Navigation Links
Goulet's Life Lost to Untreatable Lung Disease That Claims as Many Lives as Breast Cancer Each Year

Urgent Need for Increased Awareness of Disease, Funding for Research

SAN JOSE, Calif., Oct. 31 /PRNewswire-USNewswire/ -- Actor Robert Goulet was unfortunately one of 40,000 people in the U.S. who will lose their lives to idiopathic pulmonary fibrosis (IPF) this year, the same number as will die from breast cancer. Yet, most people have never heard of IPF until someone they love is diagnosed.

IPF has no FDA approved treatment, no known cause and no cure. As in Goulet's case, most patients won't receive a potentially life saving lung transplant in time. In fact, approximately 50 percent of IPF patients who are on a lung transplant list will pass away before a donor lung becomes available.

More than 128,000 people suffer from IPF in the United States, and prevalence and incidence of the deadly disease has increased more than 150 percent in just five years.

"Our sympathies go out to the Goulet family. We know first hand the tragedy of IPF," said Mark Shreve, chief executive officer of the Coalition for Pulmonary Fibrosis (CPF). "It is devastating news to IPF patients and their families that viable treatments for IPF still do not exist. We desperately need to increase awareness of IPF and fund research that will lead to new treatments, and ultimately a cure."

"Pulmonary Fibrosis remains an extremely frustrating disease for researchers," said Kevin K. Brown, M.D., senior author of the study and vice chair of medicine at National Jewish Medical & Research Center in Denver. "The devastation it causes to patients and their families only amplifies the urgency we feel as we study the disease. While we have made some progress over the last decade, it is not nearly enough."

About Idiopathic Pulmonary Fibrosis (IPF)

IPF is a lung disorder characterized by a progressive scarring - known as fibrosis - and deterioration of the lungs, which slowly robs its victims of their ability to breathe. Approximately 128,000 Americans suffer from IPF, which is the most prevalent of a classification of lung disorders known as interstitial lung diseases (ILD's). There is currently no known cause or cure for IPF, nor is there an FDA-approved treatment. An estimated 48,000 new cases are diagnosed each year. IPF is difficult to diagnose, and an estimated two-thirds of patients die within five years of diagnosis.

About the Coalition for Pulmonary Fibrosis

The Coalition for Pulmonary Fibrosis (CPF) is a 501(c)(3) nonprofit organization, founded in 2001 to accelerate research efforts leading to a cure for idiopathic pulmonary fibrosis (IPF), while educating, supporting, and advocating for the community of patients, families, and medical professionals fighting this disease. The CPF funds promising research into new approaches to treat and cure pulmonary fibrosis; provides patients and families with comprehensive education materials, resources, and hope; serves as a voice for national advocacy of IPF issues; and works to improve awareness of IPF in the medical community as well as the general public. The CPF's nonprofit partners include many of the most respected medical centers and healthcare organizations in the U.S. With more than 14,000 members nationwide, the CPF is the largest nonprofit organization in the U.S. dedicated to advocating for those with pulmonary fibrosis. For more information please visit or call (888) 222-8541.

SOURCE Coalition for Pulmonary Fibrosis
Copyright©2007 PR Newswire.
All rights reserved

Related medicine news :

1. Untreatable Eye Disease Improves With Avastin
2. Transdermal HRT not cardioprotective in postmenopausal women with Coronary Artery Disease
3. Evidence Links Protein Damage to Neurodegenerative diseases like Parkinsons and Alzheimers
4. Vitamins-The answer to Heart Disease?
5. Fight Heart disease and Pain with Meditation
6. Heart disease in the newborn is related to maternal malnutrition
7. Starvation in pregnant women can cause heart disease to their children
8. Individuals with sleep related breathing disorders more prone to heart disease
9. And now they say infections can cause heart disease!!!!
10. And now they say infections can cause heart disease!!!!
11. India takes on foot-and-mouth disease by vaccinating animals
Post Your Comments:
(Date:11/28/2015)... ... November 28, 2015 , ... StatRad , ... added Chris Hafey and Claude Hooton to its board of directors. The announcement ... America (RSNA) 2015 Annual Meeting and continues to strategically transform its focus from ...
(Date:11/28/2015)... ... November 28, 2015 , ... Beginning November 30th at 6:00 a.m. EST until 11:59 p.m. EST, ... With possible savings of up to 20% off orders $80 or more to free gifts ... every few hours. , As a competitive e-commerce website for skin care and cosmetic needs, ...
(Date:11/27/2015)... ... November 27, 2015 , ... According to an article published November ... meeting in Washington D.C. revolved around the fact that proper dental care, both at-home ... stressed the link between periodontal disease (more commonly referred to as gum disease) and ...
(Date:11/27/2015)... (PRWEB) , ... November 27, 2015 , ... ... affecting the health care in America. As people age, more care is needed, ... costs are rising, and medical professionals are being overworked. The forgotten part of ...
(Date:11/27/2015)... ... November 27, 2015 , ... "When ... said an inventor from Hillside, N.J. "Many people catch diseases simply from sitting ... individuals will always be protected from germs." , He developed the patent-pending QUDRATECS ...
Breaking Medicine News(10 mins):
(Date:11/26/2015)... 26, 2015 3D bioprinting market ... to a new report by Grand View Research Inc. Rising ... which demands kidney transplantation is expected to boost the market ... for organ transplantation. --> 3D bioprinting market ... to a new report by Grand View Research Inc. Rising ...
(Date:11/26/2015)... November 26, 2015 ... universitetssjukhus ser potential att använda SyMRI för ... för patienter med multipel skleros (MS) ... med SyntheticMR AB för att kunna använda ... sjukhuset. Med SyMRI kan man generera flera ...
(Date:11/26/2015)... Research and Markets ( ) ... Future Horizons and Growth Strategies in the Italian ... Segment Forecasts, Competitive Intelligence, Emerging Opportunities" report ... --> This new 247-page report ... drug monitoring market, including emerging tests, technologies, instrumentation, ...
Breaking Medicine Technology: