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How One N.Y. Family Met the Challenge of an Oral Birth Defect
Date:12/31/2012

we had to hold it a certain way. When he started eating solids, I had to put them in the corner of his mouth so they wouldn't go in the hole. It was a little frustrating."

But what's been more frustrating at times, she said, is that the insurance companies have not always understood that her son isn't undergoing any of his treatments for purely cosmetic reasons. She's had trouble getting reimbursement for braces, she said, even though they're medically indicated.

"It's not cosmetic, it's medical," she said.

"My advice to other parents is to push," Morales-Patterson said. "Be very pushy if you need to be."

She also noted the information and support groups available through the Cleft Palate Foundation.

"It's good to have someone to talk to so you know you're not there by yourself," she said. "And, they even have support groups for the kids."

More information

Find out more about the causes and treatment of oral birth defects here.

SOURCE: Angela Morales-Patterson, Clay, N.Y.


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