Navigation Links
Genetic testing in newborns and children: Ethical issues affecting families and physicians

The Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital will host its fourth annual international bioethics conference on July 25-26, 2008 in Seattle. Conference participants will discuss the ethical implications of genetic testing including newborn screening for risk of future disease, how these tests impact families, testing prior to adoption, how results are used by families and the medical community, technological advances in testing and why the burden of genetic information often becomes a mixed blessing. "Predicting Our Future: Genetic Testing in Children and Their Families" will be held at the Bell Harbor International Conference Center on Seattle's downtown waterfront.

"The technology, marketing and use of genetic testing is growing all the time," said Dr. Benjamin Wilfond, the center's director. "However, there is lack of clarity about what should be done with this increased information and how it affects families. States vary widely in their newborn screening practices. As testing capabilities continue to expand, particularly for adult onset diseases, we must consider whether parents should be able to make these decisions for their children. There continues to be more and more genetic knowledge available, and therefore we have increased obligations to use it appropriately and understand what it means to individuals, families and society as a whole."

With a focus on the ethical, legal and medical issues affecting children and their families, this conference will address many questions related to genetic testing such as:

  • Should parents be able to make adoption decisions based upon genetic test results?
  • Which adult-onset diseases should newborns be tested for? Should these tests be mandatory or optional?
  • How does advance knowledge of possible or probable disease affect children and their parents?
  • When is too much information undesirable?
  • What is the moral obligation to inform extended family members of test results that may impact them?
  • When should children be able to participate in decisions about what to be tested for and when to learn results? What if a minor's views differ from those of their parent or legal guardian?

Guest speakers include Dr. Duane Alexander, director of the National Institute of Child Health and Human Development at the National Institutes of Health; Kathryn Battuello, JD, lecturer and author; Dr. Jeffrey Botkin from the Division of Medical Ethics at the University of Utah; Dr. Wylie Burke, chair of the Department of Medical History and Ethics at the University of Washington School of Medicine; Dr. Norman Fost, director of the Program in Medical Ethics at the University of Wisconsin; Dr. Lainie Friedman Ross, Associate Director of the MacLean Center for Clinical Medical Ethics at the University of Chicago; Dr. Beth Tarini from the University of Michigan; Ken Tercyak, PhD, from the Pediatric Oncology Division at Georgetown University Hospital; and Dr. Benjamin Wilfond, director of the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital. They will be joined by Rebecca and Katherine Fisher, a mother and daughter who will speak first-hand about their own experiences with breast cancer and the genetic test results that affect their family.


Contact: Teri Thomas
Children's Hospital and Regional Medical Center of Seattle

Related medicine news :

1. Many Parents Share Genetic Test Findings With Kids
2. Genetic predisposition increases childhood asthma risk
3. New Alzheimers findings: High stress and genetic risk factor lead to increased memory decline
4. Test Spots Genetic Damage Done by Smoking
5. Scientists demonstate link between genetic variant and effectiveness of smoking cessation meds
6. Scientists highlight benefits of genetic research in sport, but warn of ethical concerns
7. Genetics Hold Promise, Challenges for Cancer Care
8. Researchers genetically engineer micro-organisms into tiny factories
9. Study Questions Genetic Screening for Treatable Diseases
10. Researchers provide genetic associations from a genome-wide scan for cardiovascular disease traits
11. Genetic variation affects smoking cessation treatment
Post Your Comments:
(Date:11/26/2015)... (PRWEB) , ... November 26, 2015 , ... ... American Express Travel Representative. As a franchise owner, Somu now offers travelers, value ... cruise, destination wedding packages, private cruise sales, as well as, cabin upgrades and ...
(Date:11/26/2015)... , ... November 26, 2015 , ... PRMA Plastic Surgery ... 19, 2015, our surgeons performed their 6,000th free flap breast reconstruction surgery! , “What ... up every day excited to rebuild lives and it’s an honor to have served ...
(Date:11/26/2015)... ... November 26, 2015 , ... Health-E-minds ... collaborated with Women’s Web – an online resource for Indian women looking ... and emotional well-being relationship, life balance, stress, professional development, and lifestyle. Health-E-minds ...
(Date:11/25/2015)... (PRWEB) , ... November 25, 2015 , ... ... accessible for all, Water For Empowerment ™ attracts volunteers together who want ... water by empowering women as key stakeholders in the process. The non-profit launched ...
(Date:11/25/2015)... Neb. (PRWEB) , ... November 25, 2015 , ... ... staffing companies, has been recognized once again for its stellar workplace culture with ... to Work.” , Medical Solutions’ Cincinnati office was named a finalist ...
Breaking Medicine News(10 mins):
(Date:11/26/2015)... , November 26, 2015 /PRNewswire/ ... --> adds "Global ... and "Investigation Report on China Repaglinide ... 2021 forecasts data and information to ... . --> ...
(Date:11/26/2015)... DUBLIN , Nov. 26, 2015 ... the addition of the "2016 Future Horizons ... Monitoring (TDM) Market: Supplier Shares, Country Segment Forecasts, ... offering. --> ... comprehensive analysis of the Italian therapeutic drug monitoring ...
(Date:11/26/2015)... , November 26, 2015 /PRNewswire/ ... announced the addition of the  "2016 ... the European Cell Surface Marker Testing ... Opportunities"  report to their offering.  ... the addition of the  "2016 Future ...
Breaking Medicine Technology: