Navigation Links
Gaps in Care Found for Sickle Cell Disease Patients
Date:12/10/2012

MONDAY, Dec. 10 (HealthDay News) -- There are major gaps in medical care for sickle cell disease patients as they move from childhood to adulthood, new research finds.

Sickle cell disease is an inherited blood disorder that affects between 90,000 and 100,000 Americans, many of them African-Americans. Those with the disease produce abnormal, sickle-shaped cells that can't move easily through blood vessels to deliver adequate oxygen to tissues and organs. It was formerly considered a childhood disease because patients rarely lived beyond their teens. But improved treatments mean that many of these patients live well into adulthood.

Although life expectancy has been extended for these patients, there are new challenges to help ensure that the growing number of adults with sickle cell disease receive adequate care to manage their disease over the long term, according to research that was to be presented Monday at the American Society of Hematology annual meeting, in Atlanta.

The studies show that these patients tend to rely more on emergency rooms to manage acute problems (such as infection, pain and acute chest syndrome) related to their disease as they become adults.

These patients are also hospitalized more frequently than the general population, resulting in significantly higher overall costs, including improving continuity of care and patient education.

The researchers also offer evidence to encourage public health officials to continue to develop and refine important efforts to help sickle cell disease patients as they move from child to adult with public and private health insurance coverage.

"While we have made many advances in the treatment of sickle cell disease, this research reveals the important challenge we as physicians continue to face in ensuring that the medical system supports timely access to needed preventive and disease-management protocols for our patients," American Society of Hematology President-Elect Dr. Janis Abkowitz, of the University of Washington School of Medicine in Seattle, said in a society news release.

"For health care providers, it is important to consider how we can address the needs of patients transitioning into adulthood and avoid unnecessary trips to the emergency department -- steps that will improve the health care system for everyone," Abkowitz added.

Research presented at medical meetings should be viewed as preliminary until published in a peer-reviewed journal.

More information

The March of Dimes has more about sickle cell disease.

-- Robert Preidt

SOURCE: American Society of Hematology, news release, Dec. 10, 2012


'/>"/>
Copyright©2012 ScoutNews,LLC.
All rights reserved

Related medicine news :

1. More Fake Avastin Found in U.S., FDA Says
2. Kessler Foundation names Dr. John Whyte recipient of Foundations 2nd Annual DeLisa Award
3. History of abandoned urban sites found stored in soil
4. Wilderness Medicine founder offers health tips for summer season
5. Concerns about MRSA for expectant mothers may be unfounded
6. Kessler Foundation scientist awarded $554,000 for multiple sclerosis employment research
7. Clues to Slacker Behavior Found in Brain, Study Says
8. Kessler Foundation researchers present at first International Congress on Cognition in MS
9. Biomedical researchers receive Hartwell Foundation awards
10. Fewer prostate cancer surgery complications found in teaching hospitals with fellowship programs
11. Breast cancer effectively treated with chemical found in celery, parsley by MU researchers
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:10/13/2017)... Worth, TX (PRWEB) , ... October 13, 2017 ... ... financial planning agency serving communities in the greater Dallas, Miami, and Raleigh regions, ... young boy fighting to overcome a rare and deadly chromosome abnormality. , After ...
(Date:10/13/2017)... , ... October 13, 2017 , ... ... the certification process to promote standards of excellence for the field of eating ... for March 22 – 25, 2018 in Orlando, Florida at the Omni Resort ...
(Date:10/13/2017)... LUIS OBISPO, Calif. (PRWEB) , ... October 13, 2017 , ... ... Alzheimer’s or dementia. However, many long-term care insurance companies have a waiver for care ... is the 90-day elimination period, when the family pays for care, is often waived, ...
(Date:10/13/2017)... ... October 13, 2017 , ... Talented host, actor ... on sciatica in a new episode of "Success Files," which is an award-winning ... innovation and investigates each subject in-depth with passion and integrity. , Sciatica occurs ...
(Date:10/12/2017)... San Francisco, CA (PRWEB) , ... October 12, ... ... and Dr. Cheng, are now treating sleep apnea using cutting-edge Oventus ... sleep apnea, a serious sleep disorder characterized by frequent cessation in breathing. Oral ...
Breaking Medicine News(10 mins):
(Date:10/2/2017)... 2, 2017 Halo Labs announces the European launch of ... the HORIZON at MIBio 2017 in Cambridge, U.K ... particulate matter in biopharmaceutical samples with unprecedented speed and sensitivity while ... technique Backgrounded Membrane Imaging. ... HORIZON subvisible particle analysis system ...
(Date:9/28/2017)... Cohen Veterans Bioscience and Early Signal Foundation ... and home sensors for real-time monitoring of patients with ... nonprofit organization focused on disruptive health solutions for rare ... system to record and integrate behavioral, cognitive, physiological and ... ...
(Date:9/25/2017)... 2017   Montrium , an industry leader ... the IQPC Trial Master Files & Inspection Readiness ... EastHORN Clinical Services has selected eTMF Connect ... management. EastHORN, a leading European contract research organization ... transparency to enable greater collaboration with sponsors, improve ...
Breaking Medicine Technology: