of acute ... , Researchers enrolled 77 patients age 7 to 17 ...
(Date:4/14/2014)... 2014, Perth, Australia. Drug discovery company Proteomics International ... of a companion diagnostic (CDx) test with the ... The research team authenticated the panel of biomarkers ... samples. Seven biomarkers were validated at high stringency ... The mass spectrometry data was then cross-validated using ...
(Date:4/14/2014)... 2014) When it comes to the cost and ... Patients get the best care when they are treated ... extensive experience in their current job, according to a ... and Columbia Business School. The study was published in ... Applied Economics . , The review of more ...
(Date:4/13/2014)... STANFORD, Calif. A low-cost empowerment program for ... and sexual harassment of these girls, who live ... and are frequently attacked, a large new study ... Stanford University School of Medicine, Lucile Packard Children,s ... No Worldwide, validated the program,s effectiveness in combating ...
(Date:4/11/2014)... the processes that control brain cell production could pave ... brain-related disorders. , Scientists have gained new understanding of ... how and when nerve and brain cells are formed ... and keeps it healthy. Their findings could help explain ... which is a fundamental characteristic of many diseases including ...
Breaking Medicine News(10 mins):Health News:Antibiotics alone are a successful treatment for uncomplicated acute appendicitis in kids 2Health News:Antibiotics alone are a successful treatment for uncomplicated acute appendicitis in kids 3Health News:Longer nurse tenure on hospital units leads to higher quality care 2Health News:Empowerment program greatly decreases incidence of rape, Stanford/Packard-led study finds 2Health News:Empowerment program greatly decreases incidence of rape, Stanford/Packard-led study finds 3Health News:Empowerment program greatly decreases incidence of rape, Stanford/Packard-led study finds 4
... Male high school athletes more likely to drink and fight ... News) -- When it comes to teaching healthy behaviors, boys, ... thought. , New research suggests that for teenage boys, participation ... and binge drinking. , Girls, on the other hand, ...
... Study finds medication works as well in certain people, ... -- People suffering from blocked renal arteries fare just ... by having the narrowed artery opened and a stent ... chronic kidney disease -- people with severe hypertension -- ...
... ... employment and networking portal for people with disabilities and renews its commitment to leading the ... ... recently passed a milestone, the one year anniversary of the launch on November 7, 2008 ...
... Announces VSO Support For Lung Cancer Legislation , ... all veterans today on Veterans Day and announces the ... veterans on lung cancer -- the leading cause of ... ) , LCA also announces that major ...
... Near 9% Unemployment Leaves More Idaho Families Struggling with ... , BOISE, Idaho, Nov. 11 As Idaho,s jobless ... the over 67,300 unemployed Idahoans finding themselves without employer benefits. ... is calling on Idaho,s Congressional delegation to set politics aside ...
... Nov. 11 Accelify is proud to announce the addition of ... of Development in the State of Florida and will also join ... Accelify, Sandra served for eight years as a member of the ... During her time in the Florida legislature, she personally sponsored ...
Cached Medicine News:Health News:Boys' Team Sports May Encourage Bad Behavior 2Health News:Boys' Team Sports May Encourage Bad Behavior 3Health News:Surgery Not Always Best for Narrowed Kidney Arteries 2Health News:Surgery Not Always Best for Narrowed Kidney Arteries 3Health News:GettingHired.com Recognizes First Year Anniversary, Renews Commitment to Helping Lead the Effort to Reduce Employment Participation Gap for People with Disabilities 2Health News:GettingHired.com Recognizes First Year Anniversary, Renews Commitment to Helping Lead the Effort to Reduce Employment Participation Gap for People with Disabilities 3Health News:Lung Cancer Alliance Salutes Veterans 2Health News:Idaho's Rising Jobless Rate Fuels State's Growing Health Care Woes 2Health News:Accelify Announces the Addition of Sandra L. Murman to its National Board of Advisors 2Health News:Accelify Announces the Addition of Sandra L. Murman to its National Board of Advisors 3
(Date:1/15/2014)... Mass. , Jan. 15, 2014  Zafgen, ... the unmet needs of severely obese patients, today ... of beloranib, a selective inhibitor of methionine aminopeptidase ... a severe form of genetic obesity.  These results ... body composition, including reductions in body fat content ...
(Date:1/14/2014)... The Brandeis Medical Center, led by Dr. ... a premier and affordable laser tattoo removal experience with the ... Brandeis, focus is in providing high quality cosmetic services with ... all patients. " Southern California ... regret and patients seeking removal for those unwanted tattoos," said ...
(Date:1/14/2014)... NineSigma , Inc., the leading innovation ... Leadership Summit , May 14-16, 2014 at the Global ... . This is the premier ... breakthrough achievements through open innovation. Participants will learn how ... disciplines and even across industries. NineSigma ...
Breaking Medicine Technology:Zafgen Announces Initial Results from Phase 2a Study of Beloranib in Patients with Prader-Willi Syndrome 2Zafgen Announces Initial Results from Phase 2a Study of Beloranib in Patients with Prader-Willi Syndrome 3Zafgen Announces Initial Results from Phase 2a Study of Beloranib in Patients with Prader-Willi Syndrome 4Beverly Hills Physician Features Tattoo Removal with the Astanza Duality Laser, Offers $99 Special 2Expect the Unexpected from Leading Global Innovators at NineSigma Leadership Summit, Sharing Winning Strategies to Advance Innovation 2Expect the Unexpected from Leading Global Innovators at NineSigma Leadership Summit, Sharing Winning Strategies to Advance Innovation 3Expect the Unexpected from Leading Global Innovators at NineSigma Leadership Summit, Sharing Winning Strategies to Advance Innovation 4
... TC-PLUS Solution tricompartmental total knee prosthesis stems ... arthroplasty. State-of-the-art design and manufacturing technologies have ... biomechanical function as well as a favorable ... insert to keep wear to a minimum. ...
... The TC-PLUS Solution tricompartmental total knee prosthesis ... knee arthroplasty. State-of-the-art design and manufacturing technologies ... optimum biomechanical function as well as a ... tibial insert to keep wear to a ...
... Knee System is a long term, quality ... Available in both posterior stabilized and anatomically ... System provides the flexibility needed to address ... ease of identification keeps the user in ...
... a long term, quality solution based on ... posterior stabilized and anatomically correct cruciate retaining ... flexibility needed to address patients' needs. In ... keeps the user in mind and promotes ...
Medicine Products: