Navigation Links
Households with kids with autism likely to earn less
Date:4/1/2008

New research suggests that the average household with children with autism not only spends thousands of dollars toward educational, behavioral and health care expenses each year, but also suffers from a lesser-known cost that hits them up front a sizeable chunk of missed household income, perhaps as much as $6,200 annually.

The study, published in Aprils edition of Pediatrics, paints a more detailed financial picture of how expensive life can become for parents of children with an autism spectrum disorder.

To our knowledge, this is the first U.S. study that examines this front half of the money in, money out equation, said economist Guillermo Montes, Ph.D., the studys lead author and a senior researcher at the Childrens Institute, a not-for-profit organization affiliated with the University of Rochester, where he also serves as a faculty member in the division of General Pediatrics. To collect data on expenses is fairly straightforward its a survey report. But projecting earning potential and then stacking that against actual income requires complex statistical modeling.

The study is based on data from the National Household Education Survey on After School Programs and Activities in 2005, a telephone questionnaire that drew on parents of more than 11,000 children, kindergarten-age through eighth grade. Parents reported if their child had an autism spectrum disorder, or ASD (that is, if he or she had ever been diagnosed with autism or a pervasive developmental disorder), their total household income and their highest level of education. Several other demographic details were collected, including the parents age, type of family (two parent or otherwise) and whether they lived in an urban or rural locale.

These data were then analyzed with a statistical model that predicted, on average, a familys earning potential.

To validate the models predictive power, researchers first used it to project the average income potential for households without children on the autism spectrum. This estimate was then compared to their average actual reported earnings. The model was within a 0.1 percent error, thus providing reasonable accuracy.

We were able to forecast within $80 of what these households, on average, were actually earning, Montes said.

When the demographic and educational characteristics of families with children with ASD were analyzed, their average actual reported annual income fell short of the average predicted income by more than $6,200.

Thats a staggering 14 percent loss, Montes said. We presume this may be strongly related to a lack of appropriate community-based support resources and services. This shortage can ultimately overwhelm parents, sometimes forcing them to sacrifice work and income opportunities for the sake of balancing their unique family obligations.

This echoes findings from another nationally representative study Montes led in 2006: Fathers of autistic children were 9 percent less likely to report full-time employment compared to fathers of the non-autistic population.

The ripple effect, of course, is that this may be impoverishing some ASD-affected families in the long term. Less savings and less investment make it more difficult to retire comfortably or send children to college, Montes said.

The next step, he said, is to carry out additional qualitative surveys, interviewing parents to see if their childrens needs are actually impacting their employment decisions.

Of course, there may be alternative explanations. As more research probes possible genetic links for autism, perhaps well see that the disorder might, to a degree, run in families. That might affect a parents employment and income status even more directly than we assume at present. There may also be other barriers to employment that we havent considered, Montes said.

Regardless of the reason, the burden to families is significant. Data collected from 1999 to 2000 showed that each year U.S. taxpayer dollars collectively pay $12,773 of the annual education expenses associated with each child with autism. In spite of this assistance, ASD-affected families still bore the brunt of the financial burden. Between un-actualized income (again, estimated near $6,200) and extensive out-of-pocket ASD-related expenditures one 2006 national study from the University of Rochester estimated that these families paid nearly $5,300 more than other families this direct-to-family cost may exceed $11,000 each year.

More assessment is needed, but in the meantime its sensible for health care providers to ask families about financial difficulties and, whenever possible, assist them in accessing the resources they need, Montes said.


'/>"/>

Contact: Becky Jones
rebecca_jones@urmc.rochester.edu
585-275-8490
University of Rochester Medical Center
Source:Eurekalert

Related medicine news :

1. Research may unlock mystery of autisms origin in the brain
2. The Philadelphia Walk Now for Autism Expected to Draw 10,000 Walkers and Raise $1 Million to Help Find Answers About the Nations Fastest-Growing Developmental Disorder
3. Rain Man mice provide model for autism
4. Houston Texans Star Players Ahman Green and Matt Schaub Help Easter Seals, Avondale House and Local Families Tackle Autism
5. Study shows autism symptoms can improve into adulthood
6. Brain Imaging Expert Recruited to Study Autism at The Childrens Hospital of Philadelphia
7. USC granted $8.4 million for autism research
8. Autism Speaks Applauds Supreme Court Decision Upholding Families Right to Challenge IEPs Without First Trying Out School District Proposed Placement
9. Reliant Energy, Houston Texans Ahman Green and Matt Schaub Team to Hold News Conference, Book Signing to Raise Awareness about Autism
10. Jenny McCarthy Featured at National Autism Conference in Atlanta, November 9
11. San Francisco Bay Area Autism Speaks Chapter Endorses Blue Ribbon Commission on Autism Recommendations for Equitable Insurance Coverage for Children With Autism
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/25/2016)... ... 25, 2016 , ... Conventional wisdom preaches the benefits of moderation, whether it’s ... setting the bar too high can result in disappointment, perhaps even self-loathing. However, those ... goal. , Research from PsychTests.com reveals that behind the tendency to ...
(Date:6/24/2016)... ... June 24, 2016 , ... Marcy was in a crisis. Her son James, eight, was out ... family verbally and physically. , “When something upset him, he couldn’t control his emotions,” remembers ... would throw rocks at my other children and say he was going to kill them. ...
(Date:6/24/2016)... ... June 24, 2016 , ... Comfort Keepers® of San ... Society and the Road To Recovery® program to drive cancer patients to and from ... adults to ensure the highest quality of life and ongoing independence. Getting to ...
(Date:6/24/2016)... New York, NY (PRWEB) , ... June 24, ... ... lifestyle publication Haute Living, is proud to recognize Dr. Barry M. Weintraub as ... believes that “the most beautiful women in the world, and the most handsome ...
(Date:6/24/2016)... ... ... Venture Construction Group (VCG) sponsors Luke’s Wings 5th Annual ... Country Club at 1201 Rockville Pike, Rockville, Maryland, 20852. The event raised funds ... been wounded in battle and their families. Venture Construction Group is a 2016 Silver ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... June 23, 2016 Research and ... Excipients Market by Type (Organic Chemical (Sugar, Petrochemical, Glycerin), ... Topical, Coating, Parenteral) - Global Forecast to 2021" ... The global pharmaceutical excipients market is projected ... CAGR of 6.1% in the forecast period 2016 to ...
(Date:6/23/2016)... DUBLIN , June 23, 2016 ... "Global MEMS Devices Medical Market Analysis 2016 - Forecast to ... The report contains up to date financial ... reliable analysis. Assessment of major trends with potential impact on ... dive analysis of market segmentation which comprises of sub markets, ...
(Date:6/23/2016)... 2016 Bracket , a leading clinical trial ... clinical outcomes platform, Bracket eCOA (SM) 6.0, at the ... – 30, 2016 in Philadelphia , Pennsylvania.  ... Assessment product of its kind to fully integrate with RTSM, ... eCOA 6.0 is a flexible platform for electronic clinical outcomes ...
Breaking Medicine Technology: