Navigation Links
Genetic town halls to be held in 5 US cities

The Genetics and Public Policy Center will conduct a series of public town hall meetings to gather feedback from the public on their views related to a proposed large cohort study on the role of genes and environment in health. The town halls are part of a public consultation effort to inform the National Institutes of Health and other federal health agencies discussions as they decide whether and how such a study might go forward.

One way to study a host of common diseases - such as diabetes, heart disease, and cancer - is to set up large biobanks of genetic and other biological samples and related health information from large numbers of volunteers. Scientists could use the information in the biobank to conduct research on how a persons genes, environment, and lifestyle interact to cause disease.

The National Institutes of Health and other federal health agencies are considering developing a biobank of samples and information from hundreds of thousands of volunteers who would then be followed for many years, and they have asked the Center to gather feedback from the general public. As part of a two-year, $2 million pilot project funded by the National Human Genome Research Institute, the Center is gathering input on issues related to large, population-based studies through a series of focus groups, community leader interviews, and town halls, as well as a national survey of more than 4,000 individuals.

At the town halls, members of the public will have the opportunity to discuss the pros and cons of establishing and participating in a national biobank with experts and each other. Potential discussion topics include whether the cohort study should proceed, who would have access to the database, who would decide what kind of research could be done using the biobank, why people would or would not participate, what responsibilities researchers and participants would have to each other, and what prospective participants would expect in return - such as return of test results or follow-up care.

The town hall events will be held on March 8 in Kansas City, MO; April 5 in Phoenix, AZ; April 19 in Jackson, MS; April 24 in Portland, OR; and May 13 in Philadelphia, PA. Members of the public can register to attend by calling Erin Wiley at (202) 374-0840 or online at


Contact: Rick Borchelt
Genetics & Public Policy Center, Johns Hopkins University

Related medicine news :

1. DNA Findings Reveal Genetic History of Humans
2. Bone complications due to cystic fibrosis have a genetic cause, according to an MUHC study
3. New Genetic Technology IDs Virus That Killed Transplant Recipients
4. American Academy of Dermatology Research Confirms Genetic Skin Barrier Defect Linked to Eczema
5. Genetics Researcher at Childrens Hospital Selected as Howard Hughes Medical Institute Investigator
6. Genetics researcher at Childrens Hospital selected as Howard Hughes Medical Institute Investigator
7. Medifacts Systems, Inc. Grants Exclusive License for Genetic Test Patent to Mayo Clinic
8. Morphine dependency blocked by single genetic change
9. Study finds genetic link to human herpes susceptibility
10. Interleukin Genetics, Inc. Management to Present at Healthcare Conferences
11. Next Generation of Parents More Likely to Back Genetic Testing
Post Your Comments:
(Date:10/13/2015)... ... , ... Sir Grout of Greater Boston donated an expansive, seven room ... House Charities® (RMHC®). This donation was made in an effort to give back to ... inception. , “We believe strongly in the Ronald McDonald House Charities, and they are ...
(Date:10/13/2015)... (PRWEB) , ... October 13, 2015 , ... ... its newest technology platform, ENGAGE, at HIMSS’s Patient Engagement Summit . HealthAware ... , ENGAGE delivers innovative health programs and interventions via mobile devices that provide ...
(Date:10/13/2015)... ... October 13, 2015 , ... Element ... products, introduced a new company, RightSensor™ LLC, an Internet of Things (IoT) hardware ... RightSensor™ provides a fully-managed approach for customers requiring sensor hardware for critical data ...
(Date:10/13/2015)... ... , ... NavaFit Inc. today announced the launch of its NavaFit app for ... local fitness & sporting events, and stay motivated. Users can download the ... us to get more serious about fitness and wellness, individuals are constantly looking for ...
(Date:10/13/2015)... , ... October 13, 2015 ... ... Omega-3, a first-of-its kind product that targets the unique health needs of ... of the American Pregnancy Association ( ), utilizes Nordic Naturals’ exclusive, ...
Breaking Medicine News(10 mins):
(Date:10/13/2015)... , Oct. 13, 2015  A minimally-invasive treatment just ... the United States.  After more than 10 years of ... 9 approved the use of High Intensity Focused Ultrasound ... cells while protecting surrounding tissue and minimizing chances for ... George Suarez , a pioneering Miami ...
(Date:10/13/2015)... N.J. , Oct. 13, 2015  ContraVir ... the "Company"), a biopharmaceutical company focused on the ... announced the closing of its previously announced underwritten ... stock and warrants to purchase up to 3,000,000 ... fixed combined price to the public of $3.00. ...
(Date:10/13/2015)... , Oct. 13, 2015  Measurement in accountable ... and balancing financial incentives, but gaps in measurement ... care and health systems. A new, peer-reviewed ... Managed Care explores measurement gaps for ... sets. --> --> ...
Breaking Medicine Technology: