Navigation Links
How One N.Y. Family Met the Challenge of an Oral Birth Defect
Date:12/31/2012

By Serena Gordon
HealthDay Reporter

MONDAY, Dec. 31 (HealthDay News) -- Angela Morales-Patterson first knew something was wrong when she heard a nurse gasp just after delivery of her baby.

Her son, Elijah Patterson, now 13, was born with a cleft lip and palate.

"I had expected everything to be fine," she said. "Then I heard a gasp from one of the nurses, but no one told us anything. Finally, they told us he'd been born with a cleft lip and palate and explained everything to us. As a new mom, you don't expect anything to happen to your child. It was a lot to take in."

What Patterson hadn't realized was that the surgery she had while in college, to fix what her mother referred to as a hairlip, was actually done to repair a very slight cleft lip -- something that an aunt had also had. Morales-Patterson, who lives in Clay, N.Y., has since had a second son, who was not born with either a cleft lip or palate.

Elijah had his first surgery when he was about 3 months old, his mother said. His cleft palate wasn't repaired until he was about 2 years old. He's also had to have tubes surgically placed in his ears numerous times.

"I've lost count of how many surgeries he's had," she said. "The ear tubes really help the ears drain so they're not in pain."

Morales-Patterson said that when the doctors were first telling her about the birth defects, they ran down a "scary list" of other things her child might have, such as hearing problems or heart conditions, but fortunately, she said, he's had none of them.

He did have a bone graft surgery in third grade, and he'll soon be going for another procedure on his lip to try to improve the way it looks. Once he reaches high school, she said, he'll need another surgery to realign his jaw. He's also needed to wear braces and have speech therapy.

At first, she said, it was tough. "Feeding was very difficult," she recalled. "We had a special bottle, and we had to hold it a certain way. When he started eating solids, I had to put them in the corner of his mouth so they wouldn't go in the hole. It was a little frustrating."

But what's been more frustrating at times, she said, is that the insurance companies have not always understood that her son isn't undergoing any of his treatments for purely cosmetic reasons. She's had trouble getting reimbursement for braces, she said, even though they're medically indicated.

"It's not cosmetic, it's medical," she said.

"My advice to other parents is to push," Morales-Patterson said. "Be very pushy if you need to be."

She also noted the information and support groups available through the Cleft Palate Foundation.

"It's good to have someone to talk to so you know you're not there by yourself," she said. "And, they even have support groups for the kids."

More information

Find out more about the causes and treatment of oral birth defects here.

SOURCE: Angela Morales-Patterson, Clay, N.Y.


'/>"/>
Copyright©2012 ScoutNews,LLC.
All rights reserved  

Related medicine news :

1. NewsWatch features Hyatt Hotel and The Michael Mondavi Family's "Canvas Art of Wine" iPad App on AppWatch
2. Mesothelioma Victims Center Will Be Open During The Holidays To Make Certain All Victims Of Mesothelioma or their Family Members Get To The Best Mesothelioma Law Firms
3. New Research Survey Indicates That Natural Family Planning Method CycleBeads® Helps Women Planning Pregnancies
4. Mesothelioma Victims Center Now Offers to Help Family Members of a US Navy Veteran or Individual Who Passed Away from Mesothelioma Get to the Best Mesothelioma Attorneys
5. Family Meals Encourage Kids to Eat More Veggies, Fruit: Study
6. NYS Athletic Trainers’ Association Collaborating with NYS Academy of Family Physicians at Annual Winter Weekend Conference
7. This Holiday Season, Family and Friends of People with Breathing Problems are Choosing the Ideal Gift for Monitoring Lung Health: the Spiro PD Personal Spirometer
8. Family Grapples With Kids Tech Time
9. Patients with family history of colorectal cancer may be at risk for aggressive form of the disease
10. Southport Family Dental Expands Team with New Dentist
11. Family Counseling & Crisis Intervention Services in the US Industry Market Research Report from IBISWorld has Been Updated
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
How One N.Y. Family Met the Challenge of an Oral Birth Defect
(Date:6/25/2016)... ... June 25, 2016 , ... First Choice Emergency Room , the ... Ogunleye, as the Medical Director of its new Mesquite-Samuell Farm facility. , “We ... new Mesquite location,” said Dr. James M. Muzzarelli, Executive Medical Director of First Choice ...
(Date:6/25/2016)... ... June 25, 2016 , ... Dr. Calvin ... injury. Recently, he has implemented orthobiologic procedures as a method for treating his ... of the first doctors to perform the treatment. Orthobiologics are substances that orthopaedic ...
(Date:6/25/2016)... ... June 25, 2016 , ... Conventional wisdom preaches the benefits of ... of the latter, setting the bar too high can result in disappointment, perhaps even ... progress toward their goal. , Research from PsychTests.com reveals that behind ...
(Date:6/24/2016)... ... June 24, 2016 , ... Those who have experienced ... feelings, many turn to unhealthy avenues, such as drug or alcohol abuse, as a ... has released tools for healthy coping following a traumatic event. , Trauma sufferers tend ...
(Date:6/24/2016)... ... June 24, 2016 , ... Marcy was in a crisis. Her son James, eight, ... at his family verbally and physically. , “When something upset him, he couldn’t control his ... it. He would throw rocks at my other children and say he was going to ...
Breaking Medicine News(10 mins):
(Date:6/24/2016)... 24, 2016  Arkis BioSciences, a leading innovator ... more durable cerebrospinal fluid treatments, today announced it ... funding is led by Innova Memphis, followed by ... private investors.  Arkis, new financing will accelerate the ... market release of its in-licensed Endexo® technology. ...
(Date:6/23/2016)... 23, 2016 Any dentist who has made an ... current process. Many of them do not even offer this ... and high laboratory costs involved. And those who ARE able ... such a high cost that the majority of today,s patients ... Parsa Zadeh , founder of Dental Evolutions Inc. and ...
(Date:6/23/2016)... , June 23, 2016 Roche (SIX: RO, ... clearance for its Elecsys BRAHMS PCT (procalcitonin) assay as ... or septic shock. With this clearance, Roche is the ... fully integrated solution for sepsis risk assessment and management. ... bacterial infection and PCT levels in blood can aid ...
Breaking Medicine Technology: