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Immune Deficiency Foundation Among the First Rare Disease Patient Organizations to Launch Major Social Networking Initiatives
Date:10/6/2009

TOWSON, Md., Oct. 6 /PRNewswire/ -- People with primary immunodeficiency diseases (PIDD) and their families will now be able to connect with one another and share their experiences through a new multidimensional social networking initiative, the Immune Deficiency Foundation (IDF) announced today. Primary immunodeficiency diseases are a group of rare, chronic illnesses, caused by hereditary or genetic defects in the immune system. In the U.S., approximately 250,000 people are diagnosed with PIDD, with thousands more undetected. By reaching out to this community, IDF is one of the first rare disease patient groups to make full use of social media tools and technologies.

"We are creating a living, breathing online community, where patients and families can share their experiences, hopes and challenges of living with PIDD," said IDF founder and president Marcia Boyle. "It is easy to feel lost among the millions who use popular social media sites like Facebook - especially if you are someone with a rare disease. Now, our patients and families have a trusted social networking community they can call their own and find others who share their particular primary immunodeficiency disorder or life circumstance."

IDF's social network includes:


SOURCE Immune Deficiency Foundation
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