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Get Real Health to Partner with Immune Deficiency Foundation
Date:7/22/2014

eficiency and their families will be able to track their medications, log their infusions, answer surveys and questionnaires, enter information in their health journals, as well as take advantage of several other functionalities. It will also include a sync to Microsoft HealthVault’s ecosystem of devices, pharmacies and labs, and provider-to-patient emailing and access to additional health records through Blue Button Plus.

IDF contracted with Get Real Health after being awarded a grant by the Patient-Centered Outcomes Research Institute (PCORI) to create a Patient Powered Research Network, called PI Connect, to link patient entered data and experiences with clinical information in the USIDNET patient consented registry. The hope is that InstantPHR’s more user-friendly web interface and mobile app will result in the PI community having a more robust ePHR, and at the same time participate in research. “There are more than 200 primary immunodeficiency diseases, and more than 250,000 people in the country diagnosed with them,” said Marcia Boyle, president and founder of IDF. “Because the symptoms of these diseases and their management vary so widely, we are excited about our new ePHR being developed by Get Real Health.

The IDF ePHR, based on Get Real Health’s InstantPHR platform will be available at no cost to the primary immunodeficiency community.

About Get Real Health
Rockville, Maryland-based Get Real Health is an award-winning global health information technology pioneer specializing in patient engagement and connected care solutions. Get Real Health’s flagship product — InstantPHR® — is an electronic toolbox for creating and configuring personal health applications. Get Real Health has a diverse global customer base and strategic partnerships with industry leaders including Microsoft, Caradigm, Telstra Health and TELUS Health Solutions. Visit:

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