Navigation Links
Genetic town halls to be held in 5 US cities

The Genetics and Public Policy Center will conduct a series of public town hall meetings to gather feedback from the public on their views related to a proposed large cohort study on the role of genes and environment in health. The town halls are part of a public consultation effort to inform the National Institutes of Health and other federal health agencies discussions as they decide whether and how such a study might go forward.

One way to study a host of common diseases - such as diabetes, heart disease, and cancer - is to set up large biobanks of genetic and other biological samples and related health information from large numbers of volunteers. Scientists could use the information in the biobank to conduct research on how a persons genes, environment, and lifestyle interact to cause disease.

The National Institutes of Health and other federal health agencies are considering developing a biobank of samples and information from hundreds of thousands of volunteers who would then be followed for many years, and they have asked the Center to gather feedback from the general public. As part of a two-year, $2 million pilot project funded by the National Human Genome Research Institute, the Center is gathering input on issues related to large, population-based studies through a series of focus groups, community leader interviews, and town halls, as well as a national survey of more than 4,000 individuals.

At the town halls, members of the public will have the opportunity to discuss the pros and cons of establishing and participating in a national biobank with experts and each other. Potential discussion topics include whether the cohort study should proceed, who would have access to the database, who would decide what kind of research could be done using the biobank, why people would or would not participate, what responsibilities researchers and participants would have to each other, and what prospective participants would expect in return - such as return of test results or follow-up care.

The town hall events will be held on March 8 in Kansas City, MO; April 5 in Phoenix, AZ; April 19 in Jackson, MS; April 24 in Portland, OR; and May 13 in Philadelphia, PA. Members of the public can register to attend by calling Erin Wiley at (202) 374-0840 or online at


Contact: Rick Borchelt
Genetics & Public Policy Center, Johns Hopkins University

Related medicine news :

1. DNA Findings Reveal Genetic History of Humans
2. Bone complications due to cystic fibrosis have a genetic cause, according to an MUHC study
3. New Genetic Technology IDs Virus That Killed Transplant Recipients
4. American Academy of Dermatology Research Confirms Genetic Skin Barrier Defect Linked to Eczema
5. Genetics Researcher at Childrens Hospital Selected as Howard Hughes Medical Institute Investigator
6. Genetics researcher at Childrens Hospital selected as Howard Hughes Medical Institute Investigator
7. Medifacts Systems, Inc. Grants Exclusive License for Genetic Test Patent to Mayo Clinic
8. Morphine dependency blocked by single genetic change
9. Study finds genetic link to human herpes susceptibility
10. Interleukin Genetics, Inc. Management to Present at Healthcare Conferences
11. Next Generation of Parents More Likely to Back Genetic Testing
Post Your Comments:
(Date:11/27/2015)... ... November 27, 2015 , ... A simply groundbreaking television series, "Voices ... show that delves into an array of issues that are presently affecting Americans. Dedicated ... open dialogue, this show is changing the subjects consumers focus on, one episode at ...
(Date:11/27/2015)... , ... November 27, 2015 , ... Dr. Thomas ... Associates, Inc. and Dr. Tucker Bierbaum with Emergency Medicine at St., Joseph ... that both STEMI and Sepsis conditions present in similar ways and require time-critical intervention ...
(Date:11/26/2015)... ... November 26, 2015 , ... ... system for diagnostic imaging in the Waterloo region. Using the Ocean Platform, family ... tests directly from their electronic medical record (EMR) without the need for redundant ...
(Date:11/26/2015)... ... November 26, 2015 , ... WorldCare International, Inc., the ... 61st annual Employee Benefits Conference. The Employee Benefits Conference was hosted by the ... Wednesday, November 11th, 2015. The conference was held at the Hawaii Convention Center ...
(Date:11/25/2015)... ... November 25, 2015 , ... As part of ... Empowerment ™ attracts volunteers together who want to combine talents and resources to ... stakeholders in the process. The non-profit launched its first major fundraiser on November ...
Breaking Medicine News(10 mins):
(Date:11/26/2015)... 2015 ... the  "2016 Future Horizons and Growth ... Marker Testing Market: Supplier Shares, Competitive ... offering.  --> ) ... "2016 Future Horizons and Growth Strategies ...
(Date:11/25/2015)... , Nov. 25, 2015  The American ... and Gynecologists (ACOG), and the March of Dimes ... Protecting Our Infants Act of 2015 ... number of newborns born exposed to drugs, such ... the bill,s introduction, all three organizations have worked ...
(Date:11/25/2015)... Nov. 25, 2015  ARKRAY USA ... to provide evidence demonstrating the accuracy of its blood ... on Insulin Resistance, Diabetes and Cardiovascular Disease in ... the Company,s GLUCOCARD ® 01 meter and the ... requirements. The ability to accurately measure glucose levels in ...
Breaking Medicine Technology: