Navigation Links
Genetic testing in newborns and children: Ethical issues affecting families and physicians
Date:6/4/2008

The Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital will host its fourth annual international bioethics conference on July 25-26, 2008 in Seattle. Conference participants will discuss the ethical implications of genetic testing including newborn screening for risk of future disease, how these tests impact families, testing prior to adoption, how results are used by families and the medical community, technological advances in testing and why the burden of genetic information often becomes a mixed blessing. "Predicting Our Future: Genetic Testing in Children and Their Families" will be held at the Bell Harbor International Conference Center on Seattle's downtown waterfront.

"The technology, marketing and use of genetic testing is growing all the time," said Dr. Benjamin Wilfond, the center's director. "However, there is lack of clarity about what should be done with this increased information and how it affects families. States vary widely in their newborn screening practices. As testing capabilities continue to expand, particularly for adult onset diseases, we must consider whether parents should be able to make these decisions for their children. There continues to be more and more genetic knowledge available, and therefore we have increased obligations to use it appropriately and understand what it means to individuals, families and society as a whole."

With a focus on the ethical, legal and medical issues affecting children and their families, this conference will address many questions related to genetic testing such as:

  • Should parents be able to make adoption decisions based upon genetic test results?
  • Which adult-onset diseases should newborns be tested for? Should these tests be mandatory or optional?
  • How does advance knowledge of possible or probable disease affect children and their parents?
  • When is too much information undesirable?
  • What is the moral obligation to inform extended family members of test results that may impact them?
  • When should children be able to participate in decisions about what to be tested for and when to learn results? What if a minor's views differ from those of their parent or legal guardian?

Guest speakers include Dr. Duane Alexander, director of the National Institute of Child Health and Human Development at the National Institutes of Health; Kathryn Battuello, JD, lecturer and author; Dr. Jeffrey Botkin from the Division of Medical Ethics at the University of Utah; Dr. Wylie Burke, chair of the Department of Medical History and Ethics at the University of Washington School of Medicine; Dr. Norman Fost, director of the Program in Medical Ethics at the University of Wisconsin; Dr. Lainie Friedman Ross, Associate Director of the MacLean Center for Clinical Medical Ethics at the University of Chicago; Dr. Beth Tarini from the University of Michigan; Ken Tercyak, PhD, from the Pediatric Oncology Division at Georgetown University Hospital; and Dr. Benjamin Wilfond, director of the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital. They will be joined by Rebecca and Katherine Fisher, a mother and daughter who will speak first-hand about their own experiences with breast cancer and the genetic test results that affect their family.


'/>"/>

Contact: Teri Thomas
teri.thomas@seattlechildrens.org
Children's Hospital and Regional Medical Center of Seattle
Source:Eurekalert

Related medicine news :

1. Many Parents Share Genetic Test Findings With Kids
2. Genetic predisposition increases childhood asthma risk
3. New Alzheimers findings: High stress and genetic risk factor lead to increased memory decline
4. Test Spots Genetic Damage Done by Smoking
5. Scientists demonstate link between genetic variant and effectiveness of smoking cessation meds
6. Scientists highlight benefits of genetic research in sport, but warn of ethical concerns
7. Genetics Hold Promise, Challenges for Cancer Care
8. Researchers genetically engineer micro-organisms into tiny factories
9. Study Questions Genetic Screening for Treatable Diseases
10. Researchers provide genetic associations from a genome-wide scan for cardiovascular disease traits
11. Genetic variation affects smoking cessation treatment
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:5/31/2016)... ... May 31, 2016 , ... Joe DiMaggio Children’s ... Florida. , The clinic is led by a world class team of ... pediatric neuropsychology and also a team of certified vestibular therapists. , The ...
(Date:5/31/2016)... ... , ... RF Safe's has decades of experience in both RF shielding design ... implicated in the most recent cell phone cancer link released by NTP researchers. , ... 26th (PDF) by the National Toxicology Program (NTP), a multiagency research effort, have ...
(Date:5/31/2016)... Overland Park, Kansas (PRWEB) , ... May 31, ... ... Kansas, announces that Keith Pardoe, FDAI, DAHC, CDC, has joined the Fire Door ... for fire door inspections and fire door and frame in-field re-labeling. He ...
(Date:5/31/2016)... Barbara, CA (PRWEB) , ... May 31, 2016 , ... Throughout the day, adults often ... for sustained motivation and awareness, but what they could be reaching for instead is a ... tea plants that are grown in Japan. This sacred tea is harvested from early June ...
(Date:5/31/2016)... ... 2016 , ... Presence Technology , a multi-channel provider ... Gartner, Inc. in the Contact Center Infrastructure Magic Quadrant (*). , Gartner’s May ... of which include: Computer-telephony integration (CTI)/Web services interfaces, Tools for integration with ...
Breaking Medicine News(10 mins):
(Date:5/31/2016)... England , May 31, 2016 , ... global demand for its Patient Status Engine wireless patient monitoring ... India , Germany , Scotland ... , The company,s 2 nd generation system, launched earlier this ... around the world , , This new technology ...
(Date:5/30/2016)... , May 30, 2016 ... "Healthcare Analytical Testing Services Market by Type (Stability, ... Services), by End User (Pharmaceutical Companies, Medical Device ... MarketsandMarkets, The market witnessed healthy growth during the ... a CAGR of 11.3% between 2016 and 2021 ...
(Date:5/30/2016)... Eye expert s ... examination before leaving hospital ... Moorfields Eye Hospital Dubai, the first overseas branch of the world-renowned ... premature babies as a special concern in the region when it ... of prematurity (ROP). ROP is a potentially blinding condition that affects ...
Breaking Medicine Technology: