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Genomic technologies to identify toxic chemicals should be developed
Date:10/9/2007

genomic research in general, raises a host of social, legal, and ethical questions that the new initiative needs to address -- including protecting the privacy of genetic and health data, the report says. Individuals might decide against genetic testing if there is a danger that health insurers or employers could access their information and use it to deny them insurance or work. Safeguarding the privacy of this data will be increasingly challenging as the use of electronic medical records grows.

Improved legislation is needed to protect the privacy, confidentiality, and security of health information anywhere it is collected, stored, and transmitted -- not just at organizations already subject to privacy rules under the Health Insurance Portability and Accountability Act. The decision to learn about one's genetic vulnerabilities should rest with the individual, the report says. And except in rare circumstances, people who choose to get tested to learn about their particular genetic susceptibilities to a workplace chemical should be allowed to decide for themselves whether to accept the risks involved in employment.


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Contact: Sara Frueh
news@nas.edu
202-334-2138
The National Academies
Source:Eurekalert

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