Navigation Links
Grant will help bridge digital divide for people with disabilities
Date:11/7/2011

Personal health records have been going electronic, and patients, caregivers, and healthcare providers are learning to navigate the new digital world of health information. Now three institutions are teaming up to discover how a large populationpeople with disabilitiescan best access this information.

The Children's Hospital of Philadelphia and the Inglis Foundation, also based in Philadelphia, are partnering with Boston public broadcaster WGBH's Carl and Ruth Shapiro Family National Center for Accessible Media (NCAM) on a joint project to explore how adaptive technology can make personal health records accessible to people with disabilities. NCAM is the project leader and principal recipient of the three-year, $600,000 grant, awarded by the U.S. Department of Education.

The grant, titled "Accessible Designs for Personal Health Records," is funded by the Department of Education's National Institute on Disability and Rehabilitation Research. The project began operations last month.

"Approximately 20 percent of the U.S. population has some type of disability, and three percent has a severe disability, but there has been little research on how people with disabilities access their own electronic health records," said Dean Karavite, lead human-computer interaction specialist at the Center for Biomedical Informatics (CBMi) at The Children's Hospital of Philadelphia. "As with any patient, accessing such information gives someone more control over their own health care."

Project staff members will systematically observe consumers served by Inglis Foundation as they perform tasks and seek information in their own electronic health records (EHRs). Inglis serves over 900 adults with physical disabilities in the Philadelphia area through its skilled nursing facility, Inglis House, and for those living independently in the community, through its accessible apartments, care management, and employment and adult day services.

"As electronic medical records become commonplace, it is essential that persons with disabilities have full access to their medical records," said Gavin Kerr, President and CEO of the Inglis Foundation. "Today's systems have not been designed with accessibility in mind. As a result people living with disabilities cannot be fully engaged in their care, and employees with disabilities who work with electronic medical records can no longer be fully effective in their jobs."

For all patients, using computers and other electronic devices to manage their health care includes scheduling appointments, exchanging messages with their physicians or therapists, refilling prescriptions, and viewing lab results. For people with disabilities, more specific needs come into playfor people with visual impairments, getting non-visual information; for people with limited hand mobility, having adaptive technology to access computer keyboard, screens and mice; for those with cognitive impairments, having minimal distractions and perhaps simplified terminology.

In addition, other issues will be identified as project staff members evaluate how people with disabilities use the current systems and define what needs to improve.

After the project's initial assessment of the current EHR situation, the staff will develop guidelines and recommendations for better accessibility. Karavite said that making information systems more useable and accessible for people with disabilities will also benefit broader populations of users. "We can make analogies to curb cuts in sidewalks or ramps in buildings," he said. "These were originally designed for people in wheelchairs, but parents pushing strollers also benefit."

Karavite gave other examples of how improving accessibility has had broader impacts: "Captioning, which WGBH developed in the 1970s for people who are deaf, is used by everyone in noisy airports or waiting rooms. Word prediction, designed in the late 1980s to help people with physical disabilities type with fewer keystrokes, now is a standard feature for anyone using a smart phone. Universal design can benefit everyone."


'/>"/>

Contact: John Ascenzi
ascenzi@email.chop.edu
267-426-6055
Children's Hospital of Philadelphia
Source:Eurekalert

Related medicine news :

1. NACDD Receives Two-Year Grant From Merck & Co., Inc. to Improve Diabetes Education
2. Kaiser Permanente Approves $170 Million in Community Benefit Grants in 2009
3. Autism Science Foundation Offers IMFAR Grants to Autism Stakeholders
4. Perrigo Granted Summary Judgment of Non-Infringement in Mucinex(R) Case
5. US21, Inc. is Granted a Wholesale Distributor Permit from the Commonwealth of Virginia Board of Pharmacy
6. San Diego State University and BIOCOM Institute Receive $4.95 Million Grant: The BRIDGE Project, Linking Education to Employment in San Diegos Life Sciences Industry
7. NIH grants to Childrens Hospital will advance novel stem cell treatments for blood disorders
8. Special Olympics Georgia Receives Grant from The Home Depot Foundation
9. NIH grant will create behavioral health registry for pediatric inflammatory bowel disease
10. San Diego Unified School District Awarded Silent Hero Grant From got breakfast?(R) Foundation
11. Congressional Staff Briefing, Wed., Feb. 24 on Mental Health, Medicaid & Block Grants
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:2/27/2017)... ... February 27, 2017 , ... This webinar , ... as a tool to characterize particle size distributions in the field of geoscience ... and novel scientific findings. It describes methods of optimized and standardized sample collection, ...
(Date:2/27/2017)... ... February 27, 2017 , ... ... alcohol treatment programs in British Columbia, Canada, at https://www.sunshinecoasthealthcentre.ca/ , is proud ... The new hire, Mackenzie Alsager, showcases the Centre's commitment to innovation in drug ...
(Date:2/26/2017)... ... February 25, 2017 , ... The February 13, 2017, assassination ... and concern over nerve agents and the deadly use of chemical weapons. Many questions ... and how even small doses can be lethal. , Jay Jagannathan, M.D., of Michigan-based ...
(Date:2/26/2017)... (PRWEB) , ... February 26, 2017 , ... ... for wholesale distribution in North America, today announced it would be offering some ... company, which prides itself on crafting quality and unique baby clothing/feeding products, will ...
(Date:2/26/2017)... , ... February 26, 2017 , ... ... after receiving cognitive rehabilitation, according to a study released today at the 1st ... cognitive rehabilitation programs are proven to be effective in improving cognitive function in ...
Breaking Medicine News(10 mins):
(Date:2/24/2017)... 24, 2017 Juan Monteverde , founder ... , a boutique securities firm headquartered at the Empire ... , announces that a class action lawsuit has been ...  against Inotek Pharmaceuticals Corporation (NASDAQ:  ITEK)("Inotek" or the ... July 23, 2015 and December 30, 2016, inclusive (the ...
(Date:2/24/2017)... YORK , Feb. 23, 2017 Report analyzes ... report provides separate comprehensive analytics for the US, ... Europe , Asia-Pacific , ... and forecasts are provided for the period 2015 through 2022. ... Market data and analytics are derived from primary and secondary ...
(Date:2/24/2017)... le 24 février 2017 ITL Limited, ( ASX : ITD ... est ravie d,annoncer les excellents résultats semestriels clos le ... correspondante. Une présentation complète « Résultats et mise à jour ... ici . Faits marquants ... 2015 : 1,04 million $ ; en hausse de 104 %) ...
Breaking Medicine Technology: