Navigation Links
Genetic town halls to be held in 5 US cities
Date:2/22/2008

The Genetics and Public Policy Center will conduct a series of public town hall meetings to gather feedback from the public on their views related to a proposed large cohort study on the role of genes and environment in health. The town halls are part of a public consultation effort to inform the National Institutes of Health and other federal health agencies discussions as they decide whether and how such a study might go forward.

One way to study a host of common diseases - such as diabetes, heart disease, and cancer - is to set up large biobanks of genetic and other biological samples and related health information from large numbers of volunteers. Scientists could use the information in the biobank to conduct research on how a persons genes, environment, and lifestyle interact to cause disease.

The National Institutes of Health and other federal health agencies are considering developing a biobank of samples and information from hundreds of thousands of volunteers who would then be followed for many years, and they have asked the Center to gather feedback from the general public. As part of a two-year, $2 million pilot project funded by the National Human Genome Research Institute, the Center is gathering input on issues related to large, population-based studies through a series of focus groups, community leader interviews, and town halls, as well as a national survey of more than 4,000 individuals.

At the town halls, members of the public will have the opportunity to discuss the pros and cons of establishing and participating in a national biobank with experts and each other. Potential discussion topics include whether the cohort study should proceed, who would have access to the database, who would decide what kind of research could be done using the biobank, why people would or would not participate, what responsibilities researchers and participants would have to each other, and what prospective participants would expect in return - such as return of test results or follow-up care.

The town hall events will be held on March 8 in Kansas City, MO; April 5 in Phoenix, AZ; April 19 in Jackson, MS; April 24 in Portland, OR; and May 13 in Philadelphia, PA. Members of the public can register to attend by calling Erin Wiley at (202) 374-0840 or online at www.dnapolicy.org.


'/>"/>

Contact: Rick Borchelt
rborche1@jhu.edu
202-663-5978
Genetics & Public Policy Center, Johns Hopkins University
Source:Eurekalert

Related medicine news :

1. DNA Findings Reveal Genetic History of Humans
2. Bone complications due to cystic fibrosis have a genetic cause, according to an MUHC study
3. New Genetic Technology IDs Virus That Killed Transplant Recipients
4. American Academy of Dermatology Research Confirms Genetic Skin Barrier Defect Linked to Eczema
5. Genetics Researcher at Childrens Hospital Selected as Howard Hughes Medical Institute Investigator
6. Genetics researcher at Childrens Hospital selected as Howard Hughes Medical Institute Investigator
7. Medifacts Systems, Inc. Grants Exclusive License for Genetic Test Patent to Mayo Clinic
8. Morphine dependency blocked by single genetic change
9. Study finds genetic link to human herpes susceptibility
10. Interleukin Genetics, Inc. Management to Present at Healthcare Conferences
11. Next Generation of Parents More Likely to Back Genetic Testing
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:3/30/2017)... ... March 30, 2017 , ... ... Academy of Nutrition and Dietetics (AND), will join nonprofit Seafood Nutrition Partnership (SNP) ... a live webinar designed to help nutrition educators and students inform consumers about ...
(Date:3/29/2017)... ... 29, 2017 , ... In the United States alone, up to 36% of ... types of metastatic brain tumors(3). Though most meningiomas are benign, metastatic brain tumors are ... more effective treatment options, the San Diego Gamma Knife Center offers a ...
(Date:3/29/2017)... ... March 30, 2017 , ... Youth Futures International (YFI) ... and feedback from high school and college students who have participated in the program ... 7-23 and YFI is now accepting applications for enrollment. Visit http://www.ghana.yfiexperience.org ...
(Date:3/29/2017)... ... March 29, 2017 , ... The ... a referral to new patients from Burnaby, BC. Patients in need of experienced ... reconstruction services, can see the esteemed team at Wall Centre Dental. Drs. Parviz ...
(Date:3/29/2017)... ... March 29, 2017 , ... ... (MOBs) and other outpatient facilities, and who are the most active developers? ... questions, Revista and Healthcare Real Estate Insights (HREI) found that outpatient medical real ...
Breaking Medicine News(10 mins):
(Date:3/29/2017)... , March 29, 2017 Global intravenous (IV) ... 3 billion by 2021, growing at a CAGR of 5%. ... prescribed by a doctor to treat anemia or other iron ... level in the body. However, in some cases, oral administrations ... body and intravenous (IV) iron therapy comes into the picture. ...
(Date:3/29/2017)... 2017  BioSpecifics Technologies Corp. (NASDAQ: BSTC), a ... collagenase based-therapies with a first in class collagenase-based ... ®  in the U.S. and Xiapex ®  in Europe, ... overview at the upcoming 16 th Annual ... at 8:00 a.m. ET in New ...
(Date:3/29/2017)... -- Research and Markets has announced the addition of the ... Forecast" report to their offering. ... Proton Therapy Market in Italy will ... There are currently three proton therapy centers in Italy ... Italy , the first patients were treated with proton ...
Breaking Medicine Technology: