Navigation Links
How to boost Hispanics' participation in clinical trials? Relate to them, Moffitt study shows
Date:6/26/2013

Hispanic cancer patients rarely participate in clinical trials, but researchers want to tailor a Spanish DVD to help change this. To create a relevant educational tool, Moffitt Cancer Center researchers investigated why awareness of and participation in trials are so low in this population.

Using focus groups with 36 Spanish-speaking cancer survivors from Tampa and Puerto Rico, researchers found that a language barrier, as well as a cultural idea that only doctors, not patients, guide treatment decisions, may help account for low participation rates.

Looking for ways to improve knowledge and participation for Hispanic patients, the researchers used feedback from the focus groups to help develop a Spanish booklet and video to educate and empower patients to participate in treatment decisions.

The study was published online in May by the Journal of Health Communication: International Perspectives.

The 45.5 million Hispanics living in the United States are the nation's fastest growing ethnic group, and there is a need to develop health care educational materials that target their language and culture. These educational materials should not be merely translated from English, the researchers said, but should be adapted to meet the group's informational needs in a culturally appropriate way.

"We found that Hispanic patients who prefer information in Spanish had different informational needs and concerns than non-Hispanic patients," said study lead author Gwendolyn P. Quinn, Ph.D., scientific director of the Survey Methods Core Facility and member of the Health Outcomes and Behavior Program at Moffitt. "Keeping that in mind, we developed educational materials using a social marketing approach, which targets a specific audience instead of creating a generic product for everyone. This approach increases the chances a patient may relate to the material, making their behavior change more likely."

The social marketing intervention in this study was aimed at increasing clinical trial participation by Hispanic patients. However, the researchers found several examples of culturally based ideas that may have kept patients from enrolling in a clinical trial. For example, there was confusion among Hispanic patients over why a doctor would ask them to make a treatment decision, such as participating in a clinical trial. The prevailing cultural idea, they found, was that Hispanic patients had a core belief that the doctor will tell them what to do. Also in Hispanic culture, the patient relies on his or her family to help make health care decisions.

Their research shows a need to present culturally tailored information for specific audiences. The researchers are using the Spanish video and booklet in a randomized clinical trial to evaluate the effectiveness in improving the clinical trials perceptions of Spanish-speaking cancer patients.

"We feel the educational materials we developed will empower Hispanic patients by improving their capacity to make health care decisions, such as enrolling in a clinical trial," explained Quinn. "They may say no, but they will be prepared with knowledge about the purpose of clinical trials and will not be making an uninformed decision."


'/>"/>

Contact: Kim Polacek
kim.polacek@moffitt.org
813-745-7408
H. Lee Moffitt Cancer Center & Research Institute
Source:Eurekalert

Related medicine news :

1. Teen Drinking May Boost Odds of Precancerous Breast Changes
2. Common Plastics Chemical Might Boost Diabetes Risk
3. Live imaging shows response to cancer drugs can be boosted by altering tumor microenvironment
4. Letting go can boost quality of life
5. Gatekeeper of brain steroid signals boosts emotional resilience to stress
6. Strength Training May Give Boost to Seniors Brains
7. Exercise Plus Computer Time May Boost Seniors Brains
8. Exercise May Boost Survival in Breast, Colon Cancer Patients
9. A*STAR scientists discover switch to boost anti-viral response to fight infectious diseases
10. Email Vacations Boost Job Productivity, Lower Stress: Study
11. Chronic Heartburn May Boost Risk for Esophageal Cancer
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/11/2016)... , ... February 11, 2016 , ... ... for nominations seeking candidates for the Board of Commissioners. Individuals interested in volunteer ... and experience with diversity of clinical practice settings and across allied health to ...
(Date:2/11/2016)... ... February 11, 2016 , ... Greenfield Insurance Group in Orange ... assist the people of their local community. The agency pledges to select a ... Their hope is to bring awareness to important local causes with fundraising and ...
(Date:2/11/2016)... ... 11, 2016 , ... Duterte Insurance Group, serving the families ... new charity campaign to raise funds for Ronald McDonald House Charities. On behalf ... . , Ronald McDonald House (RMH) is an internationally renowned nonprofit organization which ...
(Date:2/11/2016)... ... February 11, 2016 , ... Be Well Medical Group (Be ... of Old Town at 108 South Columbus St, Suite 201, Alexandria, VA. Be Well ... medical care in the convenience of their homes, offices or at the practices’ local ...
(Date:2/11/2016)... CO. (PRWEB) , ... February 11, 2016 , ... ... people have become more actively engaged in health and wellness best practices in ... importance of riding this trend. February is American Heart Month, which acts as ...
Breaking Medicine News(10 mins):
(Date:2/11/2016)... -- AfterPill.com is reporting that this week,s Centers for Disease ... who are at risk of unintended pregnancy impacts 43 ... the risks of unprotected sex in particular.  ... the Guttmacher Institute, there are 43 million women in ... have sex without the intention of becoming pregnant.  Despite ...
(Date:2/11/2016)... 11, 2016  Proliant Biologicals is proud to announce ... (BSA) manufacturing facility.  The facility is located on the ... in Feilding. Boone , Iowa.  ... duplicate the systems in the U.S. facility, with critical ... U.S. installations.  --> Boone ...
(Date:2/11/2016)... , Feb. 11, 2016 Brain Cancer ... treatment method at West Cancer Center . ... fields to inhibit cancer cell replication causing death of ... than a decade to show a significant extension in ... (GBM) patients. Currently, West Cancer Center is the only ...
Breaking Medicine Technology: