Navigation Links
High quality of life in spite of very severe disease
Date:6/20/2008

Patients with amyotrophic lateral sclerosis (ALS) experience an astonishingly high quality of life. This disease leads to progressive muscular weakness and the clinical course is always fatal. In spite of the continuously increasing loss of control, studies performed by Birbaumer et al. (Tbingen) and Ludolph et al. (Ulm) and reported in the current edition of Deutsches rzteblatt International have shown that many ALS patients are satisfied with their lives. (Dtsch Arztebl Int 2008; 105(23): 397-403)

http://www.aerzteblatt.de/v4/archiv/pdf.asp?id=60459

The authors showed that the quality of life of ALS patients does not depend on the severity of their physical restrictions. In contrast, it was found that patients who have to be given artificial respiration are more satisfied than patients for whom this is not necessary. Although an outside observer would have expected ALS patients to be depressed, as the disease is so serious, this was only the case for 10% of patients. This means that the proportion of depressive disorders is only slightly greater than in the overall population.

In view of the public discussion on euthanasia and assisted suicide, the authors think it essential that there should be a scientific investigation of the quality of life, as seen by the patient. The present studies show that the quality of life of patients with a fatal degenerative disease does not necessarily have to differ from that of healthy subjects.

In an accompanying editorial, Professor Hans Frstl points out the significance of these studies for the discussion of measures to shorten life. These could no longer be simply justified by saying that the patient had to be freed from his suffering. Frstl commented that the suffering is seen by the observer and not felt by the patient.


'/>"/>

Contact: Elke Bartholomus, M.A.
49-223-470-11133
Deutsches Aerzteblatt International
Source:Eurekalert

Page: 1

Related medicine news :

1. More proof needed of safety and quality of electronic personal health records
2. Pitt study finds inequality in tobacco advertising
3. Poor indoor air quality means poorer health for patients with COPD
4. Kingfisher Healthcare (KFH) Achieves World Class Quality Platform
5. Exempla Healthcare Contracts For Talismans Quality Donor System
6. Study finds primary care depression treatment often does not follow quality guidelines
7. Income inequality associated with overnourishment and undernourishment in India
8. Exercise and yoga improves quality of life in women with early-stage breast cancer
9. Patient Advocate Foundation Launches Program to Help Uninsured Virginians with Chronic, Debilitating and Life-Threatening Illness Access Quality Healthcare
10. Bridgetech Announces Addition of the Agency for Healthcare Research and Quality as Content Provider in its Development of a Healthcare Web Portal in China
11. 7th Annual Quality Conference: 2 Days to Lock in Discounted Rate at The Ritz-Carlton
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/26/2017)... ... May 26, 2017 , ... Somnoware, a ... portable sleep monitor with its Somnoware Sleep Device Interface (SDI). Somnoware SDI is ... device operations. With this platform, initializing devices and importing studies are just one-click ...
(Date:5/26/2017)... MD (PRWEB) , ... May 26, 2017 , ... After ... anti-stress Antzy Top gadget will continue to be available at a discounted crowdfunding price ... deal with stress wherever they are, I also wanted to bring a fidget toy ...
(Date:5/26/2017)... ... ... “When the Stars Lead Home”: a poignant story of loss, determination, and ... Douglas, an avid reader who lives in the Pacific Northwest with her husband, daughter, ... Adventure Camp. She couldn’t be more grateful. , Twelve-year old Tizzy could not believe ...
(Date:5/26/2017)... ... ... Water damage to the flooring of several classrooms at The Fort Lee ... a number of critical issues to address before students could return to classes. , ... or no disruption to class schedules. Second, the project had to comply with New ...
(Date:5/24/2017)... Diego, California (PRWEB) , ... May 24, 2017 ... ... care through innovative medical image management and interpretation, has received U.S. Food and ... , Nucleus.io is a web-based, scalable and secure cloud platform for medical ...
Breaking Medicine News(10 mins):
(Date:5/15/2017)... , May 15, 2017  Amy Baxter MD, chief ... leader in noninvasive pain relief, was awarded a 2017 ... magazine. Baxter was recognized at the MM&M Top 40 ... York City on May 10, 2017. The ... biopharma industry go "beyond the pill."  "Innovation ...
(Date:5/10/2017)... 2017 Hologic, Inc. (Nasdaq: HOLX ... fiscal second quarter ended April 1, 2017 .   ... 666.7% compared to the prior year period as the ... significant gain, while non-GAAP diluted EPS of $0.50 increased ... in constant currency terms.  Excluding the effects of blood ...
(Date:5/10/2017)... 10, 2017 CSSi, the global leader in ... research industry, is proud to announce the launch of ... website features both enriched content and a customized layout ... the company,s already well-established position as the top global ... "After many months of hard work, we are delighted ...
Breaking Medicine Technology: